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Head and Neck Cancer

Archives for October 2011

another list of side effects
******************************************************************************************* please read !!!!! No one will develope all of these symptoms. Every patient is different and treatment is custom tailored to each individual by their doctor(s). The effects you experience can vary depending on how and where primary…
mouth blisters after any "food"
my hubby's mouth blisters along the roof and alongside his upper gums (between gums and cheek) after he tries to "eat" anything such as ensure, shakes, etc. water and coffee (with creamer) doesn't do this (so far). He thought it was just part of the process so he hadn't mentioned it to the doc until today. they had never…
Possible email for delnative..ps sorry to be stalking you but we all are worried
I think this may be the right one Twitter J.L. Miller @delnative Delaware News Journal reporter Other jlmiller@delawareonline.com
John (aka THE SKIFEN) cheats
You have to put the fish picture back up and remove Sherry. I have a hard time saying something nasty to you with her pic up there. She's a sweetheart compared to the low life you are and thats not fair....otherwise I'm placing a nun up as my avatar. Think I'll do that anyway. cheater cheater cheater Denny PS Give her a…
Caregiver
To all Caregivers: When I first wrote this it was 3 paragraphs of me thanking my wife for all she has endured and apologizing to her for putting her thru it. I read it, my water started running from my eyes, then I erased it and went and found my wife and told her everything and how I appreciate her. So to all you…
Another SSI ?
I started receiving temporary SSI in Feb 2011. How long does it last. Also i am still on Oxycontin and i dont think i will be coming off any time soon. If i stay on it do i qualify for pemanent SSI? Thanks David
Another pain med ?
I had my first cancer surgery in July 2010 and my last surgery in March 2011. I currently take 120 oxycodones 10 mg and 60 oxycontin 30 mg in a month. I have problems from my radiation. The radiation ate my jaw bone now im in constant pain eating or talking. I have been on oxy since july 2010 i never get a buzz from the…
CareGiver Tribute Week
Mitch brought up a good point concerning the value of our caregivers. I am putting my lovely wife (Shelley), caregiver and my princess photo up on my avatar for a week. Anyone that cares to join me by putting their caregivers photo up also, more than welcome. Thoughts and Prayers, John
IT'S OFFICIAL, I AM AN ALARMIST
Just finished my visits and the CT with contrast was clean, my throat scope and exam was clean, and my ENT did biopsy 2 spots but said "put your money on negative" as the tissue below where he biopsied look very healthy. He did recommend haing my wisdom tooth pulled as whatever caused the swelling to the tissue is being…
SSI
Just a gripe. I had to go on disability through my employer provided insurance. Now its bad enough to have to explain to the insurance folks why you can't work (and it is humbling), but they also required that I apply for SSI. I understand why the insurance campany wants that because they will then reduce my payments by…
luv4lacrosse
Just wanted to say that Im praying for you today. Hope its a short wait for a great report!!!!!!!!!
Anti-depressants anyone?
After discussion with my H&N Nurse Practitioner today, we come to the conclusion that I am exhibiting signs of depression. The chemo MD gives me a script for Effexor. I have an appointment with a social worker and eventually a psychosocial nurse. Anyone took anti-depressants through treatment? Taking them now? Do you…
surgury tomorrow
For those who are familiar with my mom's story. We decided to go with the surgury. I called Sloan Kittering and they had told me that in my mom's case if she is a candidate for the surgury like her doctor said it is the best treatment option for her and delaying it it's not such a good idea. they also said to fax them over…
PEG placement and radiation treatments
Hi, Just an update and some questions on PEG and radiation. I've just completed 1/7 weeks of concurrent Cisplatin and radiation last week. Needless to say I was totally sick but feel better this week. Because I was unable to get a PEG installed prior to treatment, I am now considering getting one before the treatment gets…
freaking out
Hi I am a 33 year old female. I am a pack a day smoker and I have been having ear.fullness for almost a year now. Within the last month I have had a sore throat and it feels like its just a post nasal drip raw feeling on my right tonsil same side as my ear fullness. I went to ENT about 6 months ago he ran a cf on my sinus…
UPDATE
