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Head and Neck Cancer

Archives for February 2014

2 year anniversary
today is my 2 yr anniversary for laryngectomy surgery to get rid of recurrence. just 3 little more years to go before i can use the word CURED!!! yay me. congrats to those who have already reached that mark and those like me, hang it there, it will be here for us before we know it. yiiiippppppeeee for all of us!! God bless…
Lung scan
Saw the prostate oncologist today at Penn State Hershey Cancer Institute. Things have not changed much, I have something called persistent prostatitis and am on anti biotics for it but he explained that it is probably always inflamed and will need to ease the inflamation with another prostate drug. So itlooks like I will…
NED! First 3 month post check-up
Well, we had good news today - PET results - wonderful with no hot spots. My husband still has some lumpy lymph nodes but they continue to shrink. For the newbies on this site - it is seven months since he was diagnosed with HPV tonsil cancer and 3 lymph node invovlement. Three cisplatin treatments and seven weeks of…
experimentale drug
Hi Went today to the doctors to get my game plan for ratiation treatment.I go back Monday to be fitted for my hockey mask and a week later will start them.5 days a week for 6-7 weeks at 10min per session.I won't need chemo but was asked if I wanted to try thier experimental drug.Will take first dose a week before rads…
NPC second round
My MRI shows that NPC is back after 2 years from treatment. I have an appoint for PET on next Tuesday. Any suggestions, comments and thought for the recurrence. Regards, Neo
NPC post treatment rhinoscopy
ENT put a camera up my nose to check the tumor. He said it is cleared...nothing out of the ordinary. The tumor is gone!!! Part two will be the PET scan to confirm the objective finding. PM
a new doctor, MO
i've been a member here for about 2 years. i recall many posts from you guys speaking of your 3 or 4 month check ups with your ent, mo or ro and I had no idea what the mo and ro meant, i just knew i didn't have one of them. you also spoke of being poked, prodded and scoped by the ent at every 3 month check up. again, i…
New to the forum
Hello, I'm new to the forum and have been reading all the threads. I was just diagnosed with squamous cell cancer in my neck. The primary cannot be found, but I have had 9 lymph nodes removed on the right side of my neck with 2 of them cancerous. Right now I'm starting to go stir crazy waiting to see the oncologists on…
birthday present
hello to all on february 24, 2014 i received the best birthday gift..my dad's 2 year petscan was all good with even an improvment in the inflamation in his esophagus! we ended chemo n rad in 10-11..we have had a petscan in 2012 and this one would have been 2013 (we were 2 months behind) i am so happy to get to the two year…
green mucous for 1 month
Hi everyone. I need help and advice. Ever since I got the cold/flu a month ago, my nose has been producing greenish thick discharge. It clogs up my nose sometimes. I have to constantly blow it out and it came back in an hour. I've been using the NeilMed and it clears the nose but came back in an hour. I've been out of…
Offloading thoughts
In my "about me" I wrote that my Dad was diagnosed with pancreatic cancer one week prior to my being diagnosed with squamous cell carcinoma. Dad did very well, was on hospice the whole time. I made it through surgery, he was doing well, still at home. When I began radiation and the effects started to hit, I could see him…
peg tube stitches
Those of you who have peg tubes..did you get stitches at first? they stitched my husbands actual tube to his stomach and it is hanging downward and driving him crazy..it keeps getting caught in his pants..they told us it would be two weeks before they take them out..is that the right thing? the dr said one thing and the…
Paendoscopy and dilation
My throat dilation didn't work but they will try again. The good news is it's not throat cancer I did have it on my mind as a friend of mine had cancer that blocked her throat. The surgeon said it is blocked with scar tissue. better luck next time and back to the ensures and PEG tube.
Save the teeth!
Three and a half years out from treatment, I had a dental crown fail catastrophically. Turns out it was completely decayed through from beneath, and the tooth itself was shattered. After numerous discussions with my oncology team, dentist, endodontist, and maxillofacial surgeon with special expertise in…
On day 9 of a common cold - on the down slope
Finished TX June 12th, 2012. 35 rads 6 cisplatin for SCC stage IV tumor in the throat near the epiglottis and had invaded a few lymph nodes. I was always wondering if my body would react differently to a cold or flu (haven't had flu in 25 years) post treatment. Well, a cold feels the same as it always did but it sure did…
