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Colorectal Cancer

Archives for November 2016

To chemo or not to chemo ?
Hello, My dad has undergone a colon resection surgery to remove a baseball sized tumor from his sigmoid colon. They removed 14" of his colon and removed 16 lymph nodes. The good news is that there was no sign of cancer anywhere else. And all 16 lymph nodes were clear. The oncologist says we are in a grey area. Normally…
peppery heartburn and diarrhea/constipation after chemo
Hello all - The past two wks in between 5th treatment fulfiri + avastin, + 5 days of neupogen shots, I have felt really crappy - 4 days of constipation, then several days of diarrhea - + weird, peppery type burning in esophagus, stomach and throat area - and lots of crampy stomach (told that irinotecan causes cramping and…
Trubrit and Danker meeting
Last night I recieved a wonderful early Christmas gift. Danker turned up on my doorstep. WOW! I was totally shocked and excited. We are spending the day together. I took him up to my favourite healing place, my canyon. What a treat! Happy day!
47% chance of getting cancer in our lifetime...
This is what we were told when we went to the first cancer 'talk' after I was diagnosed. To me that's basically 50%, half of us. Last weekend the friend that I went to the cancer retreat with was telling me how upset she was because her doctor told her she had a 50% chance of recurrence. I told her that then she's like…
Just wanted to say "Hello"
Hello! I'm a newbie and just wanted to say that I'm happy to have finally joined! I've viewed some discussions on this site but never got the nerve to join until today!!!
DNA tests for medical tendancies
I was discussing this with a member on here and I'm curious if anyone else has done this. Have you had one of those mail in DNA tests done to find out what diseases or medical issues you might have a tendancy for? I was adopted so I have little family history, just on my birth mother's side, nothing on my birth father's…
Taking Vitamin D? How much? And Turmeric/Curcumin?
I've been taking vitamin D every day for a few years now. I take one tablet which contains 400 IU. I was at the cancer retreat last weekend and the nutritionist advised 2000 IU. She did not have any information that was cancer specific and some of her other information was out of date so I looked up what a person should be…
Attention Admin
Yolllmbs has not been able to log on. Can you help, please. TRU
Laz Trubrit and Yolllimbs meeting
Finally, after five months, I am able to post the picture of the day I met up with Yolllimbs and Laz. It is wonderful meeying friends from the forum. I am working on meeting up with Danker now.
A clear scan and a 2.0 CEA, good for 6 more months
Just got the call, and that CEA finally bumped down to 2 from 2.3. Said my liver was the same as the last few scans. As nice a gift as I could hope for with these holidays, I wish good or better news for all of you as well..............................................Dave
Survivor
Just wanted to let all the newbies who are out there.. I am a stage 4 colon cancer survivor completely NED for 6 years 9 mths!!!!!! There is hope!!!! Hugs to all!!!! Lisa _R
Recent Open APR surgery
Hello, I am first time poster. On Nov 10, I had Open APR surgery for my stage 3 rectal cancer. i am writing this from my phone while laying on my right side. I have a lot leakage from my perineal incision which is clear and red (Not infecred). I also have a fair amount of pain while sitting and leakage increases the more I…
Donna Juliano
it is with great sadness , for the ones among us who remember her, I let you know that Donna Juliano has past. I was friends with her on Face book and received the post. Rest in Peace colon friend. Marjan ( thingy 45)
First 3 month test today
I went in for my first three month surveillance scans. Actually the scans have been on the three month interval for the past two however I was going in for monthly CEA tests prior to this last period. So every CT scan and MRI scan I've had (a lot of them) I always feel nauseated shortly after the contrast dye injection.…
Interesting articles - Updated July 6th
Various articles I have found concerning Cancer, around the world. http://www.bbc.com/news/health-38013566 - I don't think anyone can really 'get it' unless they live it, or live with someone with it - and then some of them don't even get it; other do.…
No brachytherapy for me
I finally have the final piece from all of my appointments 2 weeks ago: my drs decided that the radiation therapy (brachytherapy) was not recommended because, “while the risk of complications are is, there is no proven track record for low grade, mucinous tumors using this technique." So no more treatments – no chemo, no…
13 years NED and a new mass ..... Feeling angry - UPDATED since surgery
