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Head and Neck Cancer

Archives for August 2012

DONE!!!
THIS JUST IN!!! Met with chemo doc today. Had an in depth discussion and did the math regarding how many mg of chemo I've received. End result... I'm done with the chemo!!! He said I've already received more than the dosage which has proven to be effective and since my radiation is complete, there's really no compelling…
Flounder Pounder - Fresh From The Salt
Those flounder I caught last week made for a good article in a local angler magazine; Flounder Pounder - Fresh From The Salt Also on my friends web site; Fresh From The Salt Hopes and prayers for all of my CSN Family to get awesome reports, and continue getting back to normal with the activities and people you love. I'm…
One Week PosT Radiation
I am one week post radiation. I have oral mucositis real bad. Constant burning mucus in my mouth. The only thing I can eat is Insure. I am constantly rinceing with Baking Soda and Salt. I ordered a bottol of Ora Soothe to try. http://www.orasoothe.com/Home.html I hope it will give me some relief. I have tried to sip soda,…
My cancer is back - Cyber Knife is the new treatment
I am soooooooooooo happy for all those who recently posted their NED (clean scan or No Evidence of Disease). Can't get enough of those! Unfortunately my scan in July showed an 8mm mass on my left lung. Treatment Background: I've had radiation last summer, 2 chemos and three surgeries (including removing 30% of my right…
Throat Cancer - Stage 2
Hey everyone, I recently found out that my dad was diagonsed with Stage 2 throat cancer. He goes in this week or next week to have a body scan. We know that the doctor already told us that he will need to have surgrey and radiation. Does anyone have any suggestions as to how to gain weight before his radiation? He weighs…
NED!
Robert got his first clean Pet Scan results from Sloan Kettering in Manhattan today! It is 7 months to the day from his diagnosis. We are so relieved to have some breathing room. This passed week was agony waiting for results. Now it is time to celebrate!
Muscle Spasms
Hi all. I am now about 6 weeks post-op and starting my first week of Radiation. In the last week or so, I have been experiencing muscle spasms that will result in my arm or leg tossing itself out of a resting position. Very weird? I also have been getting cramping in my muscles around the heel up to my calf...very similar…
Wish me luck
Tomorrow is my 9 1/2 month check up and scope...I'm wondering if He'll order a scan, haven't had one yet, I have complete trust in my Dr Carrau and His team. Still having feeling of something in my throat, don't know if it's mucus, but unable to cough it out~~~ Thanks all for always being here for me
tooth ache
My husband had a severe toothache last night. It's on the left/top side towards the back.It started to radiate up the side of his head. He took 3 vicodins and 2 ibuprofen and the pain finally went away. I wonder if this is decay or bone deteroitation. It was not a throbbing pay.
How long?
So I realize the answer will be different for everyone but I am curious how long I should expect to have swelling/inflammation from radiation. I actually went to see a friend of mine who is a physical therapist last week because I felt like the swelling had gotten worse and I was concerned about lymph not draining…
Myopericytoma
Hi canadianmom, Just got onto this site tonight. I'm going to describe my situation in a very concise way, as I'm receiving some pressure to make a decision by the doctors. I'm sure there will be much you don't understand (I wouldn't) because of my brevity, and I will be more than happy to answer any questions from you or…
Myopericytoma
Hi canadianmom, Just got onto this site tonight. I'm going to describe my situation in a very concise way, as I'm receiving some pressure to make a decision by the doctors. I'm sure there will be much you don't understand (I wouldn't) because of my brevity, and I will be more than happy to answer any questions from you or…
biopsy
Because of a suspicious swelling on an xray taken of Jim's ribs, the oncologist is ordering a bone biopsy. The radiologist read it as a concern for metastasis. Praying this is just an infection from one of the many spontaneous fractures Jim has due to the advanced osteoporosis. I've told Jim: it's not cancer until they say…
Im on fire
I tried to look at old post did not find a discussion on RAD Neck Burns so I apologize if its there. Since my last RAD on Friday my neck has been to say the least likely a 2nd degree burn, serious sun burn what ever it hurts and Im hoping to find out if someone can give me suggestions. Matt I will be getting the Silver…
Migraines back...grrrrr !
Hey everyone, I have lived with and worked through this issue all my adult life. Until, I had my surgery for my dx. I thought hmmm was this related ? But never asked. Well 8 months later wap...back again. Could be just another cycle....use to get them cycling at least 6 x's a year. They usually last 5-7 days. On my 4th day…