Five to Thrive
I just received an e-mail about 'Cutting Edge Cancer Research.' I have seen the doctor at a conference with my favorite chef, Rebecca Katz. Short notice: Tonight, Tues. Feb 25 4pm (PST) 7pm (EST). www.w4cs.com Five to Thrive has been very informative to me during this journey.
During radition
Hi has anyone taken vitimins during there radition? Have heard some do help with everything....
Nasal problems
I had been having problems with breathing and sinus through my noise for years. Everything would be aright until I went to bed and then about 1am I would wake up because my noise was plugged up and I could not breathe. For someone with dry mouth you all know how that is. A few weeks ago my daughter told me about trying…
Follow-up/Petscan
Hi all, I'm writing a little follow-up to what I posted a couple weeks ago. We had been 'lurking' here for over 3 years and finally needed to chime- in. Dale had his petscan yesterday and the Doc called late last night to say "ALL CLEAN!!" There was a very small lymph node or salivatory gland under his chin line. They…
Mojo needed for my Brother
Hello everyone ! My older Brother recently had a FNB of a couple of lymph nodes in his neck. Came back (no cancer cells detected). Which was fabulous ! But these have been swollen for a long time. He doctors through the V.A. here in St. Cloud. He's had an MRI of the brain, as there was blood seen on a previous CT. That all…
Fluid in pleural space and PE's
Has anyone developed PE's or fluid in lung or pleural space as a result of long term chemo? I developed 3 PE's around the first of the year, and dissolved by taking Xarelto. Over the last 3 weeks I had 1500 ML drained, and had a Pleur X drain inserted last Thursday. 2000 ML was drained then, followed by 500 ML on Saturday…
New to board: Coping with Dad's diagnosis
Hi All, I have spent the last few hours reading through everything I could on this site. What a great supportive group you are. My dad was diagnosed with SCC on Labor Day of this past summer. He had a large tumor on the right side of his neck we were told from a lymph node. He did not have the cancer anywhere else and it…
just checking
Just checking in. Waiting in hospital now for brain surgery. Thought it would be very early this morning. Then told 5:30pm today. Now moved up to 3:30pm. Good. Sooner better. Procedure to drain and remove part of fliud filled cyst behind L ear, not deep, not close to brain. About 1 hour surgery. Should provide much needed…
How to overcome Radiation Mask fear? or unable to breath?
Hi everyone, its me again. I've just completed my first chemo today but was unable to get my first radiation because either I had gain and put on 3kgs or I just have this feeling and fear that I am unable to breath. Therefore would greatlly appreciate some advice on "how to lose 3kgs" fast at the head and neck within 3…
PEG replacement
I go next Monday to get my PEG tube replaced, this will be the first time and the doctor said he will need to pull it out. I told him he better plan to tie my arms down so I don’t knock him out or start running as fast as he can once he puts me in that much pain; so he decided to do my 5 year colonoscopy and while I am…
treach tube and speach
Hi everyone...just curious if anyone else had gone though speach class? I started alittle bit while in rehab and going to try to go more now that I'm and hopefully during rad treatment.But seem I sound alittle hollow even with treach capped off.Am having trouble with some letters but want to start to make my tounge as…
Dads first pet scan 8 weeks after treatment with hot spots....
My dad had his first pet scan this week 8 weeks post treatment... We met with oncologist at mayo and he said still a spot in the side of the last tumor, a new small one on the other side of the tongue and a new one in the left lung...... What?! How can this be? He just went through horrible brutal treatment and now there…
Piggybacking on JackFlash22's thread
My ENT wants to do a dilation and I was wondering if someone could tell me what's involved. I can't imagine that sticking a tube down my throat can be anywhere near comfortable. Thanks for some info. Joe
Not So Great News Turned Great!!!
The results of the ultra sound and scan have turned up clear!! Sooo happy!!! Now we need to stay this way! Peg tube will come out soon but port will stay in for now. I am praying for those who continue to struggle and fight. Cindy
Just checking in
As my Dad says when he calls, "just checking". I'm still at St. Joseph's medical center.... since Tuesday night. Had bone scan done. Needle biopsy of right hip. Consult with Rad oncologist. Two rads to large lesion in left side of brain. Feel absolutely weak all afternoons. Don't even want to open eyes. And dizzy. Better…

Head and Neck Cancer

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