Hi all, it's been awhile since I have visited this board and now I'm back and just as frightened as I was back in 2003..... I really hate even posting this for the ones just beginning this journey. I've never stopped being worried for the last 13 years and now I'm dealing with this crap again. It all started in August when…
4th port
well to day i get my forth port it worked for 6 weeks got dislogged and also has a fiber sheaf so its surgy at 11:45 and then chemo the next day 3 1/2 years im still here and so is the cancer 3 diffrent chemos and i gusse i 'll have to do trials next but im still here and moving i guess any day above ground is good im…
Info help please
Daughter had colonoscopy today for what we thought would be for colitis. instead had 2 medium sized sessile polyps in upper colon she's 32. Dr said they were pre cancer. Don't have path report yet but looking for guidance in chances that it's all ready cancer.. also told her she will need another colonoscopy in one year…
Four years. Two years. NED
I was diagnosed four years ago this month. Surgery, chemo and radiation in that order, followed. The Cancer spread to my liver two years seven months ago. Thermal Microwave Ablatoin followed. Today, my blood work came back clean. I am naturally very happy. I recognise how very blessed I am. SUE
Feeling Sad
Hubby dx about 1 yr ago with stage 3 (3 lymph node positive) rectal cancer He has done chemo/rad, surgery, adj chemo, and ileo reversal, currently clear from cancer per sept petscan and hopefully stay clean. At this time we should be enjoying our lives after 14 months riding on no fun roller coaster. Instead i just found…
Cologuard Positive
I took one of the Cologuard at home tests. I had been seeing an older family doctor who retired recently and went in for my annual checkup to his replacement, a young woman of about 30. I had been getting negatives on the fecal blood tests he'd been having me do. The new Doc really pushed the ColoGuard test so I had it…
Diagnosed with colon tumor one month ago - what to expect next
Hi everyone, I'm new to this list - never thought I would be joining it. I'm 51 and the mother of two active boys, aged 8 and 4.5. Just learning now how thankful I should be for having been healthy all my life. One month ago, I went for a routine colonoscopy and was diagnosed with Stage IIIC sigmoid cancer. Two weeks…
Folfuri + Avastin and Neupogen Shot - feeling awful
Hello Group - I have CRC with several liver mets. Chemo is folfuri + avastin, plus 5 shots neupogen for low WBC counts. I am experiencing so many abdominal side effects plus bone pain from WBC shots - possibly contributing to side effects is a small bowel intestinal stricture which causes painful spasms (partial…
newly diagnosed rectal cancer
Just got diagnosed, 55, never been sick in my life, active, no familly hx, anyway to cut story short, had colonoscopy, rectal mass, abot 5cm(I am your north neighbourh) or 2.2 inches, did some blood work. All this happen in last 10 days. CT was donne and showed no spread, awaiting for MRI. Was told and did some research,…
TV show 'The Doctors' today
I never watch this show but I was changing channels and caught the tail end of them saying a certain fat (I think it was) had a tie to colon cancer. I didn't catch what it was supposed to be. Did anyone else see it or hear anything about it? Thanks! Jan
Lonsurf - Anyone here been on it?
My good friend is about to start on Lonsurf. I know they give you a list of what to expect as far as side effects go, but there is nothing better than hearing it from 'the horses mouth' so to speak. So, I am asking for any of you here to share anything you can with me about your expereinces on Lonsurf. Thank you! SUE
Checking in
So, it's been about a year since I last checked in. I'm surprised at the slow-down in postings that I see, because I don't see any slow-down of colorectal cancer diagnoses. I'll try to check in more often. My story? Dx stage IIb August 2006. Colon resection, 9 Folfox treatments. Dx July 2007 of another primary cancer, this…
CEA level up from 1.17 to 2.28 in 2 months
Hi, I am 63 year old and undergo last Chemo therapy in May. I had tested CEA in August which was 1.17 and in October it elevated to 2.28. Although normal range is less than 3.0 (I am non-smoker). Is there something i should worry about for elevated level ? is it normal ? Your advice will be really helpful. Thank you, A S
Stage 4 NED 8 Years
Saw my onc yesteday for my annual visit. My CEA was 2.5 which is within my normal range of 2-3 so I am still cancer free. Eight years down and two to go before I can considernmyself cured. Just wanted to let everyone know in case you are following a similar program to mine. For those new to the Board I do the following to…

Colorectal Cancer

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