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payback
If your hospital, cancer cener, or what-ever has a colorectal support group, I would encouragee you to join it. I didn"t discover this group untill I was NED two years out, Those newly dxed with colon cancer need to hear our stories. They still think cancer is a death Projection. By meeting with them and describing their…
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stopping treatment
I will be doing my tenth of twelve rounds this week since my last liver resection. My most recent scan was clean. Treatement has really beaten me down. I am thinking of telling my onc that i want to stop after this tenth treatment. That is what i did last time and it was 4 yearas before i had a recurrence. I have been very…
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I just found Expressions
Well, I guess "just found" isn't quite right, I've always seen it there. But, I did just realize that we can post pictures, stories, poems etc. so I put up a pic of my dog and one of me that was photo shopped about four years ago, two years before my dx. Pretty cool that we have something like that to share with each other.
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westie66
Thank you for the advice on my forthcoming holiday, you seem to be very similar to my husband and the treatmeant he is receiving for peritoneum, liver and lung mets. I hope you continue with all your hard work for a long time. x
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rssh is here
Ok so now he has a rash from the erbitux; what we want to know is - does the rash get worse each time he has the chemo?
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Having trouble with bathroom stuff
I am looking for suggestions on how to help regulate my bathroom visits. I can't seem to find a happy medium. I either go all day with very small bowel movements or I am constipated. I was taking Miralax everyday but got where I was in the bathroom alot. I backed off to a couple of times a week but now I am on the…
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ALPPS procedure for two stage liver resection
Hi, Has anyone heard of the ALPPS procedure pioneered by Dr Eduardo in buenos aires, argentina. Also known as liver partition. Hospitals name is hospital Italiano . It is a two stage resection of the liver , but second resection done within a week of first operation. That way it seems that the timing between resection gets…
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update: split chemo, radiation
Hi All, Well, a few developments. I'm supposed to be on GOLFA (Gemzar + FOLFOX + Avastin) but have had some false starts. The GEMZAR seems to hammer my platelet count, leading to tx delays. But my CEA spikes with the delay. So my onc is thinking to give me most of the Gemzar during my normal chemo cycle (he told me the %…
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Liver Mets and Radiation
Hi all: I have a met to my liver (as well as several to the peritoneum but am not eligible for the stripping/HIPEC surgery) and my oncologist is recommending radiation as no one will operate on it with the mets to the peritoneum. Here in Ontario they don't seem to do the SIR thing or whatever it is called. Has anyone had…
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I need to sign a consent for Vectibix
I went to dr on friday.. no KRAS so she is starting me on Vectibix along with my Folfiri on tuesday.. Is Vectibix as scary as it sounds.. I am not going to say I am beautiful but my skin has been my best feature for the last 48 soon to be 49 years. is it really going to change.. I know that may sound vain but lets face I…
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colonoscopy clear
Had my test yesterday. No polyps. What a relief. Now to Hawaii for a month to see daughter. Since I had rectal cancer in 08, then met to lymph nodes in 2011, should she wait til 40 for first colonoscopy? She is 28 now. Her dad just had one with 9 benign polyps. I'm wondering if she should be tested for HNPCC. LOVE TO ALL.…
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Need advice Please!
Hi, my name is Deena and I usually come on here to just read, although I have posted twice before. Now I have a question I need help with. I have stage 3 colon cancer and have had 12 inches of my large intestines out. I'm on chemo and have take 8 of my 12 chemo treatments. My two main problems are total exhaustion and my…
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Still angry after almost 3 years
I don't know why but I am still angry about all this cancer stuff after almost 3 years since my dx. I thought I had accepted and working on beating it. I keep having one set back after the other and I guess it is starting to get to me mentally. I miss me. I don't know how else to explain it. I am angry that I am not able…
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fsh high for a man - anyone experience this?
My husband was diagnosed with stage 4 colon cancer 3 years ago - had a resection and 5-FU on and off - with good results. Now there are "hot" spots in lung and tumors on omentum. So he is going back on chemo with plastin added. His FSH was 27.8 (norl 1.6 - 8.0). Not sure of significance of that - but he is going to see an…
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my sister, Mary
has lost her fight and I am so relieved her battle is over. She was surrounded by the people who loved her. How lucky I was to have time with her. Judy
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Re Holiday.
