Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Archives for July 2011

Thyroid Medication
Please give me some information on thyroid medication. I have used the drug most commonly prescribed for the thyroid which is Synthroid and have recently been prescribed Liothyronine. I was having side effects with the Synthroid such as shortness of breath etc. and now am having side effects from the Liothyronine such as…
Food Ideas and Such
Hi everybody! I hope all is well or getting that way for everyone out there. I've posted recently that I am six weeks over my last of 33 rad treatments for tonsil cancer. The doctor (and most folks here on this board) said the rads continue to work their magic for three months afterwards. So, I am slowly working my way to…
Carnation Instant Breakfast Program
Hey everyone. I know money is tight, especially when some of us have to take a leave of work. The thought crossed my mind to share this with the board. Feel free to share it with anyone else. At the hospital where I am being treated, they have a great program for carnation. I do not know how widespread this type of thing…
Allow me
Hello to all. Im a little embarrassed to admit that I have followed your posts religiously for months without saying a peep. Im contacting you all on behalf of my dad, Tony, a 64 yr old man diagnosed in february 2010 with stage 4 cancer of the tonsil with spread to lymphnodes. I am one of his 8 daughters, 25 yrs old. And i…
Allow me
Hello to all. Im a little embarrassed to admit that I have followed your posts religiously for months without saying a peep. Im contacting you all on behalf of my dad, Tony, a 64 yr old man diagnosed in february 2010 with stage 4 cancer of the tonsil with spread to lymphnodes. I am one of his 8 daughters, 25 yrs old. And i…
after treatment scans
Ok, I really need some feedback on this. July 2006 completed chemo/rad for scc base of tongue. Following November had surgery to remove 5 lymph nodes on side of neck. Cancer free since then. My ocn who performed the surgery told me he doesn't schedule scans after 2 to 3 years. My rad/ocn and chemo/ocn are still…
Done with Treatment; No Follow up Scan?
Hi Everybody! This board has given me much comfort over the last couple of months. I finished my last of 33 radiation treatments for tonsil cancer six weeks ago. I didn't have chemo but I did have my right tonsil and what the doctor described as a tumor removed from the right base of my tongue. The cancer was apparently…
I hate to ask, but...
I need some prayers. I am sick and feeling awful. I know there are much worse issues on this board, but I need a little something. I started with a bit of a clogged ear Sunday. I cannot hear anything out of my ear now, and it hurts so bad. Coughing up crap, yadda yadda yadda. Went to the doc today and got antibiotics and…
Radiation treatment is finished!!
Yesterday was her last treatment! She has done so well and she is so very amazing!! Computer is broke :( ... Will give more update later!!
Been awhile - I've been bad
"Bad" in that I haven't kept up with my CSN friends. Sorry about that. I've actually been pretty good. December CT/PET showed my NED and my follow up CT in June was still clean. I was suffering from L'Hermittes - but my chiropractice rehab work has all but cured that. I only feel it when I run. I was suffering from some…
Gone A While
Hi, everybody. I've not posted for a while and I'm sorry about that. It seems that everything built up and came crashing down on me and I have been really down. I have been experiencing a great deal of facial pain and I have been to numerous doctor visits to try and get relief. My main doc and my ENT surgeon think that I…
Damn it... I hate this cancer...hate it..hate it...
I just got a phone call from my husband and I'm sitting here trying to work but instead, I can't...cause I'm crying again. I hate this cancer. Gawd, I hate this cancer!!! I keep thinking that everything is going to be fine and then I get these huge reminders that it's not going to be at all. Damn it. Husband, 58, was dx…
Thinking of Skiffin today
Skiffin's big two year post PET is today. Thinking of him and sending prayers and best wishes his way and to everyone who is, has, or will battle this disease. Here is to good news for Skiffin. Myka
skull base institute
Does anyone know any info. about the Skull Base Institute in los Angeles....just wondering if anyone has had any experience with them. I guess I'll also post this on the brain page.
Six week follow up visit today
Well my hubby is going for his six week follow up today with the rad doctor. When he went for the 4 week check up he had Thrush so he told him to come back in 2 weeks. So, here we are, I am wondering if my husband will remeber to discuss with the doc about fatigue, nasuea (he got sick this morning) and the bump on the side…
