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Update
Especially for those recently dx, I was so happy to hear that others were doing well over time. I never thought I would get here but almost 11 years ago I was dx stage 4 with liver and lung mets. I was praying that I could see my sons 8th grade graduation in two years.... then I got there... then praying for my daughters…
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Thinking of B17 Apricot Kernel seeds
I had just read about this Apricot Kernel seeds B17 are excellent for us who suffers on cancer under chemo. Don't know much about it but I had just ordered a bag of it today, and mine is well try it since it is considered a vitamin. Had anyone heard of it at all?
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Thin Stools
I am a 17 year old male, turning 18 next month. I have always held my stools as a child, I don't really know why, just have. This has led to serious constipatition that I have never really done anything about until about a month ago now when I had blood in my stool after I passed a very large stool. My Doctor also says…
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Heartwarming story with sad ending
How I hate this disease. It takes from the old and the young and all ages in-between. I just read this article, and then I clicked on the link to the blog. I didn't read all the blog, but I will get back to it. Just thought I would share. http://www.bbc.com/news/magazine-40290563 Tru
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Happy Fathers Day!
Hey! Happy Fathers Day to all the dads out there.
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Sun Sensitive on Xeloda?
My husband and I went out today to our town's festival today. It required walking a total of about 3 blocks to go around it. Halfway through I was weak and feeling like crap. Last time I saw my onc she reminded me that I'll be sun sensitive from the Xeloda. Its a beautiful day. What exactly does sun sensitive mean? I've…
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Anxiety brewing
I'm getting scans and tests this Thursday and already the anxiety is beginning. Not only about the tests and results but also about the contrast injection. The last two scans were not good. As soon as the contrast was injected I started feeling nauseated. And the nausea led to vomiting. The doctor prescribed a different…
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Colectomy and nutrition
I had about 25% of my colon removed along with the tumor--initially they thought they would take out 60%, and I was wondering if this has any effect on the way I absorb nutrition. The doctors said it would not, but I am learning that what they say is not always fully informed. Does anyone have experience with nutritional…
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When do you start counting?
I know, this is going to sound like a really stupid question, but when do you start counting how long you have survived? Do you start when you first had your symptoms, when you were Dx'd, when you had your last treatment, when you get a NED? Seems silly, but I don't know when I should "Start the clock" so to speak. What do…
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Back to Reality
Hi all, We just returned from 6 weeks in Costa Rica. This was our 3rd trip and it really has become my happy place. It is a bit like Peter Pan running away to Never Never Land. There is no cancer there. No tests, blood work, scans, waiting for results and the fear that never seems to go away. Come October I will have…
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NED for now
halfway through, completed cycle 6. Cat scan results after talking with onc. NED!!!
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40 year old with stage Iv
May 16,2017 I was diagnosed. I completed my second cycle today. The side effects have been minimal and tolerable even chasing 3 teenagers. Some cold sensitivity. I was wondering if there is any correlation to side effects and its effectiveness.
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Healing - PamRav
Thinking about you Pam and hoping you are healing and home or heading home soon. Tru
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Anemia after a year of treatment
Hi my partner has been diagnosed of stage 2a colon cancer last Sept 2015. After hving oral chemo(Xelodda) last year 2016. Her ct scan and CEA shows no sign of cancer. But this last April 2017 her CBC result shows low hemoglobin level 111, after a month we have it checked again and still it is low 108 together with…
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Blood with an Illeostomy
I saw my surgeon today and he told me that rectal bleeding when we have an illeosotomy is not unusual. It's from the colon being irritated because of not being used and is nothing to worry about and is normal. He'd told me that in the past but I've never had it like I have a couple of times since I last saw him. Enough…
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anyone with B-RAF mutation CRC? Seeking alternative cures..
Hi, over the past 18 months my sister has undergone 3 different chemo treatments for her Stage IV CRC. While some treatments have shown initial effectiveness, evenually that effectiveness declines. She is ready to try new things - like Oreganol oil, Mushroom medicine, etc..Anyone have any input about this? She has a rare…
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Cognitive changes due to chemotherapy
*Deep sigh* I can no longer ignore what is going on. While I am physically healthy and strong, I am suffering from distinct cognitive changes resulting, no doubt, from chemotherapy. While I suffered terribly from 'chemo brain' during treatment and several months afterwards, I have noticed a slight improvement, but, the…
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1st folfox treatment - delayed reaction?
