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Scan results
The scan is clear! I don't know why I was so afraid for this one, but I was so anxious about it that I was physically ill. The doctor said "it looks great" even better than the first one after treatment. He said that he can see where it was, and he believes that what they are seeing is dead tumor because it's the area is…
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Hair Loss?
I just saw my oncologist on Friday and forgot to ask her about this. I'm losing hair like crazy. I doubt it's chemo because I ended that in December. I'm not on any medications at this time. It's It's over four months since I was so sick and had all the medical stuff going on. But for the past month my hair is falling out…
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Gabapentin?
I've been having issues with Lhermittes's sign (feeling of an electric charge going through your legs and feet when you bend your head forward - like you're bringing your chin to your chest)related to oxaliplatin. I talked to my onc's nurse and they are saying Gabapentin may help and have called in a prescription. The side…
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Looks like we might be back on the roller coaster!
PET scan results today not so good ... 3 spots lite up in pelvis. Very small and clustered together. We have been chasing this since Oct. when at my yearly surgical appointment "something" was felt on DRE. All images to date have shown nothing but possible scar tissue. Today, the PET showed different. I am so grateful to…
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janderson update
I had some encouraging news but a while back but wanted to wait out of respect for the passing of Craig. I you recall 3 weeks ago I had a routine scan. The 2 ablations still looked good especially the liver but there were 2 spots tha have been questionable and now have grown so they have to be dealt with. The spot on the…
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Mom with Oxaliplatin secondary consequences, help
Mom started out fluid from the vagina since some weeks, the oncologist said that while it doesn't burn not to do anything, and that is due to Oxaliplatin, a week ago started to burn, then consult a gynecologist and gave capsules that are put into the vagina once a day for five days, after that you will have a consultation…
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Need advice on groin node pressure/pain. Please
I hope everyone is doing well here and I do apologize I have not been diagnosed with cancer. I've been having trouble the past six months and just need some insight or advice. In December I noticed a enlarged groin node in the crease of my right thigh. Went to my doctor and she said it was of no concern, but sent me to an…
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New here, newly diagnosed, with many questions
Hi, I’m new here, newly diagnosed and have a ton of questions. I’ve learned a lot from reading the posts here and hope to learn more and hope that I can one day share what I’ve learned. I had been having blood on my stool and pain in my rectum for nearly a year, but dismissed it as hemorrhoids until I realized that…
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Removing peoples Profile pages
PLEASE, PLEASE, PLEASE listen to us. We understand where you as forum moderators are coming from, but when we hear that one of our own has passed, we want to go and look at their profile. We want to remember them, to see their picture. This is a part of our gireving for them, and a small part of our ability to pay our…
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Mike Thxmiker
Reading facebook today it appears he lost the fight. His wife had posted a picture of his hospital bed, his dog was sleeping with him. Hugs
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Checking in...
I've actually been reading posts frequently but found myself a little stunned by the loss of Craig, to me he would always be here. My heart goes out to his family and I pray for their comfort and peace. I don't know how many remember that our house was damaged in a tornado August 21st 2013 and argued with insurance for a…
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Maybe Cyramza(ramucirumab) will be of help for some of you here:
www.empr.com/cyramza-gains-colon-cancer-indication/article/411077/
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Phil64 Update
All, I've been very busy between work and treatments and a spring vacation. I am continuing to receive Erbitux every two weeks and I'm continuing to deal with the Erbitux rash. I did skip a treatment for spring vacation and my skin did a little recovering in that time. But the rash is coming back on once again as my last…
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Low platelets
Well low platelets are causing a delay in treatment...3rd week. He's only had folfiri once. wondering what other docs use as a cutoff. Any thoughts on raising them? his were 169 march 24 ...before folfiri 68 on 4/9 76 on 4/15 60 on 4/17 not sure what today's number was as we were out when the nurse left the "no chemo due…
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Would love updates from several members....
