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Head and Neck Cancer

Archives for March 2011

My husband has been diagnosed with 4A Throat cancer.
My husband has just been diagnosed with 4A throat cancer last month. He will start chemo and radiation on 4.4.2011. Any advice before we start our treatments.
Just diagnosed with Mucoepidermoid Carcinoma of the Larynx
Hi I am new here, I have recently been diagnosed with Mucoepidermoid Carcinoma of the Larynx. Does anyone here have this or know anyone who does? I most likely will be having my larynx removed and following up with rads.
PEG Tube
So I had surgery today to have PEG tube put in and had a question for anyone that had this done. I am having fluid come back into the tube. I have not used it yet because can eat and dring at this time but it has filled up the tube approx 12". I was just wondering has anyone else experienced this and if so is this normal?…
To much pain
I don't know what happened this weekend but the pain factor just got multiplied by alot, I take liquid oxycodone and it does help but the pain is so intense that it makes it hard to function. I had my partial neck disection done 3 weeks ago and all I can figure is the fluid has moved from my jaw bone are to under my chin…
recently diagnosed mucoepidermoid carcinoma
Hello. I have recently been diagnosed with mucoepidermoid carcinoma of the parotid gland. The pathologist said it looks like intermediate grade, but the doctors would like to treat it as high grade because it is affecting at least one lymph node and has invaded my facial nerve on that side. They are planning to fully…
When do I take my peg out?
Hello everyone.. I finished 33 rad treatments and 3 chemo rounds for stage 4 scc of tonsils on 2/01. I am going for 90 day pet and ct on 4/25 and my DR doesn't want to take peg out until I get results. Is anyone in similiar situation? Thanks...Paul
Anyone like me?
Can you tell me about your treatments and side effects? I am 38, eat healthy, and exercise 6 days a week. The doc told me that I would handle the 35 radiation treatments and cisplatin well, but I read many horror stories. Im nervous about the long term effects of dry mouth and my thyroid ..please elaborate on your…
My doctor just told me the strangest thing
. I went in for my 6 month check-up and she did all the normal things, mirror down the throat say eeeee, looked at my charts and then said I was cured. I never associated the word cure with cancer before, took me all day to say she is the dr. and run with it. So I guess for now I dont have cancer. I dont post often because…
Power of Prayer-Thank you All!
I wanted to say "Thank You" for the many prayers. I had posted recently inquiring about pet/ct/mri, because I had a new lump on my neck. Seen the ENT today and he defined it as my salava gland, and not a lympe node. I also had developed some mouth sores, which only added to my anxiety. He was not concerned about them…
To Radiate Or Not To Radiate That Is The Question
I posted here about a month ago and a great many of you responded to my questions and offered some very good insight and now I'm back. I had a "radical" neck dissection on March 9th and now I am in recovery. According to the ENT surgeon, he got 99% of the cancer in my neck and the doc's did locate and remove the source of…
"War of my life"
Hey everyone, just wanted to say hi. Last week was a year since my diagnosis and I have an upcoming PET scan (date to be determined pending insurance approval). Though I don't post on here often I do check it almost daily; keeping up with how everyone else is doing. I am very thankful for everyone on this board and the…
What a Long Strange Trip It’s Been
I don’t post very much or very often. I’m more of a “lurker” ‘round these parts. Because of the people on this forum, I’ve had my hopes bolstered, fears quelled, and most importantly, a TON of questions answered. I hope what little I’ve posted has given one or two of us strength on this arduous journey. My journey took a…
Pain after neck dissection
I am the care giver of a head and neck survivor. My husband has been battling this disease since 2006. He had a recurrence and had neck dissection in May 2010. It has been 10 months and he is in constant pain. On pain medication 24/7. Has anyone else had this experience and will it eventually go away. He is getting…
Losing my mind with fear
Well, I've had 3 radiation treatments and my mouth is soo dry and last night I couldn't eat because everything tasted so bad. I just want to cry all the time. My husband, who loves me beyond anything I could ask for just keeps telling me to stop dwelling on things. I really need some advice to do this. I just keep thinking…
NED is in the house!
We got a visit from NED yesterday!... 1 year of Ned in our lives! I LOVE NED! Wife
Cousin
