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Travel
Sitting in sky harbor / Phoenix taking a "red eye" to hot-lanta then to Aruba. Meeting my kiddos there can't wait to see the hats my granddaughter picked out for me to wear ... All I'm told is they are big and colorful. Life is good today...
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Got my fiducials done for Cyber Knife - 24Karat Gold!
Wish I could do a "reply all" to the post I did last week about Cyber Knife http://csn.cancer.org/node/244921. (Ick I hate that they have "node" in their URL/web address). I tried to reach out to each and everyone of you that sent good thoughts my way but I didn't think this was an option on this site. Apologize if I…
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newby w/ undifferentiated sarcoma of the tongue
Hello, as the subject says... I'm new here. I'm a 24 year old white male with sarcoma of the tongue. They're not sure what kind. I've gone thru chemotherapy (5 - three week cycles) and radiation (35 treatments) with less than spectacular results and now it's come time for surgery. I'll be posting about my recovery via…
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Parotid Gland Cancer Stage 4-2nd opinion
Hi, My husband has been diagnosed with Parotid Gland Cancer that they are saying it has spread to his lungs. We are looking for 3rd opinion because our Kaiser Doc and 2nd opinion USC Dr. Sinha are saying different things. We are waiting for a biopsy of the lungs to make sure it has indeed spread or is a different cancer or…
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Is it shrinking tumor?
My husband was diagnosed NPCA stage 3. After 4 days of radiation he spit out bloody mucus with some sort of flesh on it. I dont know what to do because blood came out from his nose for about five minutes. Anyone have experience this? Im so nervous about his condition. Thanks, Mitch16
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Happy update: Cancer free + Wedding day success
I finished my treatment for cancer in the left parotid gland and some lymph nodes on 06/22/12. The first week and a half after was horrible. But after that, each day was better. I was so scared that I would be able to make it to my wedding day. I was able to have a wonderful wedding on August 11, 2012!!! My health was…
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9 weeks out tomorrow
I will be 9weeks post rads tomorrow and 11 weeks post erbitux. I was feeling pretty good, of course I'd tire easily and my throat is still sore. No peg anymore so eating is all done by mouth. All along I've noticed a little cough and assumed it was all part of the healing. Then 2 days ago I started feeling really achy,…
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Buzz has lost his battle
Buzz passed away August 19, at home. I was at his side. His tongue cancer recurred in May and despite palliative chemo, the cancer still grew. He was placed on Hospice a month ago. I want to thank everyone on the forum who helped me through the difficult times during his treatment and illnesses. God bless you all. Karen
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Mets??
I finished my second radiation 4 months ago for recurrence nasal and orbital cancer. Started having fluid around the right lung..plueral effusion. They drained me and 2 weeks later the effusion was back in my lungs. They did an X ray..it was fine. Then they did a ct which shows nodular lesions and asseliates. Today they…
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I am surprised at how long I have been off work!
I had my tonsil surgery on May 30, radical neck disection at the same time. i figured I would be back to work the last of Aug., instead I am just on my 17th rad. I still have 16 more rads and 1, 6 hour chemo. From what I have heard it will still be good while before anyone returns to work even after all treatments stop.
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Putting things in perspective
Although it is not my habit to post a lot about my follow-up, I had my six month post rads exam yesterday. Thusfar, all is negative. I was reflecting on this on the long drive home from St Louis, and again the obvious occured to me. For those who dont know my background, I was treated with radiation for BOT cancer in 1998,…
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A Loved One ~ Melissa Gail
Another side of me....the Father I just wanted to share with you a very special girl of mine.... My lovely daughter Melissa Gail... Hard to believe an old crusty Marine could have part in the making of such a beautiful person.... Melissa Gail She's my love.... ~John
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5 Rads Down...
