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When do they check your status?
I was wondering my husband is on his third weeks of rads and goes for his second round of chemo on Monday. Do they check during treatment to see if the tumor is shrinking. We were advised to not have surgery first because he would loose part of his jaw and most/all of his tongue. I sure hope this treatment works. He may…
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"So tell me, grey seal, how does it feel"
(Elton John reference, for a friend) I am not exactly sure what to say. Nearly a month since the dilation, which at the time and in the first week after seemed like a great thing, and now I am sort of worried about me. I do not usually confess such things, but this is real life and it is early in the morning and I have…
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Something is working
The Lung Doc said the tumor was 1/4 of its orginal size. Something is working. - Judy
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6 MONTH SCOPE AND EXAM IS CLEAN
I just had my 6 month scope and physical exam and all is good. ENT says I am "ahead of the curve" in regards to my healing. I have a chest CT and Neck CT scheduled for June 13th. The chest CT is to compare with a previous scan that showed a small something that the Thoracic Surgeon was convinced is scar tissue from…
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2nd belly button and more good news
Today the doctors removed the lymph nodes on the left side of my neck. (hurray)!!! It went exceedingly well. The Doctor made the comment that the nodes were not grown attached to the surrounding tissue. I am going to take that to mean that the cancer had not grown through the nodes into the adjacent tissue. Also he was…
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Good News
My husband went for his check up this week and all scans were clear!!! What great news! He had a radical neck dissection last May. Thought I should post this, its always good to hear good news about a survivor. I know I love to read about good results , it gives me hope. So hope this helps give others hope :)
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heading back to MI
Hi, My husband and I are headed back to Monroe, Mi. We have been here in Ocala, Fl since October when we found out that he had throat cancer. We have been through all the Rad treatments and Cemo, all the test. We want to go home, so tired of all this. The first of May he has his first Pet scan we don't care how it will…
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It was shrinking...
My hubby's tumor really shrunk after the first round of chemo, second round coming up in 6 days. The tumor is getting larger again, I noticed the other day and he noticed after shaving this morning. Is this normal, does it mean the chemo isn't working? He feels good this week though, he was able to work a full day…
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Lack of Knee Jerk Reflex - Thyroid Related - Another Radiation Side Effect
****Just Googled It****** I had this happen recently during my annual physical...thought it was strange that my knee reflexes no longer responded to the MD's rubber hammer tap... He told me it was a symptom from the malfunctioning Thyroid...go figure. I would never thought it could effect something like that, weird huh...…
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ACUPUNCTURE AND OR AURICULAR THERAPY FOR DRY MOUTH
Has anyone had any success with Acupuncture and or Auricular Therapy for dry mouth?? Thanks Mike
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Radiation and root canals
I know this is a really stupid question, but I have to ask... I'm 54, and I've never had a root canal in my life (lot's of fillings as a kid, though). I had radiation for base of the tongue cancer in 2009. Almost immediately after my radiation treatment concluded, I needed a root canal. I didn't have any pain, because I…
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Radiation and root canals
I know this is a really stupid question, but I have to ask... I'm 54, and I've never had a root canal in my life (lot's of fillings as a kid, though). I had radiation for base of the tongue cancer in 2009. Almost immediately after my radiation treatment concluded, I needed a root canal. I didn't have any pain, because I…
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Osteoradionecrosis (ORN) and hyperbaric therapy (HBO)
Hi! My radiation and chemo treatment ended 9/2009 for squamous-cell on the base of my tongue. I've lost 50-90% of my saliva production, and I've never recovered the ability to taste sweetness. A few months ago I experienced pain in my lower inner gum. Eventually, a piece of bone pushed it's way out through my gum. An oral…
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My scan outcome!
Well after three month's & a dirty pet/ct scan wich showed a nodule in my neck & two nodes in my Lower left lobe in my lung. We did a watch & waiit & a follow up ct scan it came back all clear. I just about fainted! I have been praying so hard & was so depressed I thought I would have to be committed!I had two bad cough &…
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Superthread????
Where can I find the superthread for head and neck patients/caregivers?
