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Head and Neck Cancer

Archives for August 2012

CHECKING IN
Hi everybody i'm going on 6 weeks out of treatment and everything is going pretty good swallowing is good and food taste pretty good not everything but most i started back working out very slowly and I've even been working on and off so i can't complain feeding tube was removed last week that wasn't too bad a lot easier…
What to do???grrrrr
Woke up this morning (that's a plus ) neck is swollen a lot where nodes were removed, feels extremely tight, no pain...I'm 10 months out from surgery that removed my epiglottis, should this be going down, not reballooning up?( will deal with this Tuesday) Feel like Macy's Thanksgiving Day Parade balloon(minus) Have a great…
Scans
Beginning to get antsy, a little more than usual this time. Will be having CT scans of my neck and chest at Hershey Medical Center on the 14th of September. Doctor's aid said no pet this time just CT's. Some of you know that in May, whilst hospitalized for a irregular heartbeat (had a quad by-pass in 2008) they found a 4mm…
Just got my not so great MRI results
Cancer is still present in my brain and neck, and the tumor is still in my face. It has shrunk to about half the size it was though. But basically I am terminal? as there are no other treatment options currently available for adenoid cystic carcinoma. :( I did the 30 radiations. i'm only 24, this sucksssss. what do you…
Throat swelling starting to affect my breathing
My throat seems to be more swollen after each rad. sometimes I feel like my breathing is being affected. I have 11 more rads and 1 big chemo. It's hard to believe that this is happening to me, and I wonder if I will ever be back to a normal person with a normal life.
Tonsil Cancer or Lymphoma or Both
(1) Noticed both tonsils slightly inflammed with one on the right bigger than the one on the left like 2 years ago in 2010. (2) Went to see the physician in Feb 2011 and he said its nothing and everything looked normal to him. One tonsil can be bigger than the other and it can just be an ongoing allergy. He prescribed me…
Coping with the ups and downs and all the hurry up and waiting
I am curious how everyone handles the initial diagnosis and then the constant hurry up and waiting. I am having such a hard time with all of this. I guess some would say I'm a control freak, most would agree that I am a bit obsessive compulsive and most who know me would say that if you need something done well call me. So…
Cholesterol/sugar worry with extra calorie diet
Since we are taking extra calories which at times comes as fat or sugar, do we have to worry about cholesterol increase or blood sugar? I am taking so many extra calories but not able to gain any weight. I do have energy. Before treatment my cholesterol and sugar were border line, i am worried that i might increase it more…
Severe Edema...developed lumps on my neck...anybody experience this?
I had a Stage 2 tonsil tumor in 2006 on the left side of my neck and just got radiation....experienced severe post rad pain for 6 to 8 months...had a new Stage 4 tumor in January of this year on the other side of my neck...got radiation/chemo.....now 4 months post treatment and have a large lump on my throat and very…
~Where in the World Are You~ Bumped Up
Thought I'd bump this as there have been many new members the last few months that have not been added or might like to go on the map; Where in the World Are You Best, John
PET SCAN COULD HAVE BEEN MUCH WORSE, BUT IS NOT GOOD
I had my PET earlier today, and of course it came back worse than I had hoped, but no uptake in my Liver or other soft vascular organs in my abdomen. As expected I had uptake in the 3 nodules in my right lower lobe, and also had uptake in a Lymph Node in the Subcarinal and Right Hilar area. A Transbronchial procedure is…
Appetite Stimulant?
Hubby is 6 weeks post last rad. Stage III tonsil cancer. He has been peg tube dependent for all nutrition and liquids since about the fourth week of treatment, so for about two months now. Doc is encouraging him to try to start eating some liquids, soft foods. He says he wants to but he struggled so much with nausea during…
SuperThread....Now Always On Top...
I'm not sure if you have noticed..... I had asked Greta awhile back if there was away to pin or make the SuperThread stay on top of our posts in this forum. This would free up Dawn - Sweetblood22 of having to periodically bump it up every week or so, and I and/or others wouldn't neet to link to it anymore either. Now…
SoccerFreaks ~ Skiffin16 - Going At It Head2Head...
Well, actually we were more shoulder to shoulder, LOL... SoccerFreaks & Skiffin16 - Going At It Head2Head... I met Joe and his lovely wife Corrine recently...awesome and geniune people. I'm very honored to have met them, and have that experience in my memory banks. Cheers, John
Turkey Neck
I realize we all have been thru or are going thru some tough treatments and side effects. Recently I posted On Fire about neck burns. Made it thru the heavy pain but between my weight loss 30lbs and treatments I guess, I have this amazing turkey neck. Not sure what the term is for the portion of the turkeys neck that has…
I'm new here. My mom is a neck cancer survivor.
