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Head and Neck Cancer

Archives for March 2018

Anyone have Ensure issues?
This is my 2nd try to post so if the other shows up, I will delete one. I had been feeling good but trying to gain some muscle back, so in addition to my 3 qts of milk per week I added 4-5 Ensure (original or high pro) to my diet. I know Ensure has 25%/bottle of daily b12 requirement but I am thinking the synthetic…
Carbo/ Taxol
This is the 3rd choice of chemo that was decided on. I didn't want to deal with the rash so I decided on this as did the chemotherapist. My radiologist said this wasn't proven for BOT SCC cancer. He said good for lung cancer and I also reminded him also is used for Cervix SCC My question is has anyone used this for BOT…
Many neck cancer issues still
post radiation 7 months and still no taste,saliva and dry mouth. Walk with a limp. Ears blocked with thumping sounds. Trying some solid foods but gag. Thank God for peg tube for two cal liquid. Can this continue forever? Any experiences to share?
Ring the Bell
I just wanted to check in to ring the bell. I just completed my 1 year and a half scope to receive the good news that per all indicators I remain NED! I really appreciate is Forum, and I particularly appreciate the posts I read from old timers. It gives me hope to see so many thriving in the life after cancer world. Cancer…
Recovery after treatment with trach and g-tube
Does anyone have, or had a trach through treatment. We are completing on 3/19 and I want to be proactive on what to do to help him get trach and tube removed. We obviously need to wait for rad swelling before we can get accurate swallow test 4/27 and ENT scope 5/24...but i want to help him do anything he can to help him…
Tongue Flap
My father in law was diagnosed with Head/Neck cancer on December 1. We finally got in to see the oral surgeon on January 9 with 1st surgery on January 25. It was a very long surgery and they could not use the bone in his leg or shoulder to replace the bone in his jaw line, so they had to go with a metal plate. Here we are…
Got my PEG tube out and my colconscopy finally
Good news they only found one small polyp and should be ok. I'm so happy for a change and thanks for all the moral support from everybody on this site. You truely are my brothers and sisters and thanks so much.
Cancer spread to lymph nodes in armpit
Anyone experienced this?
Back To Work
When did you guys find that you were able to return to work? I am 14 weeks post treatment with a clear PET and CT scan - Yay! My energy is good, but if I have a couple of days of "normal" activity I end up in bed for the day recovering. I am walking 30 minutes a day and doing yoga twice a week but if I do an 8 hour day it…
12 months since starting treatment
Today I celebrated 12 months since I started treatment. As my daughter said today "A year ago, Dad, you had cancer... Now you don't." God willing, she is right and although I've had ups and downs, not once do I regret not having chemo and radiation, or the rotten after effects that seemed to linger on and on. Last week I…
Radionecrossis of C1
I got the results back from my CT and I have radionecrossis of the C1 vertebrae. My ENT says there is a break in the front, away from the spinal cord and there is probably some infection around it. He seems to be a little bit of a loss of what to do. I am going to see a neurologist, but I think I'm going to my ENT that…
Phlem phlem and yucky taste!
Hi All... Here I am 4weeks out of radiation for mandible cancer ! I am so grateful to be over with it , if I could eat I would go out and have a nice dinner to celebrate but as a lot of you have experienced during and after radiation , food has lost its great appeal so celebrating that way has no thrill four me. Here is my…
Face Mask
Talk about claustrophobic lol I got fitted for the mask today. Told them clear me nasal and mouth passage and eyes. What a horrible feeling. Next week we start rad and I think following week is chemo. Gearing up for the long haul. Just purchased 6 cases Boost VHC plus, a Ninja blender etc.... Doc doesnt think Taxol/Carbo…
PET Scan Frustration
Hi Everyone, I've only posted a few times. My husband was dx with BOT HPV+ SCC, Stage 3 in September 2017. Finished 35 rads and 6 cisplatin on 4 Dec. PET was 7 Mar. Met with Medical oncologist on 8 Mar and she said it all looks good. However, they just put the CT results in our online medical records and there is something…