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Post Radiation Fatigue
I am starting to have a noticeable increase in fatigue and constipation 8 months post radiation therapy (without chemo). I was lucky to have only barely Stage II Cancer of the larynx. I am able to eat without difficulty and have maintained weight. I am seeing a couple of doctors over the next two weeks; and I know there…
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SIU School of Medicine in Springfield (Dr Robbins) for 2nd opinion base tongue cancer
Has anyone ever went to Dr Robbins in Springfield, IL for a 2nd opinion or treatment for cancer of the base tongue?
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Starting third weekd of rads and his throat is killing him.
My husband is on his 3rd week of rads and his throat is starting to tighteng up and he is having trouble swallowing food and pills. The doctor put him on morphine today and I believe the magic mouth wash. Will the narrowing of the throat get worse?
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PET scan results - excellent!
Jim's six-month post-treatment PET scan showed no cancer anywhere! Praise the Lord!
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Please pray for my dad
hi guy, not sure whether u all remember me. i posted somewhere in Jan saying that the beast had invaded in the my dad lung but doc need us to go for biopsy to cfm. But after some discussion we decided not to go for it till recently my dad was dx with Pneumonia and again the doc strongly advise us to go for biopsy. well, we…
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Base of Tongue cancer
My mom is 65 yrs old. She was just recently diagnosed with Stage 4a squamous cell carcinoma of the base of the tongue. The tumor is 5cmx4cmx2cm and is on the left base of the tongue and extends into the tonsil region (the tonsil was clear). She has been having throat and jaw pain for 3 yrs and has been to the doctor 10…
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Need good dentist
I live in Utah and I really want a dentist with experience with radiation to the mouth. If anyone know anyone in Logan, Ogden, or Salt lake city utah I would love information. Or if you ask one of your doctors. I've heard so many great things about Dr. Anderson and I'm curious if he would know anyone in Utah. I'm just…
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Ebert speaks
I think I promised to quit doing this since I don't like it when other people do, but this was just so evocative that I have to post the link. Please know in advance that it is a 'speech' by Roger Ebert and friends at a TED convention, and that some of it may seem to be more about technology than what might be of most…
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Throat feels swollen on the inside
I had a neck disection on 3/28/11. I feel like the inside of my throat is swollen and I'm being choked. It doesn't look swollen on the outside. Is anyone else having this problem? Any suggestions on what can help?
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Odd side effect? My tongue is killin me...
I was wondering if any of you have advice for my most recent side effect. I just finished my second week of rads. I have been able to tolerate the pain in my throat relatively well, but my tongue is another story. It feels like I poured boiling water over it and it really effects my eating experience :) and sleeping. Has…
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Sleep
I still have my Peg tube going on 6 mounts 5 mounts after Rad my thing now is I cain't sleep 1 1/2 hours last night do you think I am tube feeding to late or what.
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Things that sting (and go bump in the night?)
My husband, Buzz is 3 months post treatment. Some foods still sting but we discovered Hidden Valley Ranch Dip mix. Mixed with sour cream and thinned with milk, it is much more tolerable than any dressings he has tried. It seems every salad dressing has vinegar and/or lemon juice in it and he can't tolerate them. Also…
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HIGH ANTI OXIDANT DRINKS / JUICES
Has or is anyone buying any type of high Anti Oxidant drinks "off the shelf" at grocery or supplement store? I have a friend at my gym who is a Monavie distributor and says it is the best. I just don't want to get caught up in any type of high priced "snake oil" stuff. I am also not real interested in juicing fruits and…
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Another all clear, well kinda
Hey everyone, Saw the scope master today and got the all clear! But, he said my tongue looked too thick at the back. So here we go again for a Panendoscopy to "look around", and if needed do some biopsies. He said my scan lit up at a 4, so he just wants to make sure. Yeah O.K. He also said my anxiety level about this…
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I feel like I know you already...
Hello everyone...for the past six weeks I have been searching on line for the right place to learn from and ask questions. I think this is it! Just from "creeping" (as our kids say about checking out facebook) I feel like I know many of you. My husband has just started treatment for tonsil cancer - his first chemo…