Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for July 2012

Cymbalta and neuropathy
This is for those suffering from neuropathy, according to the testers of chemicals and such, Cymbalta (an anti-depressent)appears in tests to have reduced neuropathy. Just something to ask your oncologist about. Winter Marie
Alien Abduction
Just got home from getting my first colonoscopy since my dx and there were no signs of cancer, no polyps nothing but the irritated tissue from radiation. As usual, the worst of it was the prep yesterday and not being able to eating anything except jello (forgot to put tequila in that!) Now I just need to wait for the…
What not to say
Note to the World: If someone tells you they have colorectal cancer DO NOT SAY "oh, my mother died after battling that for years. It was awful." Talk about ruining my entire day... Robin
supplements and chemo
My mom starts chemotherapy tomorrow. I believe her schedule is one day every other week. She finished radiation for the sacral tumor last week and spent most of the weekend in bed. She said her stomach was burning and the doctor told her this was a side from the radiation and it will subside eventually. I am curious if any…
Need some positive thoughts please
Hi guys, back on the board... Mum was diagnosed last year with advanced ca cancer, some sports in abdomen area. Had 6 months of chemo- infusion and oral ... first blood work and scan NED..... this was about 6 months ago...seems we are not over the worst of this yet!!! Today second scan results back and some small spots…
good news today
My CEA was .8 today. All other cancer related bloodwork is back to normal. Whew!!! CT scheduled for 9/24. I still continue to pray for everyone!!! Jamie
Sharing good news
The Pt scan I had this morning showed no evidence of disease! I am truly blessed. I have now been clear for 14 months. So all those newly diagnosed at stage IV, take heed. I was originally diagnosed with colon cancer in 2005. It woke up in my liver 5 yrs later. then again 1 year after that. My second liver resection was…
Has anyone used N-acetlycysteine before scans???
Sorry, that spelling may be incorrect, but it's close. Has anyone's doctor recommended this antioxidant supplement prior to CT/PET scans to avoid the kidney damage that scans create. I just googled this. Don't see why we couldn't use. Does anyone have dark urine for a while after scans?? Iodine is not good for the kidneys.
Lung nodule strategies - welcome your advice/experience
I'm just finishing up some research on treatment of lung nodules. I was diagnosed with rectal cancer stage IIIC two years ago. Was clean until a recent ct scan followed by a petscan which showed one lung nodule. My oncologist recommended I have it surgically removed and then possibly followed by a new regiment of chemo…
Huggggh! Back in the city and completely Burnt !
Got my face burning ! F......ng chemo!,I know ,I know I was aware about it but........ Any magical home solution?
Talking to the kids
On Friday we told my two kids (5 and 8) about the fact that I am going to have an amputation to treat my cancer and, have to say, it was one of the hardest things I have done yet on this journey. They already knew I have cancer, that it is something growing in my pelvis that gives me a 'poorly leg', which limits what I do…
Ghost
I am starting to feel like a ghost in my own life.. do you know what I mean.... i feel like I am watching all this happen... it can't really be happening... but I feel like others are leaveing me out of things. I see these postings on FB that I would normally be included in and I have not been invited anymore.. it's like I…
anyone taken this mix of chemo?
Mitomycin,5-FU AND Cisplatin along with radiation?I should be stating this cocktail sometime next week and wondered if anyone has taken these together and what their reactions were.thanks in advance Patsy
Now a lymph node lights up
I had some hope despite the ugly nature of this disease. Now, it appears chemo isn't working. Dx'd Stage 4 about 16 months ago. Felt like we were chipping away at the liver mets. Had liver pump implanted last August, but didn't use much until recently. -- Liver surgery in January -- 3 new tumors in liver in May - ablated…
top score on MasterCard ! ouch Pete is back to work
So the master declines when you get over 75k. No more credit sux, no more supplements on order. Being rigorous on value for money. Third day back at my business after 2 years off, wife has done a super job running our eight boardinghouses. Doing lots of cleaning, showing empty Rooms, replacing old leaky gas stoves, New…
back from lil break
