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Head and Neck Cancer

Archives for March 2021

Clinical trials
Sorry haven't bee on here for a couple years, been battling a ulcer, cancer on base of tongue, have been doing things like immunotherapy, then when that stopped working tried a clinical trial of high intense radiation treatments, that's kinda where everything gets crazy, mainly because the radiation caused lots of…
Recently Diagnosed
Has anyone survived stage 4 pharyngeal cancer? Im diagnosed without staging but have had symptoms about a year now and was wondering if it's possible to survive worst case scenario. I'm 32 and this is pretty scary. Also if it is distant, would it also be in my lymph system? I've developed pain in my left rib cage recently…
Tongue Flap complications
Hello fellow HNSCC patients/ surviv Its been a long time since I have posted... This month, I am 4 years out from my diagnosis, G Tube, etc. I am 71.5 pounds...and my tumors have been Recurrent, even after Radiation treatments. My esophagus is severely strictured--- Twice it closed up completely... For 2 year now, I have…
Erbitux + new bone mets
Hi there, I am 5+ months post chemorradiation for NPC (nasopharyngeal carcioma). I just had a PET-CT b/c of persistent pain and numbness in my hip / leg. Turns out that I have a whole slew of new mets that now need to be treated. They are putting me on weekly Carbo, Taxol and Erbitux. A couple questions: 1) has anyone on…
Hyperbaric Oxygen for Salivary Glands question
Does anyone have experience with hyperbaric oxygen treatments to improve their salivary gland functionality post radiation? Interested what the results were and if recommended.
Mouth and throat sores after treatments
Hi, one month after treatments for neck and throat cancer 35 rads and 5 chemos , I still am getting these little mouth sores around my troat that look like little blisters they come and go. Mainly appear during eating , they are painful and resolve the next day or in several hours until I irritate the troat eating again.…
GOOD NEWS...NED- 3 years out
Hello fellow warriors. Just wanted to report that my CT scan today came back NED. Oddly, had a panic attack while getting the scan and had to stop twice. Unusual for me since I was bolted down during rads 5 days a week for 6 weeks with no problems. My heart rate and blood pressure shot up and only until I sat up at the…
Post surgery recovery difficult
My husband is one-week post surgery; robotic removal of tumor from BOT; neck dissections of lymph nodes bilaterally. His cancer was squamous cell HPV. We're waiting on pathology report, but the surgeon said that the tumor was more involved than initially expected and that the lymph nodes were entangled in veins, nerves. So…
3 weeks post treatments update: how long did it take for you to really start feeling better?
Hi, The journey continues ... Last 2 weeks of treatments were brutal. Ill spare you the specifics, but i can tell you fentanyl and oxy were my friend. Post treatment recovery started out slow especially with the continued mouth sores and sore throat. 3 weeks post treatments I am still experiencing some new mouth sores and…
Extended lLoss of Taste
I have a friend, who finished throat Cancer treatment, about 18 months ago. I ran into him today, and he told me he STILL hasn't regained much of a sense of taste. He says unless it's super sweet, food just doesn't register. I told him about CSN, but also offered to ask my friends on here for advice on this. Can anyone…
Post Radiation Swelling Question
Hey guys..I know taste and swelling are things that take a spell after radiation ... I have heard all sorts of timelines re: taste (as normal, everyone is different). How long did it take some of y'all for the throat selling to go down? I know I am only 10 days post rads, and am not being impatient..although I am..LOL.…
Tightness in Neck and Jaw
I just joined this support group. I was diagnosed with squamous cell carcinoma located in my left lower jaw bone area in October of 2020. After two ct scans and one pet scan that showed the cancer did not spread to any other areas my bone surgeon scheduled my surgery for December 10th 2020. He removed the lower left jaw…
TORS oncological tonsillectomy No Radiation
Hi Folks, I underwent a unilateral tonsillectomy for biopsy it was HPV+ T1 SCC. Then 7 weeks later went on to have a selective neck level 4 (all clear) and a TORS tonsillectomy (Same side just full resection of tonsil bed) Sept 8 2020. I have been going mad with fear the last couple of months as I have these episodes where…
Covid Vaccine
My Chemo and Radiation was almost 10 years ago now..... Should I be concerned about taking the Vaccjne? any input would be appreciated
A Progress Report from Beagledad
[P=L tonsil, S= 2 nodes in lymph. TORS with MRND. 4 of 5 negative margins, + on deep margin. This was followed up by 7 Cisplatin chemos and 33 bilateral IMRT rads 60/54g] Good morning to you all! I am happy to report that last Friday, Feb 26th, I completed my last radiation treatment and am now on Day 6 of Recovery.…
Radiation Hack 3 of 3 - Mitigating Dry Mouth & Throat
[P=L tonsil, S= 2 nodes in lymph. TORS with MRND. 4 of 5 negative margins, + on deep margin. This was followed up by 7 Cisplatin chemos and 33 bilateral rads 60/54g] I have to come clean here ... I think I was pretty fortunate. During my radiation I never lost my saliva. And I even maintained *some* taste; I could taste…
Radiation Hack 2 of 3 - Dealing with dry snout
[P=L tonsil, S= 2 nodes in lymph. TORS with MRND. 4 of 5 negative margins, + on deep margin. This was followed up by 7 Cisplatin chemos and 33 bilateral rads 60/54g] I used this a lot post-TORS when I had that irritating nasal feeding tube. With that tube I could neither blow my nose nor wipe it. It was really, really…
Radiation Hack #1 of 3 - Mitigating thick mucous
[P=L tonsil, S= 2 nodes in lymph. TORS with MRND. 4 of 5 negative margins, + on deep margin. This was followed up by 7 Cisplatin chemos and 33 bilateral rads 60/54g] First and foremost: I am NOT a medical professional!! Prior to taking ANY medication other than what has been prescribed, whether OTC or not, verify with your…
Concerned for my (love) Bucket
This is the wifey. I would like to know if somebody has been in the same position, and how they fared after all the sessions. Will he feel bad for a long time afterwards? My goal is to take him on a small vacation in mid-May. My favorite hubby Bucket has tongue cancer squamous cell carcinoma stage 3. He is on radiation…

Head and Neck Cancer

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