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Head and Neck Cancer

Archives for February 2015

has anyone else experienced this??
While talking to my radiation doctor about being fitted for my maks ( I have two one for rad and one for chemo) I found out I will be getting radiation treatments on both sides of my neck even though I only had cancer on the right side of my neck. He said its just precautionary....nothing to worry about. Nothing to worry…
Update: Radiation Burn NO. Likely Shingles!
Original Post The other day, I noticed a good size blister that formed along the side of my neck where I received radiation treatment. It has drained. Now today, I'm seeing splotches of what looks like smaller blisters forming in the same area. No other place but on the side of my neck. No itching. Now this? I'm 6 months…
Helloooooooooooo
Boy, I am so tired! Hi Warriors! It is meeeeee! I have been volunteering at a Senior Center, and afraid I am fitting right in with this group! Eeeek! I present my current situation, and would like any input you may have. I had a full work up of blood work. I went to a neurologist, and have peripheral neuropathy in my feet.…
New here
Hello everyone, This is my first post.. Not all that happy about being here, but this is where I am...This is my story:My Husband of 20yrs Yesterday, Yes Happy Anniversary to me:) whom is 52 yrs old has stage IV, base of tongue cancer. Diagnosed 8/14. Has had 35 rounds of Rads, and 3 LOOOOng sessions of Chemo at Sloan..No…
Painkiller Comparison Chart From Weakest to Strongest
We might want to add this to the Superthread. Painkiller Comparison Chart From Weakest to Strongest http://www.vaughns-1-pagers.com/medicine/painkiller-comparison.htm
need some help....
I was just diagnosed with stage 3 neck cancer. It bagan in My left tonsil then moved to two lymph nodes in my neck. I had surgery to remove the tonsil and the two lymph node. I had My firts chemo treamment yesterday (2/26) and I am going to have My first chemo treatment Monday (3/2). I am having chemo one day a week and…
Anyone have Genzar?
Doc's talking about giving me a blast of Genzar prior to my 28 day clean-out which is in anticipaiton of the PD-1 Trial. Anyone have the drug before and what did you go thorugh? Thanks, Joe
just wondering about tounge flap
Hey gang just being curious if anyone else had the tounge flap to replace tounge?They took part of my thigh to rebuild what they had to remove.Everything is going well at least that is what my doctor.Says the swelling is way down and healing better then he thought at this time which has been a year now.Anyway have been…
Good News
22 Months post treatment. NED! I saw my Medical Oncologist and Speech Pathologist and was told to book an appointment for 1 YEAR! I see my Rad Onc and ENT in May and if all goes well, next appointment will be November. I'm basically at the 2 year mark (April 24th is the official anniversary) and that, as we know, is the…
Radiation is OVER
Just finished my last radiation and I am so happ to be done with that! Now to cook a few weeks and see the results. I am a bit apprehensive tho of this next part.
Still around... just saying hello
Hope you're all alright. Sending love and good health to all of us with this devastating illness.... I hope we all become well and strong soon xx x x Estelle x x x
Recovery Time? What was your experience?
I'm curious to know how long it took for others on the forum to recover from treatment. For me, it's almost 6 months. I'm still experiencing pain in my mouth, fatigue, lack of saliva, etc. I'm a little discouraged because I was expecting a faster recovery. I know everyone is different but I'd like to hear about your…
Radiation Injury Help?
I'm nearly 6 months post treatment and have soreness along the untreated side of my tongue and some areas of the treated side. Medical Onc says it's due to radiation damage. Anyone else encounter anything like this? I'm not sure what to make of it or how long before it's better. I'm assuming if it's nerve damage, it will…
Post tx not eating/PEG
Today is 7 days post treatment for my DH. His last treatment was 2/16. At his checkup on 2/20, he was down 4.5 lbs. Over the weekend, he has not been using his PEG. I think over the last 8 days or so he might have had total 12 cans of isosource. The most in one day has been 3. Each one is 375 cal. Home health came today to…
What where your signs and symptoms for tongue cancer?
Hello all, ive come to this site seeking for information. For almost 2 months I have been feeling with pain in my mouth, it all started after a dental visit on January 7th. After some feelings my mouth has been in pain till this day. At first it was just pain In the areas worked on then started to have pain in all my…
