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Hi..I'm new to this forum
I thought I will give you all my story. I was first diagnose with tongue cancer in 1995. I have no known risks factors but I guess that does not matter. I had my first surgery in January of 1995 and had to go back in in February because the margins were still not clear. I was cancer free until 2009, since then I have had 5…
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How "public" are you about your illness or its after-effects?
I'd like to hear how others have dealt with the issue of being totally private versus being more public. In my case, I'm a local band (meaning: financially vastly unsuccessful) musician, so I have a bit more "high profile" to begin with. It's my theory that people generally like their musicians at least a bit quirky or…
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Im tired
I had 2 neck dissections with lyphnodes removed on one side, and 95% of my tongue removed and replaced with my thigh. Along with chemo and radiation. Now i have a knot on my tongue that i can not explain. I went to my oncologist and he was in surgery and i saw someone else and he called my doctor in the operating room and…
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Something we can discuss/debate
I was just thinking the other day when my husband made a comment to his sister about there is no cure for cancer. But, we have chemo, readiation and surgery that seems to kill/remove the cancer. I see alot of people are cancer free for many years. Some may think that is a cure. What do you think. Let the debating begin.
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Dry mouth sore throat
I am having a problem with dry mouth and sore throat. I have tryed biotene dry mouth spray it works for a little while but I need something that will last several hours. If I go to the store by the time I get inside I am looking for water and at night I spray my mouth before I go to bed and I have to get several times a…
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Calling Kent Cass Where are you
Anyone seen, heard, or posted to Kent in a while I am starting to get a little worried Hondo
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Thanks to everyone that commented on my post =)
Thanks everyone that commented on my post. I have been to the University of Michigan ENT's office which is said to be the best in the state. The Doc. Looked at my tonsil and said that there wasnt anything to worry about but, honestly all things point toward the other direction. The nodes, the buldge on the tonsil (same…
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Tomorrow's the big day
Well, here I go, hopefully into the final round of this crazy game with my nasty cancer. Tomorrow morning I have my neck dissection.....I'm nervous, not so much about the surgery, I kind of know what to expect from that, this isn't my first (never had a neck dissection but had full exploratory on my abdomen and that's some…
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PET/CT scan results tomorrow
I have purposely been avoiding Cancer Survivors Network website for quite awhile. Quite selfish of me, I know. My only excuse is I wanted to forget everything about cancer, even for just a few weeks. I wanted to pretend that my life was no different than before my diagnosis, and it worked for a little while. Now of course…
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anyone with Tonsil CA .. not have chemo?
Just curious. Always confusing to remember who was diagnosed with what. not that it matters to me, as everyone's love, advice and support is amazing and so comforting. Mom diagnosed with Right SCC of Tonsil after tonsillectomy. Originally there was no origin as her PET was clean. mets to one lymph node which was removed.…
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Entering the haunted house ....
And so it begins. I'm actually sitting in the waiting from while mom does her dry run. We made the mask last week . It's much smaller than I thought. It doesn't cover her neck ... Just the face. Tonsil CA to one lymph node .. I Would think they would radiate other nodes down the side of her neck. Is that unusual? It ends…
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SCARED TO DEATH PLEASE HELP ME!!!
Hello My name is breanna. I am a 22 year old female. I smoked cigarettes for about 3 years and I smoked weed for about 3 years after. I am here Because I am scared to death. I have a right tonsil that is extremely larger than the other. I have seen many doctors who dont take me seriously AT ALL. this has been going on for…
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Long term side effects down the road?
Hey all, I have scc hpv positive in my left tonsil. My tonsils and all the lymph nodes on my right side have been removed. The doc believes he got all of the C, but I needed to undergo 8 weeks of rads and 3 cisplatin treatments. I am beginning the seventh week of rads and getting my final chemo as I write this. I am hoping…
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Medical Disability
I applied for SSI medical disability for my husband in April. He is stage 4a - T2N2Mo. We got a letter within 30 days stating he was approved and within 2 weeks we got a letter stating how much and when we will receive the funds. I have my fingers crossed that he will be back to work soon, but I filed just in case things…
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send prayers
please send up your prayers for my mom, Pauline, that her biopsy results will be negative!!! remember the biopsy in march was negative. Please pray this one is too.
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updating on Neil...3rd round coming up and ??