Hi everyone. I'm new here. My name is Erica. My mom was diagnosed with neck cancer earlier this year and just finished up her 35 rounds of radiation about 4 weeks ago. She also had 2 rounds of chemotherapy. This has been a very rough journey, made worse by my sister causing so much drama over things that aren't important.…
Caregiver to newly diagnosed Stage IV base of the tongue cancer
I just want to say how thankful there is a site that I can go to to be around people who understand what my husband and I are going through. I married my husband in May of this year and he had what appeared to be a cleft cyst on the right side of his neck. He had a needle biopsy in October 2009 that came back inconclusive…
Neck massage therapy
I read about neck massage therapy here and inquired to my ONC. I had my 1st 40 minute massage this morning and it was delightful. My neck is not nearly as tight or swollen and I actually feel like my speech is better. Insurance is covering it. Thanks to whoever posted about it.
enlightened denial
Hello friends! Even though I'm not reading posts daily, I think of you guys every single day, really. After finishing treatment I fell in a beautiful oblivion. I've been following up regularly with my docs and exploring my mouth and neck once a week to make sure that everything is alright, but apart from that I'm living as…
Last chemo tomorrow.....
...the last of treatment all together, actually!! Damn, I've been doing this chemo every three weeks since April 24, and I'm tired of it. Course I'm also nervous cuz the last two treatments have hated me so much...takes the 3 weeks to get a little better, and boom chemo day is upon me again. Also, having suffered the…
Estuation tube problems
Anyone else have problems with their estuation tubes due to tumor or radiation therapy. There was a tumor or node that grew next to mine on the left side that closed the “E” tube and cause fluid build up in the ear. I had radiation to destroy the tumor and the radiation worked and fluid disappeared, but since than, my ear…
Wedding Anniversary
Today is my wedding anniversary. A magic date for declaring love to a magical woman. The date 8/27/88. Which is: 2-cubed/3-cubed/2-cubed 2-cubed. For those who are mathematically challenged: 2-cubed is 2 X 2 X 2 = 8. 3-cubed is 3 X 3 X 3 = 27. We did not pick the date for its magical number. I think our Spirit Guides got…
ANYBODY TAKING SUPPLEMENTS?
HI EVERYBODY I'M ABOUT 5 WEEKS OUT OF TREATMENT AND I'M DOING PRETTY GOOD STILL HAVE A SORE THROAT BUT IT WILL PASS EVENTUALLY BUT MY QUESTION IS WHAT IS EVERYBODY TAKING TO HELP BUILD IMMUNE SYSTEM,I'M TAKING IP6 INNOSTOL,BETA GLUCAN,AND MILK THISTLE THIS IS WHAT A HOMEOPATHIC DOCTOR RECOMMENDED TO ME ALSO I'M LOOKING AT…
3.5 week update
things are moving right along. i'm still using the PEG but i sense a bit of taste returning. last night at my arents house i took some tiny bites of pork roast and mashed potatoes with gravy. the gravy didn't thrill me because anything with fat in it feels really gross in my mouth but the meat was actually tasty. not the…
2 week rollercoaster
TWell after 7 relatively quiet radiation weeks things changed drastically. Last 2 days of rads and next few wife unable to handle her ensure and even water. Got severely dehydrated and lost 7 lbs. On Monday appt with oncologist she recommended a feeding tube. Started fluids that night and was admitted. Procedure for peg on…
Words don't come easily anymore
Hey everyone ! Was just pondering if anyone else is having this issue ? I have been having issues during a coarse of a normal conversation, when a normal every day word eludes me. Can't even find a word that will replace it....kinda like a HUGE brain fart ! Or I'll say something I think is right....and everyone looks at me…
Thank you for the link for the most asked questions feeds H/N
I've been trying to find the link for awhile ! But always just got an amazing amount of listings on everything ! Had my link turned off some how...but fixed now and WOW...great work on this one ! You're amazing ! I will definately point people to this site and also refer to it myself ! I had to move my second opinion to…
Another Peg Tube Question:
I have the long peg tube type with a clamp and it works very well except the skin under where the tube goes in is always raw looking, it bleeds sometimes and hurts but there are no infections. I showed this to the GI doctor and he said it is normal, it just don’t seam right to me. Is it normal to have raw looking skin that…
Squamous Cell Carcinoma - brother in law who is mentally handicapped diagnosed
Hi, my brother in law was just diagnosed with Squamous Cell Carcinoma, stage 4. He is 52 and mentally disabled---it is hard because he is highly functioning so often we aren't quite sure how much he is actually grasping. At times he seems totally in tune with us, but then he will say something like "I gargled with salt…
Just Diagnosed Squamous Cell Carcinoma of Neck with unknown primary
A loved one was just diagnosed with Squamous Cell Carcinoma of the Neck with unknown primary. The path report states loose fragments of poorly differentiated malignant epithelial cells with enlarged hyperchromatic irregular nuclei and apoptosis are seen in a hemorragic background that includes few scattered atypical…

Head and Neck Cancer

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