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Head and Neck Cancer

Archives for April 2011

Congrats!! It's a ....TONSIL
Moms primary was discovered in right tonsil after tonsillectomy. We got the news today and are very happy! Mom was more upset that we missed Michael Douglas by 5 minutes today haha Radiation will start in about 4 weeks ...and chemotherapy? Apparently it's up to us!! I'm pretty sure my mom is going to refuse it but she was…
My Friend NED
After an excruciating wait of 7 whole days, my onc today told me that my recent MRI was NED. Yeehah! Please visualize me doing my 'happy dance'. It ain't pretty, but it is heartfelt. I had been having some severe cheek and ear pain the last couple of weeks and, of course, I was thinking the worst about 'the beast'. So, I…
Many Thanks to All My Friends Here!
Hey Everyone, I am not a very eloquent writer nor am I able to convey my feelings as well as many of you do here. However I do want to let every one of you know how important a role each of you has played in the last year of my life. From coming to the aid of those that are down (myself included) to celebrating the little…
LINK's 101 - How to make one...
For those that are interested and want to play with LINK's. I posted a photo of the code to one in my expressions...use the one with the blue background. I tried to do it awhile back, but it didn't display all of the code and now I can't delete or modify it... It's much easier to make that to try and explain it, LOL....…
Food and drink
I had left and right neck dissection and 95% of my tongue removed and replaced in July 2010. Along with chemo and radiation. The doctors let me start eating soft food about 2 weeks ago. Food taste about the same as it used too but nothing i drink taste good. Why does food taste about the same and drink taste so different?…
Head & Neck Screening
I thought I would share with you an article that appeared in our local newspaper today. THey are going to do Head & Neck screening at the Minor League Baseball game Monday night for free. This is the first time I have ever noticed any attention to Head & Neck Cancers. It is nice to see some progress. This patient had only…
Janymac- stroke damage
Having recently seen the follow up thread on 2011 roll call and finding no one has noticed that I am there - not sure if I count though as I am from UK, but find myself 10 years on from NPC with ever more problems when I am meant to be being discharged am being kept on the books. These last two years have brought very…
NED!
Had a CAT-scan yesterday. Results came back today. The Med-Onc did not use the term "NED", but said I'm "all clear". No evidence of the cancer at the primary BOT site, and the neck mass is gone. It is now a little more than two months since my last treatment. The last radiation was Feb. 7 and last chemo was Jan. 25. Still…
Cisplatin and Kidney problems - next chemo on the 25th kinda scared
My husband went into the hospital Monday with only 20% kidney function. He had chemo on the 4th. By the 8th he was heading down hill fast and on Monday he could hardly walk to the restroom. Like I said I took him to the doctor Monday and they admitted him right away and started IV Fluids. He was released this morning and…
Need Advice
Hey guys! My mom and I need some help. Have anyone of you experienced a complete change in personality after finishing treatment. My dad finished in June of 2010 and during the last couple of months has changed completly. He is very angry with my mother and yells at her all the time. He has no interest in doing anything…
rmkbrad checking in
Well the swelling in my neck has went down a little since my neck dicestion, I have a growth on my left ear tragus that is very painful. Last week I went to Reno to see a ENT and this guy really bumbed me out, I started to talk to him about my neck and how I am developing lympedema and would like some therapy for it and…
Anyone able to avoid PEG and feeding tube?
I'm just looking for some light. I'm in my second week of rads, which will last 7 weeks. Im eating regularly, but the taste has definitely changed for nearly everything, including water. I eat six times a day and understand that nourishment is necessary even if it doesn't feel great. This all being said, the nurses at the…
Update from the ENT doctor apt today.
Well the visit didnt go very well and as you all remember couple weeks back I asked about the blood in my heavy mucus. Well I showed a picture of the mucus with blood in it to my ent doctor and I told him I had I have been hacking small traces of blood up for a month. He told me I could have bronchitis or possible lung…
H&N Kit?
Hey Guys, I'd like to create a kit for the newly diagnosed H&N brothers and sisters in my area. Like a "You're not alone in this, here are some things that you will probably need soon" basket. Knowing that almost all will receive chemo, chemo/radiation or radiation and will experience some combination of side effects soon.…
Hondo up-date