Seeking feedback from anyone who has undergone jaw replacement
I've already communicated with some really wonderful people on this site & hope to connect with more. It was suggested I open up another Forum Topic to engage more members. I have suffered from jaw issues as my jaw was radiated when I was 17. I'm now 54 & as time goes by the joy of a radiated jaw does not get any better.…
What I did with my mask
I hated that mask at least when I hate to wear it. Now, not so bad since I am past all that ( or hope I am ). I wanted to share what I did with it. I was born in Texas but live in Louisiana so I combined the two and made a western Mardi Gras lady. Hope it can help some of you smile. Prayers and hugs .. Kritter
Turkey neck?
I just was looking at ny neck and it seems that on each side I have these swollen (not hard) lumps. Could this be the beinning of the dreaded turkey neck?? If so does it eventually go away?? They seem to be fluid.
Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
Saying hello
Doing much better, still have issues with my eyes. Being runny and blurred vision. And still losing weight despite eating, down to 112 now. Have the peg but not using it, eating on my own. Seeing Doc on the 10th about getting it out. I think I will do better once it is out. Getting scans in April to see if all clear, but…
Wolfen and phrannie met today...
Karen came into Mesa to meet us today.....what a great time! Spent most the afternoon, and then went to dinner....what wonderful friends we meet here....we talked and talked, like we'd known one another forever. This was a fun day!! p
Finished this week!
My hubby rang the bell Monday, one day early... Due to snow On Tuesday. So happy to be done with treatment. Y'all were not kidding- the last 2 weeks were rough. Today is his birthday, so we are definitely celebrating putting treatment behind us and getting to the healing. He has a checkup today with the chemo doc. I…
Going for changes in my care
So yesterday was supposed to be the last of 6 cisplatin treaatments. My dr and I decided to cancel it because I am NOT tolerating them well. Any how thanks be to God for that. Also as you know I have started to use my peg and what a debaucle that has also been. Cant keep the Boost down no matter how I try so as of now I am…
Biopsy positive
Unfortunately the biopsy of my mom's lymph node was positive for cancer that spread from her lung. We are waiting for an appointment with an oncologist to get options. Read the PET report which also noted extreme uptake in a vertebrae. I am kind of numb right now. Not even a year since I lost Jim to this crap but now I…
Choking
Hello! My mother is a 2 time cancer survivor of nasopharyngeal cancer. She is and always has been a non-smoker and very healthy. She had radiation for both treatments, first in 1997 and then again in 2000. She suffers from severely dry mouth, hearing loss, tooth loss (recently received permanent false teeth on the lower…
Hospice
Made the decision to go on hospice as I'm too weak to do more chemo and it might add only a few months. Pain is increasing and I want that under control. I have been thinking about this for the past 2 months and I figured it is time to make that next step. Its been hell for 3+ years, no reason to prolong the agony. Doctor…
laryngoscopy.????
has anyone else had to do this after treatment? It was just sprung on me and no way with my anxiety could I do that without being knocked out. They only told me when they called as a reminder for my pet scan which scares the hell out of me anyway. Is it common? Necessary? Other options?
New pic
I got fed up with seeing my face on my site so posted a pic of two of my great grand children Jasmyn and Harrison, she's three and baby's 6 months
Burning Mouth Syndrome: Radiation & Chemo
Hello all... I'm searching for the cause of the burning sensation on my tongue. I've read that "Burning Mouth Syndrome" can be caused by a variety of reasons including a complication of radiation and chemotherapy and thyroid issues. Has anyone experienced "Burning Mouth Syndrome" after receiving radiation and…
Ok, you guys...
This will be my last shot at any internet access for a couple of weeks. Know that I'm thinking about you all, even if you don't hear from me. If I can figure out a way to get on here while on vacation, I WILL do it!!! You all are in my thoughts....that's just how it is with people you care about...right? Greg and I are…

Head and Neck Cancer

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