So, Neil has done really well with his second round as far as side effects, even better the 2nd time around! Less nausea and more energy this time. The 3rd round is tomorrow, but this past time the lymphnode changed shape and got larger, its over 7centimeters now and causing discomfort. When we saw the radiologist the…
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Cardboard taste ---soo early on- any advise
Ok I have been reading the posts but of course didnt think it would happen to me - 14 treatments 20 more to go- Yikes ==Yes taste buds gone ...harder to eat, anything else then salt water/baking soda and magic mouthwash to make things taste better???? Boy oh boy is has only been a few days of this and HATE it.... I really…
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Headaches?
Hi all, I have been getting intense, skull splitting headaches in the past couple of months. I completed chemo (cisplatin), radiation and a partial next dissection about a year ago. I have visited multiple different specialists and -ologists. Can't seem to find a lot of help for this. Have any of you had similar…
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Beginning radiation on oxygen 24/7
Hi, I am new here and writing regarding my husband. He is 5'5" and weighs 113 pounds. He has lost 7 pounds in the last couple of months and has recently been diagnosed with alcohol-related dementia (mild)and cancer at the base of the tongue with one positive lymph node. We were told that radiation is his option and it has…
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New Here-please give answers
Hello Everyone This is my first time on this site. My co-worker recommended. me here. Well here goes...I had tumor in my nasal cavity a while back. I did radiation and surgery to remove. Then have had 2 biopsies, negative. Well the doctors think the MONSTER is back in my eye now along the muscle according to ct mri. biopsy…
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I can't eat - tongue and inside of mouth is full of blisters
If anyone can give me advice: I can't eat - the tip of my tongue and the inside of my mouth is full of blisters caused by the radiation treatment. It is now my 16th of 35 rad treatments and my mouth is on fire everytime I try to eat or drink. Is there someone who can give me advice - will be much appreciated! God bless us…
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Clothing Swap
I'm on my 3rd set of clothing now as I have lost weight and bulk from treatment. I figure most of us have went down a few sizes as we went through treatment and like me have some clothing laying around that doesn't fit anymore and probably never will. Also figure there are some out there just wearing their too big clothes…
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Blood Clots - S**T!
My husband, halfway through treatment (38 rads, 3 Cisplatin) All going really pretty well...then BAM, a blood clot from the calf to both lungs. He now has a permanent vena cava filter and is struggling with breathing. On Lovenox injections twice a day indefinitely. He is nervous about his radiation treatment on Monday with…
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Mixed results ending with more confusion after ct scan
Hello Everyone, Well Connie got the results of her ct scan with mixed results. Her radiation oncologists told her the ct scan was clear but to come back in 3 months for pet/ct scan. She seen her main doctor (surgeon) the next day and she said their was a small lymph node that concerned her a little. She mentioned doing a…
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Black Salve
Hi all, I have been doing quite a lot of research into Black Salve in recent months. This stuff was also called Cansema by one manufacturer in the USA who was subsequently shut down and I think jailed with the help of the F & D A. The stuff has a very colorful history. He now does his thing from Equador. All that aside, I…
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My Daughter has a hard lump in her neck just under her adams apple
My daughter, 31, has a hard lump just under her adams apple a little off to the right. It doesn't move..but it goes up and down when she swallows. She said it has been there for about 3 months. No problem swallowing, no pain, etc.. we are going to ENT next wednesday but I am terrified. Jazz
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Keeping PEG tube dry
I just had my Peg tube "instaled" Wensday and one of the things they told me was while bathing I had to keep it dry as possible. While the nurse was showing my wife and myself how to take care of it she said when I shower to use a piece of the press and seal wrap for keeping food fresh over the top of it in the shower. It…
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loss of voice
my husband struggles to speak these days. He is very hoarse and has trouble getting words out. It started this week and we have 7 more days of rads left. I hope this is just temporary damage and will return to normal soon. BTW - It started on Monday when they started keying in on the main tumor on his neck.
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Keeping Score
I was sad to read the news: "Harmon Killebrew announced Friday that he no longer plans to fight his esophageal cancer and has settled in for the final days of his life, saddening friends and fans of the 74-year-old Hall of Fame slugger." But sadder to read the Yahoo link for it: "Hall of Famer Harmon Killebrew gives up…
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Tongue Reconstruction
I thought I was only going to have the base of my tongue reconstructed and found out my whole tongue is going to have be reconstructed. Has anyone had this done, what is it like afterwords as far as eating. Do you loose your taste and feeling or what? Help