Update on my husband
For those of you that may remember, I had ask alot of questions a couple weeks ago about buccal mucosa cancer. My husband had his surgery this past Thursday. They did dissection of the tumor, skin graft from forarm and thigh, and selected neck dissection. Things went well for the first several hours. On Friday he was found…
Glass trout!!! and PEG (weird)
Hey ya'll! Well, here it is...this is from a free pattern found online. My hubby DOES fly-fish when we go to the mountains so he has alot of flies. When this photo was taken I did not have any E6000 on hand to attach a real fly to the piece. (and do not want to use anything else) Like most endeavors, it takes time and…
Useful Info for all of us
This was sent to me by a friend. Format didn't copy too well but I thought a good read anyways. Johns Hopkins Update - This is an extremely good article. Everyone should read it. AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY…
Half way done: week four is almost over.
Hello all, I am half way done, although the hard part as most of you veterans know is just starting. My RADONC said it best yesterday "the honeymoon is over, it gets tough from here on". He is right. My throat is very painful, swallowing is tough and talking above a raspy whisper takes effort. Feeding tube is coming, the…
nausea and feeding tube
The past couple of days my husband has been sick to his stomach. He is not vomitting, just feeling yucky. We have been using ensure and boost in his eeding tube. I am trying to get a grant from Visiting Angels so we can get some Jevity. I am looking for some recipes for the feeding tube. Not sure what to use, I am afraid I…
bump on tongue
July 4, 2011 - 9:41am bump on tongue I noticed that there is a sore on the side of my husbands tongue and it's on the same side he received radiation on. It protrudes out about a 1/4 inch. I noticed it has been there for a long time. Just a little worried because before treatment he was complaining of his tongue hurting.…
July Fourth & Military
Please remember those that have and still pave the way for the freedoms that we enjoy.... Our men and women in the service, their families, those that are serving and those that have served. Those that have paid the ultimate price, those that have signed on the dotted line and know at what cost that could be.....ready 24/7…
Possible thyroid problems
I am wondering if my thyroid in not functioning correctly, I have absolulty no energy. Yesterday we took the boat out, all I did was drive to the lake 30 miles not stressfull and sit in the boat all day under the bimi top. The only time I got in the water was up to my knees to hook the boat up to the trailer and pull it…
New Allergies/Reactions?
Team, Happy Fourth of July. Thank you founding fathers, revolutionaries, military personnel (deceased, retired and active and formerly active), and people who stand, put their hand over their heart and join in when the Pledge of Allegiance is beginning. Now - haven't had a whine in a while - that dry patch is over. I broke…
OPINIONS PLEASE
Hello Everyone! Happy 4th Of July, I hope your all enjoying it! I have a few questions and I'm not sure where to begin. My Dad has vocal chord cancer, and as of right now he is doing NON traditional treatments, and so far the cancer is NOT getting any worse. We just weren't comfortable with the surgery they wanted to do,…
Radiation burns
Hello Everyone, Of course I have another question about Connie's condition. Around her neck her skin is very dark and looks burnt. She is three 1/2 months out of treatment but this skin has become darker every week. I think we both thought this skin would peel like a bad sunburn, but so far that's not happening. It…
treatment
Who on here has been in remission after doing chemo only or clinical trials? Have any of you had pallitive chemo...whatever that is.
Husband's anger -- embarrassed...
We have a small mobile home in a nice neighborhood that I use as an in-town office for my business as our main home is in a small rural town (pop 250) 15 miles away with limited internet access and no businesses on "Main Street." I'm so embarrassed to say that I slept here last night, leaving my 58-year-old husband to…
Numbess in chin and lower lip, left side
Calling all long-term survivors of HNC. Over the last 2 mos. or so I have developed numbness in my chin and lower lip, left of center. Coincidentally (or not?) my HPV16 positive HNC was on my left side (tonsil and lymph nodes). I am almost 4 years post treatments and doing great so I just chalked this up to another "new…
When was the last roll call? Earth to Hawvet.............come in Hawvet??
Sorry, I have not been online for a long time. But, doing very well now almost 4 yr. post treatments. So, has there been a Roll Call lately?? JKINOBAY

Head and Neck Cancer

Discussion List