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Proton Therapy at Scripps
Hello all, I hope to start treatment on January 30th for tonsil and base of tongue HPV+ cancer. I had an enlarged left tonsil which turned out to be cancer and had a tonsillectomy in November. Since then it's been non-stop doctors and trying to decide on the best course of treatment. I'm 54 and in generally good health,…
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Keytruda
I just had another CT scan last Wednesday. The results are mixed. The lung mets are responding and shrinking but the bone mets have increased in size a little. They also found a fracture in my pelvis due to the mets. So this week I start Keytruda. My oncologist is very positive about the immunotherapy route. Kind of…
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Struggling Caretaker
I have to admit I have taken so much from this blog without setting up an account. I cannot tell you the number of times I was awake all night reading the entries on this site Looking for hope and strength. My husband, 52, was diagnosed with cancer in July. I am still confused with the descriptions you are all so…
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Doctors
Hi everyone. It's coming up on a year since my surgery. (tumor removal tongue and 42 lymph nodes removed). I consider myself fortunate in that no further treatment was necessary. Since then, I have moved and had to get a new surgeon-head and neck doctor. I had my first follow-up with the original doctor who did the…
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Treatment begins tomorrow
Was diagnosed with Stage II SCC of the lateral tongue with perineural involvement on Oct 26th. I had a partial glossectomy and right neck dissection on Nov 28. I healed well and have been eating everything I know I will miss!! I begin my first Cisplatin treatment tomorrow and radiation begins on Wed. I am feeling nervous,…
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Just dropping by to say hello to all my fellow warriors
Hello. Wow, it's been awhile since I have stopped by. I miss you all and just wanted to share that this month marks my 5 year clean anniversary. Like many, I have my share of side affects, but at the end of the day I get to lie down and go to sleep after spending the day with those I love. I'm still in Alaska and this is…
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Stage III Oral Cancer under Tongue/Tumor growth under Chin
Needing Support I'am a "Newbie" here and would like to know if there are Long Term Surviors of this Cancer. I was told I had a 30% of making it. This is my 3rd time to "ride this Monster." Will endure 8 weeks of Radiaition Therapy (5 Days of Week) plus Chemo once a week for 8 weeks (Cisplatin, IV Port). Could not remove my…
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Need advice and help about medication
My husband had bot surgery with infiltration into lymph node surgery on Dec 23. Sometimes, he can get pills down, sometimes he can't. Sometimes he can get liquid down, sometimes he can't and he vomits. We have his first oncology appt on January 23rd. Today his primary and the ent who did the surgery recommended a peg tube.…
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Pre ENT visit
Hello! I am returning to this site after aprox 2 yrs. as I have a new concern that I thought was remedied! 2 yrs. ago my Doc referred me to an ENT as I had a blockage on one side of my nasal passage! History of allergies and previous smoker! I quit 11 yrs ago. The ENT diagnosed me with a turbinate dysfunction. He stated…
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ringing the bell
#33 of 33 radiations and #7 of 7 chemos completed. Initial diagnosis was made by my son, a resident in Emergency Medicine, investigating a cough. Time from initial diagnosis to final treatment was 9 weeks. Stage III N0 M0 HPV on my right tonsil. I had read a variety of horror stories about Kaiser-Permanete. I experienced…
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Sweating when I eat
Who else has this issue? After my second neck dissection, i sweat profusely from my head when I eat. Food doesn't have to be hot, either. Is there an end in sight for this?
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Happy New Year
Just wanted to wish everyone a very Happy New Year! I hope 2017 brings improved health and better outcomes for everyone. All you survivors are true jedi warriors, and a total inspiration. Keep fighting the good fight! With prayers for all of you.