Thank you all for your positive replies for going away, if hubby feels OK we are going to go for it, his chemo which he receives every 3 weeks will mean he will have chemo 4 days later than due. I hope all of you are coping well. best wishes. Belinda.
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Memorial Day Remembrances
Memorial Day here in the USA is celebrated, on the last Monday in May, to honor all who have died in all wars. Here on the board, we have traditionally remembered those of our members who have died in the past year. Here is the list I have put together. If I have missed anyone, please post and add their name. Also feel…
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Hi mates it is FRIDAY any interesting plan for the weekend?
Just enjoy the good weather here , sun ,sand and sea ! and Friday cinema by night! What about you?
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I WISH I WOULD HAVE KNOWN THAT........
Hey Everybody! Since you started on your cancer journey have you ever thought to yourself.." man, I wish I would have known that in the beginning".... Or ..." I wish someone would have told me that". I certainly have! This post is for the "newbies" and anyone else that can benefit. If there is anything that YOU know NOW…
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Stage 4 colon cancer met. to the lungs.
I think this is just for venting purposes, to talk to people who have been in my shoes or are in them now. I was diagnosed with colon cancer stage one when I was only 38 yrs old. Had all the necessary surgeries, but had no chemotherapy, this was in 2004, 2006 the doctors found two 1cm tumors in each of my lungs, a VATS was…
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Leak test nightmare, like Pete's
Yesterday, I had my leak test to prepare for the takedown. I ended up with severe abdominal pain, nausea and vomiting, and releasing bloody mucous and stool several times throughout the day. My husband had to push me around in a wheelchair while I wretched in a bucket. As part of my preops I saw an internal medicine doctor…
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Do you buy green bananas?
Joking of course, but I do have a semi-serious question. I need to spend a thousand dollars to cap a tooth. It's in the back, does not hurt, and can't be seen. I'm going to do it next week, but I've got to admit, I thought twice about "throwing good money after bad." I'm sure others have had the same quandry and just…
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Another Surgery
Well, the results are in and more tests are needed. I continue to recover from the resection surgery well. The stapes are removed, I have been cleared for light driving, and I’m feeling pretty good physically. Unfortunately the lung nodule has grown larger from 12mm (per X Ray on 11/3/2011) to 18mm (per CT scan on 5/21).…
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chemo and holiday?
Morning, my husband has been receiving chemo for nearly 2 years, just started his 3rd line. We would love to go away to Spain for a week but it will mean altering his cycles of chemo, the chemo he is receiving is palliative only, the cancer is not curable, he is still working and coping not too bad, was wondering if this…
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SIR Spheres
My wife had the spheres injected today. The procedure went as planned and will follow-up in 6 weeks. The doctor said it really takes 3-4 months to see the results, so we'll stay tuned. In addition, he said the six-week checkup CEA will become the new baseline to determine tumor metabolic activity. Best to everyone.
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LIver Surgery - disappointing
I had liver surgery yesterday. The surgeon did a laporoscopy with the intent of removing 3 tumors. After he looked at the liver, he saw that I know have 9 tumors (6 very small - so small they didn't show up on the PET scan). He said he could not remove this much liver so stopped surgery and I will now have my chemo first.…
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Next surgery, no radiation?
So i'm up for surgery number two. Opinion number one is remove entire rectum this round with no radiation. I don't like that opinion. He thinks it's just local so he doesn't see the need. We had this "what if" conversation once before for the 90% have this surgery and they're done segment, I gambled, I lost. I would rather…
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Colonoscopy question
Just curious what your experience was after your colonoscopy. I have one coming up in the next couple of weeks, it was booked a few months ago...and now have other events planned for the days immediately after the procedure. How long does it take after the colonoscopy for things to get back to normal?? Does the prep. cause…
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5 weeks radiation & 5FU - now rectal surgery
I see there are many ways to take rectal tumor out - what way is the most common, successful, less painful? I am meeting with surgeon June 1st, scared to death. I also have 1 liver mets, has anyone heard of them doing that the same time. I just want it gone before I go totally crazy. Then I start on the folfori for 24…
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My report from endoscopy
Hello to all, First let me say I send everyone on this site my prayers and blessings. Because I was not dx with Colorectal cancer, forgive me for posting my question. I do in fact have cancer, Non Hodgkins Lymphoma dx in Sept 2009. I had an endoscopy May 16, 2012. I did speak with the doctor, and received some results. 5…