hey everyone well first on may 30th i fired my onc,got new one and he lowered my dose of fu5 cause i ended up being real sensitive to it, and i now have s last week a cea count of 6.1 but now i have a growth in my back we are checking out, but i have not gave up yet. john
Sympathy Cards to Cheryl's Dad and three siblings
If you wish to send a card of sympathy to Cheryl's father Bill and her three siblings the address is posted below. ... For those wishing to send condolences to Dad Bill and family, here's Bill's address. Any cards of sympathy will be appreciated and will be shared with her three siblings. W. Hutcherson 6466 Wade Road,…
Anyone had HAI
I hv stage iv colon have hd numerous surgeries and chemo now being offered HAI to the liver??
Chemo for Life
I recently was told by my oncologist that my Stage 4 has reached a point where I will need to be on chemo for life moving forward. My cancer has spread to my pertionel (abdomen) area and also some disease in my pelvic area. The chemo I am on is designed to keep things stable not necessarily to kill or shrink the cancer. I…
Avastin & shoulder pain ?
after 12 treatments of FOLFOX 6 with Avastin (at about 400 mg) my wife has started on Avastin only. The initial dose 4 days ago was a about 1100 mg. Today she exhibted extreme shoulder pain (very top of shoulder) for the first time. I have read some older forum posts which seem to correlate Avastin usage to shoulder and…
Mushrooms - potential anticancer food
for those who are not familiar with dietary methods which might inhibit cancer growth: a few research papers "Mushrooms and cancer" google scholar search - 2008 to now My wife's Oncologist is a big proponent of tumeric (curcumin) and mushrooms (shiitake in particular). From what I can, tell by reading quite a lot of…
Colon Cancer Alliance - Baltimore, MD: Anyone going???
About a month ago someone sent me info on the Colon Cancer Alliance, National Conference in Baltimore, MD. Timing is strange, as I'm feeling better than i have felt in 6 months... and with a break in chemo prior to my colon resection and bag-take down on the 26th of this month, i was thinking... man, it feels like i should…
Zometa and B12 injection
Hi, I know I havent been on here lately, been going thru so things. Every 6 months I go and receive Zometa via IV to help build up my bone dentisty that I lost from the treatment. And B12 to help build me back up. I am getting frustated everytime I receive the Zometa I am in pain afterwards (bones hurt, alot of loose…
More News on Bill
Well I went to see Bill for the first time since he is awake and alert. He is very confused. When I walked into his room I thought he would be so happy to see me, but he actually had no expression at all. He can't talk because the vent is still in. So he gestures for me to try and understand what he wants, which is quite…
Gangsta Gail
I thought it was time to change my profile photo here, and thought I'd surprise y'all. If you haven't already seen this on facebook, yes it really is me. *L* I was in gangsta mode, ready to do a rap written by a youth and myself. We were in the same "family" group on the mission trip I went on in June, and our group was…
colcon cancer, ileostomy and now stents and nephrostomy tubes, anyone else have these issues
Hi! I am a six year survivor of colon cancer. I have had my colon removed and have an permanent ileostomy and in the past few weeks, my kidneys started giving me problems and ended up with stents in each kidney. Well, wednesday I was scheduled for a simple exchage of my stents and then start my chemo. Well not so easy, my…
WELL.......CYBERKNIFE DONE!
Hey Everybody! Just a quick update to let you all know I am fine......better than fine actually. The Cyberknife is being classified as 100% successful in destroying the 2 brain mets. They will rescan in 30 days and at that time they will decide on a new chemo regime...if any is even needed. I am still on IV antibiotics at…
Emotional/personality changes
Hello all! I don't post much but do stalk and keep you all in my thoughts and prayers daily. We've been living without cancer for about a month after my husband's last scan came back clear! He does not have to go back to the doctor until sept. yay! (stage iv orig. dx kept. 09). Anyway, after this long road with finally a…
Update on Bill
Hi Deb here again to update on Bill's progress. It is now 2 weeks that he has been in the ICU. He is still on the ventilator and very slowly progressing in a good way every day. They operated again on him yesterday in the OR. His vent settings are down to 40% and a peep of 8 (down from 100%, 20 Peep)So they felt he was…
Private Messages
I find it hard to abuse PMs In adding some humor I always make it a response on the board-for all to see. I don't know how, but we should get rid of these abusers!

Colorectal Cancer

Discussion List