Radiation after surgery- tongue cancer
Hi everyone, My mom was diagnosed with T2N1MZ tongue cancer on 29 janauary! It's been 5 weeks since surgery and she seems to heal well. radiation starts tomorrow. Could you please help me with what you expect ? Doctors say the only side effect would be ulcers. However, the internet says a different story all together.…
Headaches after Oral cancer treatment
Hi, My brother has been treated for oral cancer using surgery, radiation, and chemotherapy. He has had a rough time of it for sure. His treatments ended about six months ago, but he is experiencing headaches that do not seem to respond to drugs or anything else. Is there any wisdom from members on how to help him manage…
10 weeks post and still can’t eat
It has Been ten weeks since treatments were Completed Larynx T3.Still a lot of bloody mucus and what I call tree bark(scabs) still can’t eat.was just wondering when anybody startrd to eat.Doctor says totally normal but I wonder
Ideas for food to eat? (
So here I am 7 months post treatment and still no taste. Still only pure salt pure sugar and strangely cranberries. (Literally the only thing that tastes normal) I am honestly losing hope that I will ever get my taste back. It is very depressing. Anyhow, I'm about to get my throat dilated for the 2nd time and it should…
HPV+ Tonsil cancer- Histopathology report
Hi all I hope and pray that all of you fighting cancer are doing well and will soon be healthier than ever before. I have recently been diagnosed with tonsil cancer. My recent report contains the following information. I am worried. Anybody can help me explain how serious the findings are. My next visit to my doctor is 5…
Port for Chemo
Just got back from the doctors. When they do chemo they want to install a port in my chest. Is this really necessary, I've never had chemo but what other ways is it administered?? WE are also trying a different chemo, I cant use the regular one cisplatun = hearing loss, I already have poor hearing, The other Erbitux that…
Radical Neck Dissection
My husband will undergo a radical neck dissection in a couple days. He completeted 35 radiation treatments with 5 sessions of chemo (Cisplatin) in mid October, 2017. He was diagnosed with P16+ cancer with no site of origin found, stage III. He underwent removal of tonsils and 38 other biopsies from base of nasal cavity to…
Headaches
My husband was diagnosed with squamous cell carcinoma base of the tongue. It was found when we noticed lymph nodes on each side of his neck contained lumps. After having the PET scan the areas of concern were the tonsils and base of tongue. A tonsillectomy was performed in Dec. 2017 which revealed no cancer in the tonsils.…
Pet Scan
I somehow mistakingly posted my long problem under the heading "Pet scan was good except for one thing". by Dean54. Would everyone please read my story and give me some advice?
Throat Cancer
Hello All: Looking for some help. My husband 74 diagnosed stage 4 squamous cell carcinoma three years ago. 40 radiation treatments and chem recurrence in March of 2017. Radical tonsilectomy and neck dissection. Healed now but oh my goodness trouble all over the place. Easting becomes more and more of a challenge and dry…
Thyroid Function
Just a reminder to all those that are in the early recovery phase to watch for signs of thyroid malfunction. My husband is less than a year out from the end of treatment. At his Cancer Center the protocol is to test thyroid and do chest films 5 months from now unless you have symptoms. He did not feel he was symptomatic…
Laryngeal cancer
Hello everyone, my dad has laryngeal cancer and he just started radiation and chemo. About a month ago he started having headaches and one day his lymph nodes swoll up very badly. Now he has extreme headaches. The doctor prescribed him morphine and another doctor prescribed him hycet. Neither seems to get rid of the pain…
Cost of CT Scans & using 3rd party service providers
In this forum we don't seem to discuss the cost of head and neck cancer treatment very often, but it can certainly be a major aspect of the entire diagnosis, treatment and recovery process. I've been self-employed for about 16-years, so I have to maintain my own health insurance. Because I've always been in very good…

Head and Neck Cancer

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