My husband had his first folfox treatment June 1st. He did well and just had a the metalic taste come back for a couple of days as well as some cold sensitivity. Now over a week out he has had diarehha for two days now. He has a new colostomy too so we did not know if it was perhaps something he ate or if this is an…
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Brand new to the forum, 8 months out from diagnosis
My story is complicated but I was diagnosed in October of last year with rectal cancer, usually I call it colon cancer to others in person because I feel embarrassed. Had major surgery to remove the tumor in lower part of colon which went fairly well in November. No ostomy! Due to mass confusion with multiple doctors and…
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low white cells chemo stopped
My husband is stage 4 he had tumor removed from Colon but still has a rectol tumor. The cancer spread to lung. He started chemo but we only did 2 seasons and he got a cold. So that week his Dr thought he wasn't well enough for chemo. A week later he had blood work and was told white cell count was to low for chemo. They…
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Probably a Stupid Question About Xeloda...
I just saw my onc yesterday but hadn't thought about this so I can't ask her. I got my new supply of Xeloda yesterday. They give it to me in a bunch of blister packs. I just sat and filled up some empty medicine bottle with the Xeloda tablets to make it easier to grab them when I need them and because I keep a basket on…
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Atrial Flutter
Went to my Oncologist for my follow up on my Xeloda and Avastin and ended up in ER. I told him my pulse seemed high, he confirmed it, couldn't reach my Cardiologist so I went across the street. They messed with me for a while and the ER Doctor said it wasn't A-Fib but Atrial Flutter. My Cardiologist was at hospital…
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What Kind of Painkillers Do You Take?
I have other issues besides the cancer and I'm starting to have them really affect my quality of life. They were there before the cancer but with the subsequent blood clot and stroke and being paralyzed after I haven't been as active as I was before everything. Well, now I am and my issues are cropping up again. I have…
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few small scattered lung nodules on ct. Help!
im a 28 year old female recently diagnosed with stage 3 upper/middle rectal cancer. On staging ct everything came back normal but a nodule on my lungs 4mm and 2 other ones 3mm. Doctor said that it was probably nothing a lot of things in the air give us them, and to follow up in 6 months with cT. I completed chemo and…
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Interesting article on drug holidays/mutations
https://consultqd.clevelandclinic.org/2017/05/new-strategy-cancer-treatments/ Thought this was interesting. Using drug holidays and second line treatments to "outsmart" tumors when they mutate to become chemo resistant to first line treatment.
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Side effect??
I don't know if there's something to do with the neulasta injection but I feel so sick an hour after the shot. The nurse took the pump off the port after 46 hours of drips. Then a shot for white blood cells followed. I am so dizzy!! No appetite for anything, just want to sleep. Have you had any side effects on yours? If…
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Purging Things
Well, I still haven't found a job yet after getting fired for missing time wdue to cancer. So after two weeks of feeling sorry for myself I've decided to get rid of things that are of no use to me now in the aftermath of cancer and treatments. Has any one else done this? It's not as hard emotionally as I thought it would…
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Feeling poorly!
i got sick, sick last night. Was sick all night. Am sick this morning. You know how it goes. Everything has to be Cancer. My head is going crazy, thinking where it has spread this time. I went to see a Nurse Practitioner, and she pronounced me healthy as a fox. In other words, she does not know what is going on. I'm just…
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colostomy reversal
hi! I am sort of new to the forum here. I have been a frequent reader but have only just created a user name. One subject I had tried to research earlier was a reversal of a temporary colostomy and could not find much information available. I thought I would add our experience for others. my husband (47) has been battling…
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Drinking
The abstract of an article that will be published soon is out. Of interest were that only 9% of colorectal survivors complied with the relatively mild diet and exercise suggestions of the American Cancer Society ( http://onlinelibrary.wiley.com/doi/10.3322/caac.21146/pdf ). But they gained a 42% increase in overall…