Hello my fellow warriors, I am now through the first 'week' of radiation and all I can say is, WOW. All of you that have come THIS far, you are my heros and you will give me strength to make it through the next 5 weeks, cause there is NOTHING fun about this at all. Knowing that it really only gets worse too, does not make…
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New battle plan.. Need some advice
Ladies and gentleman....... Need some advice, after a profound response to one of my post I realized he was exactly right.... "the fight is not against the cancer it's against the treatment..... So far my biggest problem with the "chemo cocktail" is my ability to stay fueled up ...missed several days of work because I was…
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I Need Your Opinions
I'll try to make this short. My regular ENT found my tongue tumor and referred me to the best H&N surgeon in the city. He is the only one to use the TORS too so this was a no brainer. Here is the problem with him treating me. As far as a surgeon, he saved my life. Very skilled and takes his time. He did the partial tongue…
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1 week out
Still doing ok, neck burn coming along, got good responses on my Im on Fire Blog. Hopefully another week or two and it may be in my rearview mirror. Eating ok can swallow, I was a No Pegger so all goes via the mouth. Not to bad but for now it feels like a little wad of something just sitting at the base of the thoart,…
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2 WEEK POST RAD CHECK IN
Heres where I'm at: - vision seems to have cleared up - energy level a little better. Made it through a tile buying excursion to home depot without needing a nap when I came home. - lemon sized lymph node is down to size of a pecan. Still a little nervous. - seems to be an increase in watery saliva. Less foamy and I can…
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advice needed
Monday is Jim's CT. We are debating on canceling it and going to our local cancer center for second opinion on the lung cancer. We are now an hour away from the original oncologist and the drive makes Jim super stressed. Jim original decided to not recieve any further treatment (erbatox being the only option) because he…
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PEG QUESTION
I ve been having problems with my PEG, nothing serious just annoying, everything I eat seems to wind up in the tube, is there supposed to be clamp? Seems like that would make a difference.
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Evoxac or salagen for dry mouth?
My doc has prescribed evoxac for dry mouth but i am hesitant to take it becuase of potential dry mouth. I read some old threads here and some folks had good results and some did not. Any opinion on this? Thanks, Sam
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Saliva question
Hello All, I have a question for anyone who can answer. I am 8 weeks out today from my last rad. Up until a few days ago I had very little saliva but my mouth wasn't desert dry like it sometimes is in the morning. A few days ago I started feeling super dry. For instance I couldn't even moisten the seal on an envelope by…
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Infusion port troubles
Here's something that I've not seen posted to these boards. I have an infusion port that developed a clot in my jugular vein. I've been prescribed an inject-able anti coagulant, two self administered shots a day for two weeks and then 6 months on anti coagulant pills. I was not told that clots could be a complication and…
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Round one highlights
First round started off slow as we circled and sized each other up....I got a little over confident and led with my chin..... Was rocked.... Manged to hang on using the old"rope a dope"... Saved by the bell... This cancer dude is a little tougher than I thought..... 2 rounds to go.... Won't lead with my chin again
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PET Scan
It's that time again, how these 3 months fly by, next PET/CT is scheduled for Sept 4th. After a clean PET in March, a clean PET in June, and my persistance all along with ENT, ONCO & RAD Dr's to find out the small spot on the left side of the tongue was scc, but too small for the pet to pick up,and not related to the…
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MAY BE TIME FOR WAR AGAIN
Been gone awhile as things have been going great. Sunday morning woke up with a huge cellulitis in my face, neck and upper chest. 4 days of hardcore antibiotics and was discharged on 10 days of oral antibiotics. While I was in, a CT was ordered to see if any of the infection required draining or resection which it did not,…
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FIRST FOLLOWUP APPT WITH ENT SINCE TREATMENT
Went to see my ENT today for first visit since completing treatment. He said everything looks good, throat and tongue still swollen but improving. Said he didn't see anything abnormal or feel anything so he was happy. Of course so was I. See him again in 3 months. See the radiation oncologist Sept 11th and will have pet…
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Still kickin!!!
Hello everyone! I haven't been on here for a very long time, which is good because that means I've been busy living again! Just a quick refresher: I was diagnosed with Metastatic Squamos Neck Cancer with Occult Primary in my right tonsil which had spread to all of my right lymph nodes and my left tonsil on December 1st,…
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Say a little prayer please
Hi everyone, My cousin is in for surgery this am for lung mets. Her dx is not H/N but to me it's all cancer. Also her Mom, my Fathers sister just finished up rads on her lung tumors. And my brother goes in for a biopsy on a tumor in his chest. I hate, hate, hate, hate cancer and the effects it has on EVERYONES family's.…
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First PET after treatment
I had my first PET scan after treatment yesterday, and got the results today. There are a few "hot spots" where I had radiation, but no sign of cancer. My doctor called it "a clean scan." Thanks again to everyone here. This would have been SO MUCH harder without you guys! I know it's the first scan of many but it's a great…
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What can I eat at this point?
Hi everyone, I need some advice, I've gotten my throat dilated out to 9 mm and the doc said I could start eating soft foods. Problem is he couldn't or wouldn't give me any guidance as to what that would be. Has anybody else been at this point? What would anyone suggest that I start eating. I'm afraid to go too fast too…