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PET Scan
Hi to all of my friends!!! Sorry I haven't posted but it is good to finally get a chance to be here again. Had a Pet last Friday and now comes the wait. I have something going on in my neck and I can feel it so I am pretty worried. I have terrible problems with the atrophy in my right shoulder, and of course I still think…
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Help. My dad has been dx. with stage 3 metastatic squamous cell carcinoma
He will start chemo and radiation next week along with a feeding tube. Any advise would be very appreciated and helpful. What do I and my sisters need to do for him and my mom to ease the pain, fright and what lies ahead. Would love to hear from survivors and what you or they went through, experienced and what helped you…
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Losing weight
Tried to quite the feeding machine and lost 7 pounds since last Saturday. I can not drink enough carnation breakfast drink in a day to maintain my weight. I need 6 cans a day and only get about 3 or 4. I feel to bloated. I went 7 months with nothing by mouth till Saturday. How long till the bloating feeling goes away?…
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CT Scan
Hello all! This Monday I have a CT scan, I'm just wondering, what are they looking for? Does it show up if there are cancer cells left? It seems a little pointless since the initial PET scan didn't even show any type of cancer activity, yet the did rad/chemo anyway? Just wondering!
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Radiation?
I was diagnosed with scc 2/17/11 right tonsil, had a tonsillectomy+, modified right neck dissection at Mayo clinic on 3/4/11. Right tonsil tumor 4.8 cm hpv+, left tonsil clean, 39 nodes removed, one node tumor 2.8cm no extracapsular ext., other nodes neg. Surgeon is not recommending rad. and wants to see me every three…
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vocal cord scarring
I don’t see too much about vocal cord scarring post radiation therapy on this site so my situation might not be common with us. I still thought I might share this with you in case anyone else has similar problems and just has not spoken up yet. I am a bedside RN in a hospital but I am constantly finding out new stuff about…
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Waiting......
I just realized that it is only 9AM into a Saturday and I am already two beers into the day. That is very, very unlike me. I am very stressed because I am waiting for the results of my Thursday MRI scan and I am having lots of facial/ear pain that is making me very apprehensive of the results. I am a generally positive…
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Newbie
I want to say thank you to everyone for all the helpful information on here. I've been reading through posts for days now soaking in all the great information. I was just diagnosed with SCC (HPV+) with bilateral lymph nodes involved. From what I've been able to find, I'm guessing it will be Stage IV. The ENT surgeon told…
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PEG Tube 101
My wife is a Wound/Ostomy/Continence Nurse (WOCN), commonly referred to in my part of the country for whatever reason as an ET nurse. My doctors knew her well preceding my introduction to them, and took her advice regarding my wound care, and expected her to continue that care when I came home. Me, I had a PEG tube for…
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twice a day radiation
Has anyone had radiation twice a day. If so, how was youe experience?
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Clinical Trial for newbies only-No previous treatment
Anyone just starting out and not yet treated this would be a great clinical trial to get involved in and potentially increase your chance of survival. It's called, :IT-MATTERS phase III Global Clinical trial for head and Neck cancer". 1-703-506-9460 or www.cel-sci.com or visit clinical trials.gov NCT number NCT01265. It's…
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whats your cancer fight song.
I think everyone who has to do treatment should have one, heck even if u don't have to do treatment. What's that song that gets u threw the Monday radiation session? I have a couple,my main one is The killers-sweet talk. The nurses who gave me radiation always played me the same cd and when I was about 5 minutes away from…
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Ear Noise
Hi there everyone. 3 WEEKS POST RADs (35+ 5 weeks erbitux) Wifey complaining of a dull kind of "grinding/thud noise" in her ear. Had an ENT "look in ears" check up, and said everything is clear, no blockage. visible? ANY FURTHER suggestions? Happy Easter to you good folk Clear
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(First of the Chemo)Husband with SCC and constipation from pain meds
Hello everyone, I am thankful to have found this website. My 40 yr.old husband was diagnosed with stage 4 SCC with unknown primary about 5 weeks ago, he underwent lots of testing and a tonsilectomy with other biopsies. His right lymphnode seems to be the place of action right now measuring in at 61/2 centimeters. He had…
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I hate dry mouth!
