-
Possible cancer again - need advice
I have been here before when I had tongue cancer and now I have a lump near my right tonsil that I am very concerned about considering I have had oral cancer before. I see an ENT to monitor my tongue cancer situation and he is a highly skilled and experienced surgeon whose practice focuses on head and neck cancer. He is…
-
Criteria for Bilateral versus Ipsilateral (1 side only) neck radiation
What are others experiences and knowledge here? Most trials and articles now support ipsilateral neck radiation recommendation (HPV+ context) when positive nodes are only found on 1 side. Why are many centers still treating both sides of neck as protocol? Is lymph node size a factor or other additional criteria? Bilateral…
-
Metastatic Epethelial Myoepethelial Carcenoma
I had my Parotid gland behind my right ear out in 2007. In 2019 they found salivary gland cancer in my right lung. Had 1/3 of lung removed. In 2020 they found it in my kidney, froze cancer & took it out. Now it's in my liver & both my lungs. Would very much like to find someone who has had this kind of cancer.
-
Thickening at the base of the tongue
Hello everyone my dad has stage 3 rectal cancer usually I post over there but today we got my dad's pet scans results . Well it looks like he might still have some cancer in the pelvis the FDG Uptake went down so they are unsure . Something else popped up on the pet scan report that his scarying the crap out of me the…
-
Cartoid Artery
I am 28 months out from finishing my treatment from HPV 16 tonsil / lymph node cancer and am still doing great. My GP just had me do an ultra sound of my cartoid arteries to determine if any issues are developing. I have been warned by my ENT that narrowing of the arteries is a possible side effect of the radiation. My ENT…
-
Immunotherapy and Keytruda
My mother was recently diagnosed with a recurrence of her jaw tumor. This time it's floor of the mouth, localized. We went through double mandibulectomy and fibula free flap, chemo and rads the first time two years ago. This time, she is starting treatment with Keytruda and her oncologist is very optimistic. I did not see…
-
Please help! Much appreciated.
I completed my Chemo/Radiation in Nov. Here it is February, I am still in a lot of pain. I am using MuGard and Magic Mouthwash (4 times a day). I also rinse my mouth out with baking soda and salt solution 3-4 times a day. I take Tylenol for pain. Yesterday, I started to take Gabapentin (300mg). I had a PET scan 3 weeks…
-
Dr. Amit Agrawal The James
Hello My partner has been diagnosed with HPV neck cancer and is scheduled with Dr. Amit Agrawal at The James next week. Just wondering if anyone on here is a patient of his and could share your treatment experience with him. Thank you.
-
Bilateral Neck Radiation for Tonsil Cancer
Hi All, My first time posting here, this has been a great site to learn from and very helpful. I'm 2 months past bilateral neck radiation (50 gry/25 fractions) as adjuvant therapy post TLM surgery to remove left tonsil. I had a 2.3 cm primary on left tonsil and 2 positive lymph nodes out of 40 +removed from left neck…
-
Proteisn Drink
Does anyone have any idea how i can make protein drinks taste better,what can i mix with them.I try G-ade it was ok.I like to hear other input on the subject
-
Chemo Belly
Good morning, folks. Here I am with 19 radiation of 33 done. 5 of 7 chemos (Cisplatin) done. I know I am heading into the tough weeks now. Thankfully, my doc is proactive and has already prescribed some liquid morphine for me .... don't need it yet but nice to know it is there with my Magic Mouthwash. I am asking for your…
-
Yummy way to get flaxseed oil and ground flaxseed
The recipe I saw on the Budwig page called for 1tablespoon of ground flaxseed to be sprinkled on about half a cup cottage cheese blended with a teaspoon of honey and a tablespoon of flaxseed oil. This could be served on a bowl of fruit. The ground flaxseed was irritating to my mouth and chewing is such a drag right now. I…
-
Advice/knowledge from those who have been there
I am 6.5 weeks out from finishing 30 radiation treatments and 5 Cisplatain Chemo treatments for recurrent Vocal Cord cancer. While I am making progress I have some questions for those that have been down this road. So first the positive items! My taste came back about 5 weeks in. Most everything tastes normal The constant…
-
5 year mark
I hit my 5 year cancer free date. I no longer have any appointments. The doctor surprisingly said the word "cured", which I liked, but will not fully believe. I just wanted to say to those who are in the heat of the battle, you can do it. I was stage 4, tonsil cancer. It was in my sinus, tongue, tonsil, lymph nodes....It…
-
Noob with floor of mouth cancer
Hello. I was just diagnosed with floor of mouth cancer in the first week of January. It is on the right side of my mouth between my tongue and teeth. I have had at least 6 biopsies in the last 15 or so years-2 of them under general anesthesia-on the right side of my tongue adjacent to the growth on the floor of my mouth.…
-
Possible failed root canal / tooth extraction help needed
Hi all, I will be 7 years post treatment later this year. About 5 years ago, I had a root canal in a back molar. I'm experiencing some bleeding and am worried it may be failing. I have been to the dentist yet but plan to go. I'm very scared and worried about this. I wonder if anyone has experienced anything similar. I'm…
-
Cancer treatment what should i expect
new to this board and treatment for cancer in my neck and back of my tongue.The doctor at the VA(which iam very please with) said i need a feeding tube and a med port put in and i need to have all my teeths pull.Iam looking at to 6 to 8 weeks of chemo and radiation all this scare the hell out of me and dont have any idea…