I went to my Chemo Doctor yesterday and she put me on liquid Megestrol Acetate to try to help me gain some weight but as long as I am unable to swallow very well it’s hard to eat very much I am still on the med’s for saliva but it has not helped yet. Has anyone been on or know about Megestrol Acetate ? Robert
Where in the World Are You
I haven't had this up for awhle and it's getting so many on it that it loads a little slow. But for you new members or relatively new members, this is a Google map that I made up awhile back that has a lot of the CSN H&N forum members/survivors locations. If you would like to be added and aren't already, let me know and…
Apple Co-Founder Steve Jobs as died of Pancreatic Cancer
Hey Guys I just seen this on facebook and other sites that Steve Jobs as died of Pancreatic Cancer. http://www.apple.com/stevejobs/ http://www.cnn.com/2011/10/05/us/obit-steve-jobs/index.html RIP Steve Jobs.
peg tube/eating problems
Finished my 7 weeks of radiations and 3 chemos on April 18, 2011. I've been with a peg tube from the beginning. I cannot seem to eat a complete meal yet. My taste buds are still altered but getting better. Any suggestions for bland diets as spices flare up the taste buds. I can't have peg removed until I am off the…
peg tube/eating problems
Finished my 7 weeks of radiations and 3 chemos on April 18, 2011. I've been with a peg tube from the beginning. I cannot seem to eat a complete meal yet. My taste buds are still altered but getting better. Any suggestions for bland diets as spices flare up the taste buds. I can't have peg removed until I am off the…
Set Back ?
Finished treatments on Sept. 02, 2011. Felt good for 8 straight days. Yesterday afternoon (5 PM) started feeling a little weak and kind of sick. By 9:30 last night felt very weak and felt sick to my stomach. Woke up at 5 AM getting sick in bathroom and running a fever. Mucus is running again today. Here I am at 3:45 PM and…
If food gets stuck
I have been carrying on a conversation with Hondo and it reminded me of something that almost happened to me that those of you with "sticking food" syndrom might want to know. I was in the hospital recently and had a tube but at that time was still trying to eat - SEE ALPHA MALE SYNDROM - when suddenly I could not breath…
Pain Meds
I know everyone is different. I just would like to get a general idea when everyone was able to stop taking pain meds. My husband is a little over 4 months out and is still in pain and very weak. He takes 2 morphines a day and 2-4 vicodins. The radiation doctor told him a month ago that he would be feeling much better.…
NOT A GOOD FEELING THE DAY BEFORE NECK CT AND ENT VISIT
Let's all hope you give me a good ribbing tomorrow afternoon about worring too much, but I just do not have a good feeling about the outcome. The swollen area in my gum / tissue near and around my wisdom tooth looks a little larger. It really is painless unledd you push on it pretty hard. Of course every little pain or…
just new here
i just started my chemo on Oct 03 (which is once every 3 weeks) and radiation(for 7 weeks), im stage 2 NPC cancer, but when they did my bloodwork, my chemo doc told me i have elevated liver, im scared if its metasticize there, u think its possible, i need some advise...
Goalie
So, what was the score? Did you bring home the gold? Any color would be gold in my book, back in the game 1 year post treatment! How many CSN friends were you able to meet face to face, even with barbeque sauce in your faces! Hope that the weekend went well.
Gum to exersise the tounge
After weeks of using the tounge exersises that wife found on website she came home with sugarless gum (I really hate chewing gum) but tried it for several days and found that chewing really gave the tounge a work out, made the throat hurt a little more than usual but seemed to help with eating things like eggs over hash…
pain meds
My teeth started to go bad a long time ago even though I looked after them dutifully, brushing, trays , mouthwash etc. one by one they started breaking off and became very painful. An oral surgeon decided they all needed to be removed but we ran into a brick wall with the insurance company, he prescribed vicodin 5/500 one…
Another question.....this time about our thyroid
Is it common to have issues with our thyroid after radiation to the head and neck area? I am asking because I have been experiencing a lot of side effects that seem common for someone with thyroid issues, also cancer treatment so it's so hard to tell. For example my vision issues, sore muscles, fatigue, being cold, shaking…
Vision changes anyone?
Has anyone experienced an effect on their eye sight after radiation? I had more rads on my left side than on my right as that is where my three tumors were found. Now it seems even with my glasses on my left eye is out of focus. Maybe it's because I'm going to be 40 in six months and has nothing really to do with treatment?

Head and Neck Cancer

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