Eating when you have no saliva
I'm 7 weeks out of rads, my sense of taste has returned, sweet and salt are normal, sour is off the charts and bitter a close second, but I think they're that way as there is no saliva generating at present. Sour causes the saliva glands to flood the mouth to dilute sour and make it tolerable, but with no saliva, the sour…
Here it goes... side effects attack
Hey everybody! Well, my Dad just finished his 13th RAD (out of 35) and 3rd chemo on Friday (once a week he gets Cisplatin). The side effects are already taking place. This past week he started to feel a sore throat which is just getting worse. It really hurts badly, so his meals are now more mixed. He will probably have to…
We are off to the Paralympics woo hoo
Just thought I'd post a feel good. We're off to Europe on Friday and making our way to London to watch our son race at the Paralympics. His name is brad scott (representing Australia ). He's racing in the. T37 800 and 1500m. I know how patriotic all you Americans are but give a little cheer for him. He won silver in…
Help is needed
Posting on Head and Neck-August 14th: My 85 yr old father has throat cancer and is just about done with chemo & radiation, he only has 2 more radiation treatments. The problem is that in the 2 weeks he has been having so much thick mucous, that he coughs violently and vomits everything and anything in his stomach. He has…
Ora Sooth
Has anyone had any experience using Ora Sooth Rice?
Really weird
So all day today and tonight my spit has been almost normal (it's actually in a somewhat liquid form that I can actually spit out) AND my sore throat is about 70% gone. Ive had no pain meds since yesterday afternoon. Is it normal for it to come and go? I did develop a huge sore on my lip overnight though. This whole…
1 month out from Rad
Just had checkup with ENT and Radiation Oncologist both thought I looked good with no issues. Still a lot of swelling in neck area and stiff neck, but burns and blisters are almost completely gone. I am taking minimal amounts of oxycodone for flare ups, but not much pain to speak of. Biggest problem is sleeping or lack of…
Hurts to swallow food, feels like something there.
I had tonsil cancer, robot removed tonsil and 36 lymph nodes by neck dissection. 7 were cancer. i had my 9th rad today and when i got home i made some lunch. baked potato and hamburger pattie. i took a bite of the meat and when i swallowed it felt like i was trying to swallow a bone. hurt so bad. wasn't as bad with the…
Bloating problems inhibiting calorie intake
This is my first post here. I have only been reading until now and appreciate the information being shared. I am a caregiver and very worried that the (week #3) infusion of cisplatin on Tuesday has caused severe bloating in the family member that I am caring for. The bloating has made it difficult to ingest food by mouth…
One lymph node lit
PET scan one year from diagnosis shows one lymph node lit, but no cancer elsewhere. Original diagnosis was Tonsil primary with mets to two lymps and went with 30 weeks radiation and erbitux. 1st PET sacan showed all clear, but 6 months later showed one lymph node lit. Now they want to do surgery to take out lymp node.…
ENT Visit
My husband went to see his ENT today. He has been using his feeding tube to eat and only sipping water. His ENT and the surgeon that put in the tube both told him today that he needs to start eating by mouth as much as possible no matter how much it hurts. Even if it is one meal a day! So we are going to try mashed…
I am tube ignorant, I think....
Keep in mind, I got the darn thing in April, but never HAD to use it till July. I've ran Coke thru it, and I flush it with warm water....but it's getting slower and slower, till today, it wouldn't work with gravity at all...I had to put the plunger in the syringe. Is this how it works? I mean, everybody starts out being…
7 long wks-over
Wife finished her last radiation yesterday and chemo past Monday. Glad it's over but the last week has been the roughest she has faced. I feel fortunate to be among the living --I hid the dangerous weapons. Mouth sores/mucous seem to be major culprits along with some pain. On fentenyl low dose (12) with a hydrocodene boost…
taste alteration and suggestions
My mom cannot eat anything secondary to the taste alteration. She states everything tastes terrible... Do any of you have any suggestions on what worked for you? Yes, she has her PEG and that is her primary source of nutrition. However, she would love to eat. Thank you for your time! :)
Doc advice : eat at any cost
I had a appt with my doc today and she said to just start eating whatever i could and not to worry about pain in throat. She said if needed take pain med but keep pushing in eating. I have was eating pureed food okay but when try to eat pieces, my throat was hurting. I could eat but than throat would hurt. She said to take…

Head and Neck Cancer

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