Hi Family Just a little up-date on how I have been doing for the passed few Months. It looks like I finally got rid of that sinus infection that has been hurting me for the passed 8 Months; I am feeling good and having very light headaches now. In March my PET scan came back with a spot lit up as another possible recurring…
Our Neighbor
About a month ago, our neighbor came to the door to ask Glenn some questions. It turns out he's had a "swollen" gland in his neck for "a while". Long story short, he has SCC with an unknown primary. Just like Glenn and just about exactly 1 year after Glenn's diagnosis. We were shocked, to say the least. He came home from…
Problems with the Mouth??
I know this is a common topic, but I would like ask about some mouth problems I am having at the 6 mo post treatment (Surgery&Rads). My tongue and insides of my cheeks are so swollen, that I have indentations in my tongue where it lays in my bottom teeth formation. I have several bumps on my cheeks, almost like where my…
Husband just diagnosed with SCC - Base of tongue
Wow, my head is spinning! My husband (55) had a lump on the left side of his throat for about two months. General MD thought it was a sinus infection and put him on antibiotics for several weeks. Finally, we got into an ENT. He suggested a biopsy which we did last Thursday. We met with the ENT doctor today and he has…
Feeling Cranky.
I feel the most moody and cranky I have felt in a long long time. Wednesday the 13th is the anniversay of learning of Mark's cancer. Could this be making me feel this way?? Kim
need encouragement...mucous
My husband has 4 radiation treatments left and 1 cycle of cysplatin. The mucous has gotten relentless. It's non-stop and he just wants some relief. He's trying to get Mucinex down but a lot of it comes back up because of terrible gagging problem. He's getting a PEG tube tomorrow so we'll be able to get medications down,…
More questions..
I met with the medical oncologist today who confirmed Stage IV SCC (HPV+). He said the treatment course would be 7 weeks of radiation with chemo (cisplatin) on weeks 1,4, and 7. Sounds very similar to some of the courses I've read on here... so now here comes the questions. He did not bring up the use of a PEG tube, so I…
My One Year Exam
It was supposed to be a happy one but not quite. I was diagnosed SCC unknown primary one year ago this week and had a left neck dissection one week later with no radiation. Every six weeks I have gone in for a scoping and exam. Several months ago they had me go in for a BOT biopsy for something suspicous which turned out…
Update on husband who will not eat
I have just a few minutes. Took the day off and went with husband to radiation and to see his oncologist. He was in bad shape this morning. They admitted him into the hospital. I am on my way back to the hospital. Will update in a few.
still not able too eat
Well.................it's right at a year now since I had solid food........My throat is about the size of a straw..........swallow test didn't go too well.......now they are talking about swallowing therapy?????....Doctor said there was not a very big chance of it working and surgery might be necessary........My ENT…
thanks and not gonna be around for awhile
hey everyone, I would love to thank you all for all your advice and help during my treatment and recovery. I am doing well and I am ready to devote my energy and emotions back to my family. Things are looking up here and there has been no sign of regrowth. once again thank you so very much for all your support and advice!…
For Frank10g
Frank just wondering how you are doing it’s been a week sense your last up-date, and I am getting a little worried. Hopping all is well Hondo
My husband will not eat
My husband has no desire to eat. He amy eat a few bites of dinner and that is it for the entire day. He is drinking water. I have ensure and Carnation breakfast shakes. But, all he wants to do is sleep. I know he needs the rest. But, he needs to eat as well. No feeding tube at this time.. Is this normal.
Radiation "exit wound" hair loss/regrowth
Hey kids! I'm two months out from end of radiation and chemo,and the radiation (in addition to making a very weird growth/bald pattern in my beard) left a large bald spot at the base of my neck, from the hairline up probably 2" x 2". Looks like I started having convulsions in the middle of a haircut! Any experiences with…
Can you smell and taste the burn from radiation?
Connie was telling me today that she thinks she has a burnt taste in her throat, she also said she thought she could smell this sensation also. She is now 3 weeks out of radiation and eats completely with her peg, we have talked about her trying some chicken and stars soup but so far we have just talked about it. She has…
chemo/nutrition
My hubby is 6 days in on his chemo, which he is getting for 9 weeks. I am worried about his food intake, seems like everyday he can consume less and less food. The only thing that seems to taste good to him are popsicles. I have been reading the posts about peg tubes and I am wondering if peg tubes are put in place during…

Head and Neck Cancer

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