Head and Neck Cancer
Discussion List
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checking in with a few questions
Hi everyone! I am doing so much better than I was!! Thank God! I do have a couple of questions tho. I have terrible xerostomia and my oncologist just doesnt seem to take serious. Anyone ever have a prescription that helped? It just makes me feel that now that I am out of txs and hes gotten paid BIG BUCKS, that hes now done…
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Mom not doing well
My mom is not doing well. Goes to retina specialist tomorrow to see if the radiation is working on the eye tumor. She is starting to loose weight a few pounds at a time. Losing appetite, coughing a lot and spitting up lots of blood and cancer tissue. The bad thing about going through head and neck cancer with my husband is…
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Cancer recurrence
My mom has cancer again. About 9 months ago, she was diagnosed with mouth cancer. She had been complaining for years about a rough, very painful red spot on her gums. Finally it grew white spots and she was diagnosed with Cancer. She had surgery and they removed half of her upper jaw, gum, nasal cavity and part of her…
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Need to make a decsion
I will be 4 years post treatment this November. My last CT/PET was over a year ago. Medicare will only pay for 3 PET scans and I have had my limit. Here is my dilemma. My rad onc does not think it is necessary to have any further scans, but my ENT would like to see me continue with scans up to the 5 year mark. They are in…
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MEC salivary gland cancer (submandibular), newly diagnosed
Hi! I am thyroid cancer survivor and now being Dx with salivary gland cancer (mec of submandibular gland). This may have been caused by radioactive iodine treatment for thyroid cancer... So one was done the other came in. Im so sad! I just had two wonderful babies and i cant enjoy them as i have to concentrate on all these…
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Lymphedema - Self Massage
I am new to this site and just a little about me. I was diagnosed with SCC baase of tounge and tonsil on Jan 12 of this year. My story is very similar to alot of you all. 6 weeks of IMRT Therapy and I have experienced most of the side effects that you all discussed for the thickening phlegm, trouble swallowing, xerestoma…
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From 35 to 13
I have made it from 35 to 13 radiation treatments left. 3 erbitux remaining. I can still eat some. I have mucositis, It is difficult to swallow. I do have a lot of mucus. But I do have to say, between the radiation tech's and this sites encouragement I am happy to say I am starting to regain hope again. Can't leave out…
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Hi Y'all
Hi to everyone young and old, I just wanted to let you know I'm still alive and doing extremely well, Dx 2009 Right tonsil cancer, 3 chemo cisplatin and 35 rads. All my tastebuds have now returned, chocolate was the last one to get and saliva is about 70%, I chew sugar free gum everyday I think this helped my sweet buds…
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Chemo Question
Hello all, I am curious about what my Doctor said. Just wanting your opinions on this. I asked him how many chemo treatments I would be having with this new cancer they discovered and he got quiet and then said * When it stops working* but you may need breaks or we may have to try something new later on if it does quit…
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Ear ringing help please!
Hi everyone my name is Roger and I have head and neck cancer. I have had 35 rounds of radiation and 3 rounds of chemo with cisplatin. My last treatment of radiation was April 27, 2015 my last chemo was a week before that. The Drs. Don't see anything on my right tonsil or the roof of my mouth which is great but I have to…
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happy
I'm happy to say I am going from strength to strength since having my blocked bowel sorted. I have been working in the house sorting out cupboards, getting rid of clothes that are too big for me now. Taken about 10 bags of books bits and clothes to cancer charity shop. Today I've been clearing out the shed and back of shed…
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2 year cancer-versary today!
Two years ago today, I finished my treatment and was deemed Cancer free. Two years! I can't believe it has been that long, but sometimes it feels like just yesterday. I owe each of you a huge THANK YOU for the encouragement, love and support shown to me when I was at my lowest points. You all hold a very special place in…
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Happy Fathers Day
Happy Father's Day to all the dads in here! Hope you feel the love and support of your family today. praying for healing and good health for all of you today.
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Mucus and Phlem
I have had 4 weeks of radiation and Erbitux so far. The past few days I've been drowning in mucus and phlem. I tried to call the Dr this weekend, no reply. Does anyone now what is going on? Does anyone know any tricks? I was up all night back and forth to the bathroom trying to clear my throught. I feel like I am literaly…
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CSN family members meet up in TN
Grandmax4 and I were in TN at the same time and made time in our day to meet each other. It was such a great feeling to finally meet one of our family members in person. I hope this happens for all of us, that we all get the chance to at least meet one CSN family member in person. God bless, dj
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1 yr still fighting
Hello Hello, it has been awhile since last posting. Must admit the last year is one I would rather not remember. As you see I may look a bit different in the pic. It is funny how bad one can feel yet everyone around you tells you how good u look. I guess my new catagory is survivor at least so far. The after effects of…
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eating problem...Help!