Some that I've been thinking about, add your own: Mike ...thnxmixer (I know the name is wrong) phil64 Art ...fatbob alexinlv bailee2012 alex..maxiecat, so sad we haven't heard from her in so long. I hope she just didn't need to think about cancer anymore and winter Marie...I know you are posting regularly but haven't seen…
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Still here
Hi everyone. I have not been actively posting but I read your threads once in awhile. I know some have passed and every time I read this, my heart crushes. Just want to keep everyone updated about my mother who was diagnosed with stage 4 cancer last February of 2013. She has been doing well except for her neuropathy. So…
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I need advise
Hello dear friends!!! I hope everybody is doing as well as they can !! I have reached a point in my treatment that I will have to make some changes and I would like to pick your brains and hear from your experiences........ So here is a summary of what is going on. Diagnosed with stage IV CRC with mets to liver November…
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My good news
its a hard week for me to post good news; with Craig passing and finding out that my friend's multiple mets are inoperable, but I got my CEA results and they are still at 0.5. We we went to the Chhesecake Factory to celebrate. Sue - Trubrit
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can 3 P.E.T. scans be wrong ?
My husband was diagnosed with stage 4 colon cancer last July.They found a tumor in his intestine. They did Chemo had a PET scan and it said there was nothing. A few months later he also had another PET scan which also came up with nothing found. So he discussed it with his Chemo Dr. and said since there showed nothing in…
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Craig's funeral notice
Hello friends, Kim has asked that I pass on the funeral arrangements for Craig; they are as follows: Wake: Friday, 24 April - 6-9pm Funeral: Saturday, 1:00pm Morrison Funeral Home 110 Petroleum St Oil City, PA 16301 If you’d like to post a note on his Tribute Wall, you may click on the following link:…
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My Brother's Funeral
It was a beautiful service and thank you all for thinking of me, praying and good vibes during my difficult time. All the family was there and we made it in town the day before he died so I'm thankful we came in. Just could feel all of you with me. He was so very young and my dad was beside himself, losing a wife at 56, a…
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CEA question
My CEA taken every 3 months over the last 2 years is usually 2.2, went as high as 2.6 once, then dropped back to 2.2. Just got a 3.0 result and of course I am concerned. All prior tests were performed using Siemens (Bayer) method. Most recent test used a different lab and performed the test using the Beckman Coulter…
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Life after Cancer .. trying to figure it all out
Having such a difficult time trying to figure all this out. It seems so ironic that we fight so hard to save our lives, we get through surgeries, recovery, chemo, tests, radiation, toxic side affects from all the drugs we poor into our bodies ... only to emerge to find our entire reason for living is totally changed. The…
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Jen - Good news on husband brain results?
I hope you are out celebrating! I have been thinking about you all day. Sandy
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Brain scan results tomorrow
I've been trying not to think about it but it's hard to not be a little anxious. My husband had a brain MRI last week. No symptoms, doc is just being thorough (or there is a need for money?). After a disagreement about her policy on not releasing scan results by phone or email after his ct, she agreed that she would call…
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Remembering Craig (Our lion)
I though it would be nice if we could post the article that Craig had published in Cure magazine. I am hoping that someone here is computer savy enough to do it. I think it would be a great rememberence for one of his most proud moments and for the new comers to really see what he was about. I am so thankful he at least…
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Update and upcoming surgery date.
Hi everyone, I have been quiet lately. (I wanted to wait to post until we knew the status of our Lion). I've had a few weeks of medical appointments and took time to go on a road trip vacation with two of my grandchildren. During this last week, I found the CT scan showed a lump in my thyroid as well as a lump in the…
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Need help. I have lost all of my information
I am so bummed. I have been keeping the sad record of our friends on the forum, who have passed. I have even saved pictures of them. I go to my file today to sadly add our Craig, and the file is gone. I have searched and searched and tried to find a way of retrieving it, but it seems to have gone. Maybe a miracle will make…
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Absent for a while: here's why
It has been a few weeks since I was last here, and here's why: more cancer in the family. About a month ago my oldest, who's 31, came to me after a Saturday night dinner out with the family to say that he was in pain and needed a trip to the ER. A few hours later we were told that he most likely had developed testicular…
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Our Craig...
Dear friends, It is with a very sad and heavy heart that I must inform you that our dear Craig has passed. Kim was so very pleased that so many of his friends were able to post such lovely heartfelt messages to honor her husband. She wanted me to tell you that she read all of the notes to Craig before he passed, and he…