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Free on-line workshop FYI
From my daily newspaper...."CancerCare will provide a free professional support service workshop this Wednesday, March, 23rd 2011 from 12:30-1:30 cdt. for people with cancer, caregivers, and other loved ones on the subject "Advances in Treating Chemotherapy-Related Nausea and Vomiting". Access by going on-line at…
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hacking up small mounts of blood and it can be see in very thick mucus
Hi Guys about 2 mins ago after I got done eating some food and I was hacking up some mucus and when I spitted it out onto a paper towel I seen small mounts of blood. I am about 6 to 7 months post treatments of NPC and I want to know if I should be worried about because I started to notice the past 2 weeks there as been…
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RESTLESS LEG AND ARMS WHILE TRYING TO SLEEP
I am experiencing almost on a nightly basis a restless feeling or even a "funny bone" type feeling mostly in my left leg and left wrist. I typically experience this "jolting" in my ankle and knee and then up in my left wrist. I can take a little liquid Oxy. and about 45 min. later it stops. Can anyone offer any insight to…
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Seven Months
Hi all: Basketcase here. Just felt the need to post this. It has been seven months today since Charlie passed away and I had to make the tough decision to put down one of my beloved Shelties, Blue. I think I may have mentioned earlier he was not walking well. Well, he got to where he couldn't get up and I had to carry him…
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introduction and question
Hello to all, i have been lurking here during treatment. (35 rads and 3 chemos)i thought that introductions were in order plus a quick question. I am about 2 months post treatment. stage 4 left tonsil, and several accompaning lymph nodes. heres my question, i have small clear blister that are repeatedly coming up on the…
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Puzzling Pet
Buzz just received the 1st PET results post treatment. The base of tongue tumor is gone (Yipee!!!) but there is a lymph node (near the carotid artery) in the right neck which is "metabolically active." This node did not show up in the pretreatment scan. What does this mean? Anyone have this experience? The Oncologist is…
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APPETITE
Hello all and hope all is well with you. I no longer have my PEG, and was eating while I still had it. My question is "where did my huge appetite go?" Food that I can get down with no problem that tastes reasonably good can only be eaten in a small quantity. I can think of the last time I at an entire normal plate of food…
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Why I don't come by as often as I should..
Hello everyone! I hope everyone is doing well and in high spirits! I know I don't visit as often as I used to, I wonder if anyone will understand this.. Do any of you guys get "flashbacks" I guess you could say? When I come to this website it makes me think of how horrible I felt when I found you guys. It reminds me of how…
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stereostatic rad therapy
The last pet showed hyppharingial squ hence thepresent RT TO NECK. but it also showed a spot on the lung. They decided back then to use steriostatic rt when the present neck rt is done. Anyone know of this type of RT? Clear
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Prayers requested
Hi all: Basketcase checking in here! Would like to request your prayers for a lady in my church. She sat next to me in the early service yesterday and requested our prayers as when she went for her "welcome to medicare" physical as she called it and they did a chest x-ray; they found a mass in her one of her lungs the size…
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News from Rabarbar
OK, I have done a FNAB biopsy (tumor of parotid gland) today and I am waiting for the result. Probably I will be the most difficult week in my life. There are two news: one bad, one good: * The bad is that the tumor is located very deep in the gland which means that the surgery will be more difficult because of the facial…
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lips
Does anybody know what would be a good lip balm, my husband has very dry lips, I have tried burt bees lip balm, but he saids nothing I have tried has helped him?
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Cat scan and video
Went for a six month Ct scan on Friday, will get results tomorrow and have a viseostrobe. Not very confident with this as I have developed a cough and have some ear pain.
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supraglottis cancer
Has anybody on this site ever had supraglosttis cancer?