First let Me say I have finished My radiation and chemo treatments 4 weeks ago....My CAT scan has come back clean and now waiting till August to take My PET scan... I do have a problem....I have a feeding tube and they wont remove it till I take in 80% My calories by mouth...right now I am doing 100% of My intake by My…
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Parotid tumor--pity party/venting, sorry.
I give up. I have had a lump under my ear for at least 28 years which no one has ever been impressed by. Was told by my dentist is was probably scar tissue after my wisdom tooth on that side was removed. It has not changed or bothered me. I was diagnosed with anal cancer stage 3b in 03/14 and that is in remission, for now…
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Is anyone still out there ? - NPC
Come on, between us, we can find a way to eliminate or at least counter these side effects.
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Carboplatin and Taxol w or w/out Erbitux
Hello everyone. It's great to have all of you to learn from and get inspired by. So I was diagnosed with NPC end of 2014 and finished treatment Dec 31 2014 with radiotherapy and cisplatin. Unfortunately I had a I biopsy done last Friday due to a liver lesion. I was told likely mets. I may have bone mets as well but not…
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Squamous cell carcinoma of right tonsil
Found out that I have this just a few weeks ago. Still in the stages of setting things up as far as surgery and such. Said that I am a P16 positive. Apparantly that is a good thing according to them. Found a mass at the base of my tongue and apparrantly towards the right tonsil. Also a theyroid gland is a bit enlarged in…
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NED!
My husband's had his first PET scan on the 2cnd of this month. NED!!! We were so happy and relieved. The rad onc says that it's the only one he'll have. He said that he'll go in every 3 months for a scope for 2 years, and then every 6 months from 3-5 years. As happy as this news was, the side effects from everything are…
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New normal
hi all! Dima continues to heal he feels better in ever way and we are enjoying our new normal as a family. I hate the idea of a"new normal" the 1st time I read about it. Now I feel thankful for it yes, somethings suck but there are pluses too. our new normal includes planning a super heroes, princesses and rainbows party…
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From hope to despair, Erbitux
I have HPV p16 positive tonsilar cancer with 2 positives nodes. I am 3 weeks into radiation, minor sore throat. Ebitux got delayed 1 week due to insurance. Erbitux was my Dr's second choice. He wanted cisplatin. I was not willing to take the risks of cisplatin. In the two weeks starting Erbitux I have gone from hope to…
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Mom sailing along no Valium
Wanted to let you know those prayers are working. Mom now gets he Rads without any meds. She is tired all the time but the mask anxiety is gone. She even allowed a Hospice nurse to come and explain Hospice care to her. Previously she didn't even want that name mentioned. She was under the belief that they gave you enough…
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Debbie Downer
One of these days I hope to have something good to post. Am back in hospital again. Suspect c diff Angry as was here six weeks ago and they kept throwing antibiotics at me. Left with two or three and couldn't tolerate any. Antibiotics cause c diff. Unable to do water or ensure so little choice than to come back this is…
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Recovering and misunderstood
10 months out from chemo and radiation. On the outside everything looks good, but inside things are a mess. I find that friends, family, my therapist all expect more out of me, they just dont get it. Having trouble finding a good primary care physician and dentist. I am alittle down right now.
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RIG tube
Im gonna be highly dependent on my rig for a while, just wondering if anyone has any ideas of the types of stuff i can put through the tube. I dont think 2000 calories will be enough for me
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Questions about removal of lymph nodes
Last June my mom was diagnosed with oral cancer in her upper left jaw. She was told by her first doctor to wait it out and watch it grow. Bad idea as by the time she had surgery in October, it had grown by 140%. It was successfully removed, they did a left neck dissection and she was declared thankfully cancer free. 8…
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Erbitux rash
I had my first loading dose of Erbitux last tuesday, by saturday morning I was covered including my scalp in the acne type rash. So much on my face seems like I can't even move it. My regimend is going to be 35 radiation treatments with concurrent Erbitux. Personaly, to me, Erbitux is cutaneous toxic. Almost not worth it.…