Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for November 2017

Husband lost it for the first time...wife with cancer
I was just diagnosed with T2N1M0 colorectal cancer. I turned 40 a month ago, and have two young children and a few older step children. This topic isn't focused on me - I think I'm an emotional step or two past my husband. He lost it for the first time the other day, and I don't know how to deal with that. We are each…
Wife sleeping a lot and not eating
Wife is stage 4 colon with Mets to liver, she just started her 4th chemo and last week or so she is slowly losing her appetite and sleeping a lot then before. Today she barely ate today, seems like her appetite is non existent and she wants to stay awake but can’t. I’m worried about her, is this normal to have a slip…
Second Opinion Confirms Things - It Is Back & Inoperable - Not Happy :(
Got a second opinion and it confirms what I was told. Inoperable and it is just a question of when I go back on chemo and see how long it lasts. The second opinon actually said start chemo now, though waiting to see when it spreads or I become symptomatic is also an approach to follow. I think I am going to stick with that…
My oncologist jump started my morning
I didn't sleep well so I was still snoozing when he called promptly at 8am. He never calls in the morning, let alone first thing. I've been seeing him for almost nine years and he still doesn't know my voice, so he asks "is David there, I need to discuss his test results with him?" This is my first CT scan at a one year…
Eyelids Twitching
After receiving my 5th IV drip treatment (Oxaliplatin) the day after Thanksgiving, I noticed neuropathy got to my eye lids. When I left the clinic and as soon as exposed to the cold air, my eyelids twitched and fluttered. My eyes started to close and I couldn't see. It lasted about few seconds then went away. It went on…
Finally surgery after 2 years on chemo
My mom has Stage 4 colon cancer mets liver. She had a colon bypass done and was on chemo for 2 years with different chemo combinations. She has been off chemo for 2 months because we switched oncologist and also getting consult from Memorial Sloan Kettering Cancer Center to ask about clinical trials. 2 weeks ago she had…
I'm good for another three months - EDIT
Went to the big city to see my Oncologist yesterday. CEA 0.5 and all other bloods looking normal. I was really tempted to just call him and skip the office visit. (NOT 600 miles) 330 miles (nit!) is a long way to go for a five minute visit; but I do like to see him and hear it from 'the horses mouth'. So, happy holidays…
Having anxiety about.... everything
so I made my first trip to MD Anderson this past Monday and I’m going this Monday for blood a ct and mri cuz they wanna make Sure my doctors here didn’t miss anything. I know I’ll be having surgery to remove the mass from my coLon. But I’m having tons of anxiety that they will find more stuff than they did at home. And…
Nausea getting worse with chemo....
My husband's nausea is getting worse with chemo. He takes Ondansetron 8mg 3 x a day. It starts the day of treatment and gets worse disconnect day and continues at least 2 days later. He has this aluminum taste. I am concerned because he has been loosing weight for months now. Does anyone know if there is another medication…
Cancer centers
Hi Everyone, My wife was recently diagnosed with adenocarcinoma with unknown primary. The doctors suspected the primary was in her small intestine. She is about to receive her third chemo. There are still a lot of open questions.We are looking for a cancer center where there are more specialists for treating cancer with…
Port Removal
Had port removed finally this Wednesday Nov. 22/17 @ 3:30pm. Thank God it's over for now. Well, it should only takes 20-30 minutes for removal but it took him (surgeon) almost 45minutes, and gave me more injection for numbness because I could still feel the pain while he was working on it. Now I am sore. My chest, right…
Stage 3c in Jan. now mets to peritoneum - much discomfort
I am a 49 year old female diagnosed with stage 3c colon cancer in January of this year. Emergency surgery for colon resection and removal of tumor. 6 months Folfox. MRI in October and subsequent laparoscopy show mets to peritoneum. Scheduled to start new chemo (Folfiri and maybe others) this coming Monday. Here is my…
Vectibix rash
Hello my husband started Vectibix this week. His oncologist started him on antibiotics 1 week before. He will be on them the whole time while on Vectibix. So far i just see so dry skin. Just wondering when might the rash start or would it have already. He has so many other side effects and is so weak I'm hoping this will…
9 Years Ago
9 years ago today my colonoscopy revealed there was a mass in my rectum. They wouldn't tell me it looked bad, they just said there was a biopsy and that further testing was needed. The next day (Thanksgiving) was the worst day of my life. We had all 8 kids and all our grandchildren over for dinner and no one knew of my…
Happy Thanksgiving All
