Head and Neck Cancer
Discussion List
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Back from 2nd trip to his folks
Hi all: Basketcase here! Got back Sunday night from NC. This was my second trip in to Charlie's folks since his passing. It still is hard initially but I made it. Got my mother-in-law's decorations up for Christmas. My father-in-law is having a rough time as we approach the holiday season (like I'm not!) Nothing's the same…
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the check up with the chemo doctor yesterday
Well I got good news from yesterdays chemo doctor visit and he is happy that I did gained 2lbs since I seen him six weeks ago. So no feeding tube needed and I asked the chemo doctor if the NPC would come back and he didn't have a clear answer on that but he did tell me that I would have to have PET scans every 6-8 months…
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scared...my dad was diagnosed with stage four
I am so glad I stumbled upon this site. My dad who is 67 was diagnosed with Stage four base of tongue cancer on Friday. Immediately I was devastated and everything I read on the internet was Doom and gloom. So good to see that there is hope. I really need A site like this as I am alone in this journey with my dad And I…
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Strange Sensation in Throat
OK In April I was diagnosed with SCC unknown primary with 1 lymph node positive with no extracapsular spread. I had a left neck dissection and tonsils removed. I have had no further treatments but lots of exams and a BOT biopsy. Lately I have noticed a new sensation and was wondering if anyone here ever felt something…
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starting to get a thick coating in mouth
I just finish my 8th rad treatment. My mouth is starting to get a thick coating. I have no pain yet. I know people on here have diffrent rinses that they have used. Please share any recipt or products that you may know. Thanks Mike
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Cancer coming back ??? Angry now
I havent been on here for a while, was busy dealing with chemo & rads of which i recently finished 4 weeks ago. On 26th July this year,I was operated on for cancer in the mouth, they dug a big hole out of my mouth and took some skin flaps from my left wrist to fill the hole, i spent 3 weeks in hospital,then 2 weeks…
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Update from Marc in Washington DC 4 1/2 weeks after last radiation treatment for Stage 4 SCC in Tons
Greetings and Happy Thanksgiving to all. I had my 34th and last radiation treatment on October 22, and today is November 22. My treatment began June-August with four treatments of Cisplatin, Taxitir and (for 72 hours via infusion pump) 5FU, 3 weeks apart, over 12 weeks, followed by 34 radiation treatments between early…
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No need for pet scan
I went for my three Month check with scope and fingers. Doc said all looks good. It's funny how you have questions but some take time to ask. I guess for fear of the answers. But I finally asked about my staging for tonsil cancer which was stage 2. T1n1mo. Does anyone know about this info. Also I asked about when my next…
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New problem
David has several pretty good size "looks like blisters" on the very back of his tongue. Very painful and burns him to even drink room temp water. his progress with eating has stopped. It is on the opposite side of the throat where the tumor was... Could this be the worst and be c back? or could it still be the radiation…
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18 month PET
Got my results Friday for my 18 month PET .Dr said all is still clear-see me in 6 months.Keep the faith,newbies,we are survivors on this board!I am doing better than I ever would have believed a year ago.Enjoying all my Sicilian foods I so missed-had a wonderful Braciole tonight at a new restaurant.Best to all. Bob
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Removal of Jaw and portion of tongue, anyone?
any information would be greatly apprciated
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Im Dancing
Appt went good. Doctor told me those words we all love to hear.. You are still cancer free. Still have to go back in 6 months, but thats okay. I was reminded that peace of mind is priceless, so Im okay with going back in May. Not only did I get a clean checkup, I spent 6 hours at the Galleria Mall... NOW THATS FUN! Thanks…
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Dad biopsies in August good, biopsies taken last tuesday bad.. confused, angry.. pls help
hi my father was diagnosed in february with stage 4 tongue cancer, which we were told was agressive.. we opted for option b which was radition and chemo, 2 rounds of induction chemo..finished treatments in june, biopsies in august clean! instead of the surgery which we were told he would lose all of his tongue, jaw and…
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Blood Transfusions
My mother was diagnosed a few months ago with Stage IVa throat cancer. Since then she has undergone 33 rad treatments and only 3 cisplastin instead of 6 due to her blood levels dropping. She was admittfed on wednesday for the 3rd time due to dehydration. Her body is rejecting any form of nourishment regardless of what…
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Return to work
So this last week my boss contacted me about trying to return to work for a short time to prevent the company from firing me. The company I work for has a policy to hold your job for one year, if I go back for one week it will reset the date. The problem is, I have a really bad feeling about going back. I love my job, but…
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Mayo Clinic, Hondo & NED all go together
Well there is some very good news from the Mayo Clinic. They did a biopsy on me and it came back NED for any C, they still want to review the MD Anderson PET scan for a final judgment but as the doctor said with the biopsy being negative on any cancer she don’t think anything will change. As far as to why I am in so much…
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Good luck to Hondo...
