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send prayers
Okay my family here, We go tomorrow for the results of my mother's 2nd biopsy( her name is Pauline)....please,please pray for good results! I'm also going to look into other places for a 2nd and 3rd opinion.
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going back to work
whew, Just a reminder .... for people starting back to work after treatment. It's a lot easier to overdo than you think it is. Case in point, I started back to work 3 weeks ago, and i was working in my yard in the afternoons. Then bam, I started feeling exhausted all the time. So then for about 3 days i went to work, then…
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Questions about strange happenings
I've completed 1 chemo and 8 rads of my 7 week course (3 rounds cisplatin/35 rads) and so far I think I'm doing well. However, I had a strange thing happen and I'm hoping someone else has experienced something similar??? I have bilateral metastasis to the neck nodes. Two nodes in particular (one on each side) are larger.…
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Interesting site!
Just thought I would pass this along! www.drinkyourmeals It may be a benefit to anyone on a feeding tube etc. It was started by a head & neck patient. Ton's of interesting & healthy recipies for all.
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Last day of Chemo
Today is my husbands last day of chemo and tomnorrow is his last day for rads. Now, he can get a break and start the healing process. I have posted in the past about my husband not eating. He is still not doing well with the eating thing. No peg tube. He only drinks one protein shake a day and the last ferw days he has…
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peg tube and diarrhea
Hello all Hope everyone is doing well. My father has been on pegtube for several months. He has been experiencing diarrhea and has also not seen much increase in weight. The doctors are waiting on scans post surgery as he still has a lot of swelling from his mandibulectomy and reconstruction. Any advice? Thougts?…
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Your personal expiration date 11-21-20xx?
Chromosone technology that could predict how long you have left to live has been in the mainstream media for several weeks now and the common question by news people is, "Would you really want to know when"? Everyone always answers absolutely not! I was wondering if we collectively were any different for obvious reasons. I…
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statistics
Do y'all pay attention to 5 year survival rates? I went on the computer yesterday, and I've driven myself totally crazy. Now I'm depressed and shaking so much I couldn't sleep at all last night. I think mine said 47% 5 year. Also am I the only one on here who has had the big C in the nasal cavity and the eye region. I feel…
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Kent cass PMed me ....
Just wanted to let evetyone knowbas i see he hasnt responded to the ABP! Very odd but he responded to me via PM so i know he checked the board. Maybe computer issues?! I have been having trouble responding on board n creating new threads But he is with us on the boards! And fave me some great feedback and support
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Burning Water and Disappearing Gum Lines?
Hi everyone, tomorrow I will get the 29th of 33 radiation treatments. No Chemo for me. My Doctor did not recommend a feeding tube so I've been inhaling the ensures. After about the 20th treatment I have had to take a swig of Mary's Magic 10 minutes before drinking one. I've heard folks say on this board that it is…
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Checking In
Hi all: Been globe trotting again. I went last weekend to my great nephew's high school graduation (the grandson of my brother that passed away in Oct.) and then came home on Sunday and left Monday for Hilton Head! My best friend's older son owns a condo there and she and her husband were going and another couple was…
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How long until first post chemo-radiation CT?
From your experiences, how long after completed course of chemo-radiation treatment was your first CT... or any test to check effects of the completed treatment? I am getting different timelines from different medical professionals... from 3 weeks of completion to 3 months of completion. I am into fifth week of six-weeks…
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Does the Black Salve work ? Ask Scambusters nose !
Friends lovers and doubters, I have been quietly documenting my experience with the Black Salve and now can openly claim to have put my nose where my mouth is, and used the stuff and YES it does work and work very well indeed. I treated a lesion on my nose and one on my forehead, both suspected BCC or SCC. I have had many…
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Help...Need suggestions
My mom has stage 4a BOT cancer. Due to the size of the t0umor, surgery is not an option. She started her rad treatment on Tuesday and also had her 1st dose of cisplatin. They gave her anti nauseau meds before the chemo...They also gave her anti nauseau pills for at home with a schedule of how to take them. She also is in a…
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Has anyone ever used Caphasol?
Has anyone ever used Caphasol for the mouth sores? I spoke with a fella that swears by it. He didn't hear about it until week 3 or 4 and reported huge success with it after initiating use. What does it actually do for you? All comments welcome and requested. Thanks to all, Mike
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New clinical trial for recurrent head and neck cancer
Hi All, Just wanted to let you know that Pat's oncologist, Dr. Antonio Jimeno of the University of Colorado Cancer Center, has just initiated a new clinical trial for recurrent head and neck cancer that has not responded to conventional treatment. I know not many of you are from anywhere near Colorado, but I have to say…
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When do you stop waiting for the other shoe to drop?