He's not one of us, but thought you might be interested in my Cousin's story. About my age (56), he was a heavy drinker and smoker. Couple years ago developed problems swallowing. Dr. kept telling him it was acid reflux, until last fall, when a tumor was found. Getting the correct info from him has been difficult, but it…
Ultrasound after neck dissection?
Doug is having a lot of nerve pain after his neck dissection - they didn't cut nerves, but they did move them out of the way to get at nodes. The right side of his face is partially paralyzed (the ENT is sure this will fade in a few months) and he gets stabbing pain in his ears sometimes. Massage to get rid of the…
FATIGUE
I am 5 Months post treatment and still have some days where I cannot get out of bed. Not depression, physical exhaustion. It happened to me today, I set my alarm for 6 am and re set a few times and did not get out of bed until noon. This is the 3rd time this has happened in about 5-6 weeks. I must have totaled 14-15 hours…
FNAB, result
OK, my biopsy result of tumor in parotid gland: Cellulae neoplasmaticae, adenoma pleomorphum sialogenes I googled it is a tumor mixtus. My question: I read that it is a benign tumor, but sometimes it can transform to malignant tumor. Is biopsy able to show whether it transformed to malignant or not? Thank you,
Every cough, sniffle and sneeze
So I'm roughly five months out of treatment, yea!, but in that space of time I've had two head colds, both of which have lingered for a delightful 2-3 weeks. Keeping in mind that I have a small child in school, who brings home just about every germ imaginable, and I take the bus to and from work every day. Yes I wash my…
permanent tattoo from mask?!?
As i cannot sleep once again.. i decided to whip out the little " HN radiation manual" we recieved today at the docs... " the therapist will draw on your skin with a felt marker. then they will make PERMANENT markings. These may be placed on your skin. They are made with a sterile needle and a drop of ink. The felt marker…
No chemo! YES chemo! .. No surgery... yeaa you need surgery!
Just sharing ... Mom diagnosed with SCC 1 lymph node, no primary yet, PET/MRI negative. We met mom's new radiation/oncologist today ... ( she is new because we switched our care over to another hospital) The great news is that I LOVE HER. Did not like the other rad doctor. i have also spoken to some previous patients of…
Chef Daddy Mike
I talked to Mike yesterday and he is doing really well, his intestines are working and he started to put on some weight. I asked Mike what happened he said he is not too sure but a few weeks ago he drank a few beers and the next day had a bowel movement, so he tried it again the next day and the same thing. He told his…
2nd Pet/Scan?
Hi everyone. Yes, I check this site regularly; but don't say much at this point. I guess I'm like Kristen and am trying to keep away from the depression and flashbacks! Plus i don't want to jinx anything. I was wondering about the time frame between Pet/ct scans. I had my initial post (baseline) pet scan back on Oct. 4th.…
GOOD news today.....
My PET results came back and I am officially free of Cancer...... Still have alot of healing to do and will probably need throat surgery before I can take in solid food,but I am pleased with this news..... Life is getting better......... :o )
CT results
I would like feedback regarding results from the first CT after chemo and radiation. Dad had a large primary tumor at the base of tongue with lymph node involvement. The oncologists seemed pleased today with the CT report that the primary tumor had decreased significantly in size and the largest lymph node had as well. Dad…
Blood transfusion
Low blood counts so looks like will be having transfution tomorrw. Are there sometimes reactions/effects to keep an eye on as a result of transfusions besides obviouse improvement in counts. Clear
PET-CT SCAN, MRI -Looking for Input
I know many here are quite educated on the differenes of the Pet, vs the CT, vs MRI. I know how each is performed and how it looks at area. My questions is regarding "False reads". I finsihed treatment in November, and now have another lump on my left neck. I see the ENT on Monday and suspect he will order some test. I am…
Please say a prayer
Dad goes tomorrow for his first CT scan since treatment ended in February. He had the feeding tube removed today so we are happy about that. We will be much happier if tomorrow's scan shows that the tumor is gone and the lymph nodes are clear of cancer. I am so anxious and scared, but I am thinking positively. I have…
I need help and advise ( SASH and SOCCERFREAK)
Hello everybody. Well, I went in for results of biopies Monday. NOT GOOD. My ENT says that everyone came back positive. That's about 7-8 he did. Side of tongue, BOT, voice box, palette etc. SOOOO, he says my choices are to opt for quality of life, live at home with hospice care and chemo. Till God says enough...come home.…

Head and Neck Cancer

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