As a new timer as of today on this Board i am an old timer for my cancer (at the base of my tongue}.. almost seven years ago and feel so at home reading all the problems we have and are going through..The radiation killed my cancer but at about five years out i found that it killed the lower left jaw bone so i had to have…
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The Roller Coaster Ride - Biopsy after Biopsy
Any suggestions on dealing with the roller coaster ride of waiting out biopsies. I had tongue cancer about 7 seven years ago. In the past few years I have had spots come and go. Some on there own and others surgicaly removed. I have been pretty lucky the worst they have come back was inflamation. The last time back in June…
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Micheal Douglas
I was trying to find that post about Micheal Douglas but I cant find it but anyways I just got back from dollar general picking up a few things and I was waiting in line to get checked out and I seen a newspaper saying Micheal Douglas only have 3 months to live and he at 139 lbs. Let me tell you he doesn't look the same…
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Eating, the Aftermath
So, here is the aftermath and the final word from me on the subject (for now). Even when it seems like the end of the world, it is not. Remember that I had my surgery in October of 2005, more than five years ago (followed by chemo and rads), and am only now, for whatever reason (and I sincerely do not know why) getting it…
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Eating Part 3 (I lost the middle part)
So. Something happened. Recently. Don't ask me. I don't know. I will never figure this stuff out. Something happened. All along, I have tended to be rather scientific, which drives my wife nuts (see the above, or the previous, as the case may be)... analyzing the texture, the heat, all of that sort of bull, trying to…
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Eating Part I
It's a bit boring I know, if you are a regular reader (and who isn't?) but I have to go over a bit of the history in order to get to where I am now. Once upon a time, oh, five years ago, I guess, I was told that I had cancer and they could do some wonderful things with my tongue and nerves and maybe I could be the man I…
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Dentures
I have a quick questions for those of you that had dentures prior to treatment or need to get them after completion. My dad has had dentures since he was in his thrities due to a car accident. He had to stop wearing them prior to treatment because of pain from the cancer. He know is wondering when he should get new ones.…
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2 year checkup
Im leaving early in the morning to MD Anderson for my 2 year check up. Still going every 6 months for check up, so Im hoping I have graduated to once a year. Say a prayer for a clean checkup. Sirena
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MY FIRST POST TREATMENT DOCTORS VISITS
Hello and hope everyone is well today. I met with my medical team today and looks like my healing / recovery will take longer than I thought. My ENT scoped me and is very pleased with all of the surgical sites and did not see anything of concern. He also looked at my vocal chords as he was surprised I still have no voice.…
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I went to my ENT doctor today
Well today I went to get my post check up with the ENT and I also had my hearing test done. Lets say I pretty much failed the hearing test with the low and high pitches I cant really hear so my ENT doctor wants me to get hearing aids due the mount of damage was done with chemo and radiation and ENT doctor said the hearing…
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NO C !!!!!!!!
Hi again to all, First, let me thank you all for your well wishes and prayers for my wife. Just got the pathology results and NO CANCER! She told me what they said it was but I don't remember anything she said after no c. Again thank you all so much! Best, Steve
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Thanksgiving
This year I will be thankful for the progress all of us here have made in our journey with the fight of our lives. I am thankful for all the doctors and the treatments that have been discovered to fight this terrible c we have all had to battle. I am thankful for each and every person here that has givien their advice,…
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News - Good and Bad?
Hi Everybody, First of all, let me tell you how amazing you have all been, and how wonderful it is to hear all of the recent good news on your scans, and also for those of you who just finished with treatment. I have never "met" such an amazing group of people! So, A quick update on me. I have Mucoepidermoid Carcinoma of…
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Good News From ENT
So i went for my check up today and the doctor told me that it looks normal and that i am healing fast. So i asked does that mean the cancer is gone and he says to me and my wife, " you are cancer free!!!!. " Which made me ask if i still needed to go for my PET scan tomorrow and he said not right now. You seem do be doing…