Wishing a very Happy Thanksgiving to all of the members on this board. Some might not be of this country, but we can all be thankful that we are still posting and helping others with our experiences and encouragement. This board has a way of bringing people together to share a story, give a kind word or calm the fears of a…
metastatic rectal cancer to sacro
Hi. I'm new here and looking from people who underwent or undergo with metastatic rectal cancer to sacro. Mine has 8cm of size. My dr said I shoud start witho chemo. My cea is 295ng. Do you think it's gonna work? Ill start folfox soon. God bless you.
Why do you change Ileostomy bags when you do?
There was a discussion on another board about when people change their bags and I was a bit surprised as a few people mentioned that they change them daily or every other day. Some here mentioned three days and I have been going with five days. The reason I change it at five days is that the bag loses its shape and becomes…
Another good report
Did a colonoscopy yesterday. First one where they used a drug where I remained awake. I was awear of what was being done but simply didn’t care. The sedation was interesting to note, but especially noteworthy is that the colonoscopy was all clear. And the surgeon said my next colonoscopy can be in five years. That would be…
Observation
I have been on this forum for a short time (6 months), but I have been on another, similar forum (chronic, spinal pain) for several years. My time on such forums has been absolutely beneficial and I thank those who make this possible. But what I really want to do is share an observation I have experienced on this forum.…
Adjuvant Chemo Therapy
Everyone: I decided to extract this topic from another large thread (118+ comments) to make it easier to access. There is nothing special about my adjuvant chemo therapy. The main reason I am semi documenting it is because there are a few others on the list who will begin theirs in the near future and my comments may help…
Restaged to stage 4
I posted several days ago asking about when a PET scan could be wrong. I guess I was hoping that it was and wasn't too excited about my husband having a liver biopsy. Well, we did do the biopsy and it was cancer. So the doctor restaged him to stage 4. He had CT scan and MRI at the end of Septmember before his colon…
neuropathy getting worse
My husband finished his last oxaliplatin treatment in September. During treatment his neuropathy would almost be gone by the next treatment but now he feels his neuropathy is worse than even during treatment. I know oxaliplatin has lingering effects but curious if it got worse for others too. Also wondering if it is due to…
Wife shockingly diagnosed with Stage 4
With a 12 week old at home my wife was fighting what we thought was post C section constipation. So after some back and forth we went to colonoscopy. We got the worst mews possible with in 24 hours stage 4etatsized to the liver and lungs. We've had C scan pet scan and now my wife has a colostomy to enable to her to eat.…
Just found out I have cancer
40 y/o male. Had a colonoscopy yesterday (Friday) following abdominal pain and blood in stool. I pushed for the scope, Dr thought just IBS. Lo and behold, a large mass in the descending colon (about halfway up), so large it almost blocked it. I await the official word that it is cancer based on biopsy, but doc said it…
And it's back...
New, related tumor. Found in my scans this week. No treatment at this time - watch and wait, hopefully for a very long time. We now assume lots of new tumors will be sprouting from the way my cancer seeded in my abdomen. *Profanities*
My high CEA journey.
Here's a post I made earlier in the year summarizing events I've gone through up till that point: CEA has been a constant bane to me since my initial diagnosis in 2012. Preoperative CEA was 13.9. The lowest it dropped to was 3.11 when the clinic I went to used a lab that did the Siemans/Bayer assay test that had 0-3 as…
Joan M had Gallbladder surgery today
Would just like to wish Joan all the best, and hopefully the CT scan came out good on Monday showed good progress. Take good care and heal up so they can get you back on the juice (chemo). Tru
Reaction to capecitabine
Hi all, Firstly, i wish you all the very best with yr journey. I was diagnosed with stage 3 sigmoid cancer a few months ago. Surgery-the Dr's say, they are sure they got it all. Had 11 lymph nodes removed-1 showed positive for cancer. Have been on oxaliplatin & capecitabine, but didnt even make it through the 1st cycle.…
CEA dropped
they only take it monthly for him now, it never gets high but is a good indicator for him. So it went from 14.2 to 8.2 after only two chemo treatments, I think this is good news right?
Five years today - 'You have Cancer'
Five years ago today, I heard those fateful words 'You have Cancer'. Five years ago today, my life changed for the better and for the worst. My trip started in the ER, with a jerk of a Doctor. It was my GP/PCP who started the ball rolling, and I ended up with a GI who did my very first colonoscopy, discovering the Cancer.…

Colorectal Cancer

Discussion List