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Not happy Drs got wires crossed
My husband went back to work yesterday following the word of his onc. This morning his ent Dr called me and asked why he was working so soon after finishing radiation. He wants to see him and do an assesment before Vaughn is back to work and says he should be off at least another month before returning to work. I tried to…
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Lelia's Husband Don Ruben
Passed away unexpectedly on 9-15. Don was a lawyer and, among other things, specialized in drug laws. One of the last things he did (and while he was in treatment for H&N) was an interview with the staff attorney at Drug Policy Alliance: Don Ruben Interviews Tamar Todd I knew Don only through Lelia, but I know enough that…
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seems like sliding backwards
Jim is 6 weeks out and all of a sudden is sliding backwards. Sore throat has returned with a vengence, much worse than 4 weeks out. Lossing weight again and extreme tiredness. He was walking to mail box and taking trash out; Able to stay up all day and actually read a book in a week. Yesterday he slept all afternoon…
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CNN article on oral cancer and HPV
Wasn't sure if everyone saw this article on CNN's website today on oral cancer and HPV. http://thechart.blogs.cnn.com/2011/10/03/increase-in-oral-cancers-linked-to-hpv/?hpt=hp_t2 (Not sure if the link I copy/pasted in will work but it is on CNN's home page today). Suzanne
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PEG
Seems like the majority of people either start out with a PEG or get one after a few weeks. I would like to know how many people are able to make it through without one. Personally, I am only on week three, I have lost a lot of my taste and have a moderate sore throat on the side that is getting most of the radiation, my…
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New plan for Dad
Dad saw the oncologist today and this was a little more positive. His doctor has talked with another droctor in the practice and they developed a plan. Dad will start carbo/taxol this Friday. He will have 3 rounds and then off a week. They will do 3 cycles tnat then another CT. The doctors are pretty sure this will control…
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So Tired
Well, it's week four of my chemo by pill. This is the second week at maximum dosage and it is kicking my butt. I am extremely fatigued and I get winded easily. And, my tongue is so sensitive that I had to change to a kid's toothpaste and I can't eat anything hot or spicy. And, the worst part is that diet Coke hurts to…
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CURE - Imaging Tests - Vitamin Supplements - Antioxidants
There are a few pretty good articles on many of the differences that people ask about between, MRI, CT and PET scans this month in CURE Magazine. Picture of Health, page 28.... Also an article on vitamin supplements and antioxidants.... Some antioxidants might actually neutralize the cancer killing molecules. Anyways, some…
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JIM "DEL NATIVE"
Has anyone heard from Jim?? I always worry about our CSN friends who do not check in regularly. Thanks Mike
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lilwriter
Just wondering how you are doing?
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Checking in and asking for prayers
Hi All, Haven't posted in a while but have been trying to keep up with everyone. I am thankful for and pray for all of you daily. Sweet, I am sorry to read you are dealing with health issues. Will send extra prayers for you and all that are having difficulty now. Pats 2 year scope looked fine. Two year PET is October 12.…
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Question: Always cold?
since the weather dropped from the 80's to the 50's and now colder at night, I find myself constantly cold. Even layers of clothes don't seem to hold off the cold from my bones. I seem to be ok at work with a sweater added to my wardrobe (and most of the other workers are too warm) but at home I just freeze. Does anyone…
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Buzz has a neck abcess
Has anyone heard of developing an abcess as a result of a necrotic (dead)lympth node? Buzz's biopsy of the abcess area was negative but he has several other areas in his neck and tongue which are suspicious. The oncologist thinks the cancer is back. We cannot procede with another biopsy until the infection clears. (after 6…
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juicing
Are any of you or have any of you done any juicing to help with the treatment? just wondering..I would like to try with my mother.
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Those who have or had a PEG...
The stitches were out 4 days ago. I have one of those Foley urinary catheters as my PEG, size 14 I think (ink is wearing off). The Foley is the standard tube they use now for most PEGs from what I see in the hospital and nursing homes. When I use to do home care over 10y ago, I saw the clear ones with a ring at the base…
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catching a cold post rads
Does it take longer to get better after radiation? My husband goes back to work on monday and this morning he woke up with a terrible cough. He says he feels like he has a chest cold.
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Update and questions for the experts
Good Morning! Many hello's, well wishes, and blessings to you all. Update: Dad is now 3 months out (June 24th) from radiation and had his last chemo session in August. We were so blessed to celebrate his 65th birthday this past month and he seemed to be doing pretty well. He had a CT scan, blood work, and swallow test this…
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How ??
How is it possible to have a secondary without a primary? Now that the secondary has been treated and I have been thru hell will they find the primary? One more question. I completed my treatments , which consisted on 39 radiation treatments, I cant get another pet scan until the end of November because the insurance…
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Face Hair
Help I finished radiation on Sept.02, 2011. I did not have any other procedure. The radiation was on my left and right lymph-nodes and my tonsils. 39 treatments. I can only grow facial hair on the left side of my face? Why would that be? Will it ever return? The right side after 2 or 3 days is very light. Please give best…
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I is baaack
Sorry for my 2 week AWOL stint they stuck me in hospital. Gagging on NGT so much I nearly burst a vessel, Could not get enough nutrition in or H2O so on a drip.Shoot out of Hospital 0530hrs to miss traffic every morning for Radiation except the day they actually put me under to try PEG by endoscope. No go need surgery had…