I will have reached my two year survival for NPC in September and have bounced back physically fairly well after the hard treatment.I have three wonderful children and a fantastic husband,but I find it hard to face any ailment however small without great worry and stress.It has been raining here for seven days and I have…
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Immunotherapy...
Well we got the results of Neil's biopsy. Seems like the 2 rounds of chemo didn't touch his cancer. Onc told us that he does not believe more chemo would do any good. They still want to do radiation with immunotherapy. The word he used is "untreatable". Neil still wants surgery if at all possible, this lymphnode is really…
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Painful lump in vein used for IV
I was wondering if anyone had a lump developed in their veins. I had surgery almost 3 weeks ago and I have this painful lump a few inches up from were the IV was placed. I think it has actually been moving upward in my arm. Can this be dangerous?
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tests and scan questions
Okay Y'all, I have a few questions and I'm new here. I just posted about 5 days ago for the first time. here goes: 1. does scar tissue light up on PET scan? 2. Can scar tissue and inflammation grow or get bigger over time? 3. What are dead cells, and is that good or bad? 4. are PET scans reliable months after surgery and…
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Still looking for someone with issues of frailty and dementia who is undergoing or has undergone rad
posted last week that my husband is due to start radiation therapy for throat/lymph node cancer. He is frail and has mild dementia. What can we expect? What about issues of swelling of throat, aspiration, eating, etc. Really would like some input. Thanks.
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A bit worse for wear, but I'm back
Hello, all. Some of you may recall that in February I had what was supposed to be my final PET scan after surviving Stage III HPV-related SCC of the right tonsil, and that the scan showed that I now have HPV-related SCC of the right lung. This is the first time I've logged on since then, so here's the latest. On Monday I…
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All Clear
I had MRI's done last week of my head and neck. Went to the doc today and got the "all clear". Won't be getting a PET/CT for another couple months but for now everything looks great! Much thanks and gratitude to everyone here for all the support that got me through. Life is good. Bob
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Finally finished with my initial work-ups at UNCCH surgery/treatment plan starts.....
I have a great report: The CT of my neck came back with the primary 90% identified. My chest CT came back clean (thanks god). My surgery was supposed to be both tonsils and a small affected area of the right BOT removed and a neck dissection. Now that the my team of ENT, Radiation oncologist and Chemo oncologist have…
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wrong decision? =(
after reading through the boards and talking to other H&N patients... i felt it was best for my 107 lb mother to get feeding tube first week of treatment. was very happy to hear to GI doc who did the procedure say that i was a very smart daughter and he agreed. rad/onc doc then told us several hours after installation that…
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The day after the big day!
First, thank you all sooo much for the prayers and well wishes! I'm home now, got out at about 11am this morning. Surgery went well, took all of my right lymph nodes and didn't have to take my jugular. I'm cut from behind my right ear to about my thyroid area, but he did a wonderful job and it doesn't look too bad! I don't…
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update
Hi everyone. I've been so focused on the counseling practice I have little time to wander these boards, but I have a bit of news I wanted to share. I had my 12 month PET scan Monday and last night I got the word from my ENT, "I think we got this thing cured ... ". I blogged it on my website and posted the mp3 of his voice…
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I have ants in my pants
I am getting a bit antsy being my husband has 5 days left of treatment. Just wanted to know, has anyone been told by the radiologist/oncologist at the end of treatment that they beleive they got all the cancer. I was wondering do we have to wait 2 months before we know anything. I am tired of the waiting game and my nerves…
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Kidney damage after Cisplatin
Has anyone had kidney damage after Cisplatin? Buzz has elevated Creatinine, BUN, and decreased GFR. All that means is his kidneys are showing signs of not functioning fully. At what point does someone with this problem need a renal diet? His oncologist does not seem to look at his labs (unless we ask) although he has blood…
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Every day is gloves on and keep swinging.
I was diagnosed with scc of the nasal/septum area in dec 2009,since then i've had my nose removed with a sub total rhynectomy,reconstruction using skin and bone,vein from my left arm,have had nodes removed from my neck,survived radiation treatment in may/june 2010,several operations to keep shaping my nose with more to…