Has anyone tried ethyol to combat dry mouth? Brian
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Only week one...nausea and fatigue...does it get better?
I dint expect the first week to be so challenging. I am 38 and had my hpv+ tonsil and lymph nodes removed a couple weeks ago. This week I started the "clean up"...looking forward to 35 rads and 3 cisplatin over 7 weeks. The doc said the that the first two weeks would be easy, but the nausea and fatigue have me coming home…
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How many of you have been stuck in bed during treatment or recovery and have watched shows that u wo
I watched everything, Teen mom, zeke and Luther,Dr.Phil, naurto,I carley.lol tell me some of yours.
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Cured?????
Hi Everyone! I am on my way to my scans at Mt Sinai. I was found NED in November 2010, so this will be my first scan since that wonderful news. I received a call yesterday that although I am scheduled for a PET/CT, my insurance company denied the PET stating it was not medically necessary. I was shocked, and as I spoke…
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Cisplatin...2 or 3 treatments
First of all, thank you to all of you for "existing" on this site. Coming here has truly helped us begin our battle with this cancer. My husband, Andy, was diagnosed with tonsil/base of tongue cancer. He had robotic surgery to remove his tumor and a neck dissection. He has completed 23(out of 30)of his radiation treatments…
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Mouth Odor Post Left mandibulectomy
My father had his left mandible and his left upper and lower jaw taken out and cheek reconstructed with a muscle form his right thight. he is 2.5 weeks post surgery now he is able to talk and his trac is out. However, he has a very noticable mouth odor when he talks ven after mouth washing with baking soda and salt water.…
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Spicey Food or things that burn my mouth...
Question for long-term post radiation patients: Will I ever be able to eat Ketchup, Tex-Mex, or anything acidy again?? Is this due to the lack of saliva? I am currently 5 months post radiation.
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Am I the only one terrified of the nasal scope?
Hello everyone...I am new to csn and appreciate all the positive feedback. I finished my radiation and chemo on 2/01. I was diagnosed with stage 4 scc of the tonsils with one node involved.I am feeling better these days but wish my taste would come back faster. I have a huge appetite but can't taste to much yet. It is…
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Finally I got to meet NED
Hello to All, Yesterday I was introduced to NED. After the introduction NED and I went to Louisville Ky to see my favorite band RUSH to celebrate. Peace to All Mike
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hiccups for 5 hours straight
My husband has had the hiccups for the last 5 hours. Has anyone else suffered from this? If so, what did you do to make them go away?
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speaking problem after surgery
hi everyone i was diagonsed with carotid body tumor, i under went a surgery on 23rd of march 2011. but after sergury I was having swallowing and speaking problems. the swallowing problem got better but my speaking is a bit of a problem my volume is very low. just wondering if any one could help me with it or if any one had…
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question about finding a new job while in remission of cancer?
Hey Guys I don't know if you guys would be able to help me or not but if I was to go out and find a new job and get a interview do I have to say anything about my cancer status etc.... since I have doctor visits for next 3 years? Thanks Tim.
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Pet/Cat scan question
I had stage 4 tongue cancer and cancer in my lyphnodes now they say i am cancer free but i did not have a pet or cat scan all they did was x rays of my chest. They said that i had to much swelling in the other parts of my body to do the other test. They said that with my cancer the next place to have cancer was the lungs.…
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Soup or Thread....Superthread
Dawn, you are doing great on the Superthread..... It's coming along nicely and beginning to look really polished....are you sure you are doing this all on your iPhone...dang girl, that's impressive...just imagine if you had a computer, LOL.... Best Bud, John
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I am worried.
My husband has been on pain meds for over a month and started using the pain patch 2 weeks ago and he just started chemo and radiation yesterday. And from what I have read, the pain is going to get worse. His throat hurts all the time!!!!! Especially since they did the biopsy. I don't know how he is going to handle the…
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Eating Question
I had squamous cell cancer on the tongue and it was stage 4. I had 2 neck dissections and 95% of my tongue cut off. They used my thigh to replace my tongue. This was in July of 2010. I am supposed to be cancer free now. They removed 8 cancer cells from my neck also. My question is. I can finally start eaating soft stuff.…