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Food for thought
Those who have been around here awhile know I am not a fanatic for fads. To my mind, you go with the proven and you go aggressive, and you get rid of the cancer if you can. When people talk about changing diet, for example, I have generally shut down. But when I'm wrong (or might be wrong), well then, I'm wrong (or might…
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Caphosol
I am done treatment and have some Caphosol RX that I did not use and do not anticipate needing. As this is a costly RX does anyone know of a place I can donate it or if anyone has an RX that cannot afford the cost of Caphosol (if you insurance does not cover it) I am happy to send it to you provided you have an RX from you…
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No go for removal of tumor, Rads next
Well I had my surgery yesterday which was suppose to take out my supralaryngeal tumor with the transoral robotic surgery at Mt. Sinai with a neck resection for the two suspected nodes. They had to put the breathing tube in while I was still awake, real scary but the anesthesiologist was very good, used a ton of local and…
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Looking for some advice
Sorry it has been a while however life has been a bit hellish and we don't feel like we should post if we can't give back somehow. First of all this is an incredibly awful way to get better and the treatment sucks! This is Robyn, Rons wife, I am posting as Ron is too sick. He is currently in the middle of treatment. He…
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eating
I know a lot of us have experienced mouth sores. For me round 2 is worse. I do not have a feeding tube, they haven’t mentioned putting it back in. My nutritionist suggested feeding myself orally with the syringe to avoid the mouth sores. It seems to work. Don't have to use sore tongue.
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Extension of NJ Temp Disability Benefits
Hello, Does anyone know how to receive additional NJ State benefits once the 26 weeks of temp disability benefits end (I was told no extension). My husband is still very weak, cannot eat, and barely talks and so cannot return to work, he needs about another 3 months. The SS or disability benefits don't apply because you…
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110.7 Yippee skippy. :)
Well I had my check up with my RO. I was shocked when I stepped on the scale. I definitely did not have to wear 6 layers of clothing, boots, and have a pocket full of pennies this time when I stepped on the scale. Dress and heels. 110.7 Much better than 87 pounds. :D He gave me the old scope-a-rooni. Looked and felt around…
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eye side effects
I was just wondering if anyone else has had problems with their eyes after undergoing radiation to the face and surgery. My mother's left eye (which is the side where the cancer was) still waters quite a bit, and itches some 7 months after radiation and 9 months after surgery to sinuses. It doesn't hurt at all, just…
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Surgery....Postponed!!!
A very brief summary of the past 2 weeks: 7 month post rad/chemo PET/CT scan shows a hot spot at original cancer site on BOT. Surgery recommended. I continually inquire about the possibility of 'false positives'. 2nd and 3rd opinions: Scope looks normal, physical exam looks normal, PET/CT looks not good. MRI recommended to…
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Woooppie
Hi all, Just woke up. And back yo sleep real soon. Biopsy today. I don't know what they used but higher then a kite, sleepy and lots nausea. GEEEEZZZ Anyway, Gotta love those pain pills. LOL. My ENT used me as a pin cushion. I don't think he missed a spot. Soooooo, pill time and back to lala land in 10 mins. but I missed…
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Vomiting/Diarrhea--6 Weeks After Treatment
Hi Everyone, This site is great and full of helpful info. I just joined. My husband, 45 yrs old, finished 33 radiation treatments with 3 chemo rounds for SCC stage 4 in tonsils. He went to Sloan Kettering. My question is that he is now 6 weeks after treatment and he is now suddenly vomiting/diarrhea and cramping. He does…
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bilateral carotid body tumors
Hello! Please if anyone had bilateral carotid body tumors resection which were the complications after, if any. My husband (34 years old) did a surgery 3 years ago for resection of a carotid body tumor on the right side and about a week ago a new carotid body tumor on the left side was discovered. We have read some studies…
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hair loss & radiation Does it grow back?-
Anyone lose hair owing to radiation only? and does it grow back ? Clear.
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natural/alternative treatments?
Where can i find real information on natural/alternative treatments or supplements? Has anyone opted to not do chemo/radation and try alternative therapy? What are your experiences? What about vitamins/supplements/alternative treatments to combat side effects of radiation?
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Second bellybutton club
Glenn joined the second bellybutton club today. He had a lady nurse practitioner yank his PEG tube out this afternoon. He said he was shocked when a lot of air came out with it. I asked him if he felt like he might fly around the room like a popped balloon. Scope last week, everything still looking good. PET in July at the…
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Good News!
My mother's biopsy showed no evidence of cancer! The ENT said they want her to come back in 6 weeks for an MRI to see if there are any changes. if there are, they'll do another biopsy. I'm not even thinking that. For now, I'm sooooo happy and so is Mom! Thank you all for the prayers. This site has been my lifesaver in a…