The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for January 2011

Just whistle a happy tune
You older folks know where the subject line comes from. I know some of you think that you can’t be positive all the time. It takes practice to keep your focus on the positive note. Practice that is very rewarding for you and everyone around you. It is clearly your choice. Hell I even get down. The difference is I will not…
update on Brenda 3_16
Hi everyone: Brenda is at the hospital on hospice care. She couldnt get out of bed yesterday and was taken by ambulance to the hospiatel (was supposed to have onc appt) They did scans in er. All much worse. She was losing blood and she has what they called a "bleed on the brain" she is either asleep or unconscious. not…
Join a Live Chat! Dr. Laura Porter, Stage 4 Survivor and Colon Cancer Alliance Patient Advocate
Join Us For a Live Chat! Update from ASCO GI Cancer Conference presented by Dr. Laura Porter, Stage 4 Survivor and Colon Cancer Alliance Patient Advocate In January, over 2,000 healthcare professionals from around the world met to discuss breaking news, research advances, and emerging therapies on various gastrointestinal…
Great op-ed in the NYT today
http://www.nytimes.com/2011/01/25/opinion/25sloan.html?_r=1&src=me&ref=homepage
MRI of brain this moring ~ UPDATE ~
Wish me luck on fitting my fat head into one of them MRI thingy's!! Brooks Everything seemed to be fine and my head did fit into the MRI. Why do them things need to be so loud? Anyways after I was finished the guy wanted to know if I had any family history of MS? I told him not that I know of and drove away wondering why…
chemo every 5 weeks ...
Dear all, I know as a caregiver, I really shouldn't complaint. Like Bobby, I'm now in one of my lowest days... I even though of dying with my mum. I'm very tired, exhausted and feeling very down. My mum has IV, non-operable liver met, plus KRAS-mutated. To make her situation worse, she has the worse side effects patients…
Picked up My College ID
My onc asked when I wanted chemo, I told him on Fridays since that's the only day off I have from college. He then asked me why I decided to go to college. I said, "Well, hell, since I'm going to live, I figured I might as well be further educated while enjoying my old age." He laughed, and said he was sure I was going to…
My new avatar-another Dutch adventure!
This is from a city named Utrecht, in The Netherlands. We visited 2 museums that day...one, my fav (I collect music boxes), is the music box museum "MUSEUM SPEELKLOK". It is housed in an old church, complete with the church organ and many beautiful dance organs. The other museum, the train museum "SPOORWEG MUSEUM", is the…
Therasphere (not sure about spelling)
Just wondering if anyone out there is familiar with this option to treat liver mets. It entails inserting a catheter into the liver and shooting beads of radiation to the tumors. My doctor has suggested this procedure, so I wanted to know if any of you have heard of it or experienced it.
Just rambling, not a useful post, best to just skip it
So my friend and neighbor is lost at sea. That makes 11 people that volunteered at my benefit last year that have died since Feb 2010. There were 126 volunteers that help cook, serve, deliver, and then clean up. Now 11 of those people are dead. All were young and in good health. I remember them all praying for me and…
Good News? Bad News? Right News?? Wrong News??? Daaang!!!!!
Well... I am just confused on news I got today. As many of you know my CEA was dropping steadily since my Cyberknife and I had a PET/CT a few weeks back to clarify if Cyberknife was successful and if I was NED. St Louis U did the Cyberknife and PET and said area where Cyberknife was performed was clear but on another area…
feeling helpless with my dads condition
I wish i could hug you all and make all ur suffering better, but i can't. "I feel just as helplesss with my dad". i just don't know how to make things better!! i wrote him this and it inspired him. i hope it helps any of u too. I remember all of you in my prayers.....i know most of u live very far away from gibraltar but…
colonoscopy how soon
Hey there everyone just wondering how quickly everyone had a follow up colonoscopy after surgery. I had my surgery back in March 2010 and then had one in April of 2010 to see if they got it all after the surgery. The surgeon said at that time we would do one in April of 2011 but he has now said we could skip to 2012 if I…
Need some uplifting today
Hey there everyone I was just reading some of the post and of course as always some are good and others not so good. I am having one of those down moments right now as the devil has got a hold of my head. Making me doubt myself and my future and God I hate when I get like this. It's been a while since I felt this way but I…
Cancer takes another good man
I was notified today that one of the best cops I worked with for over 25 years died yesterday of his cancer. He taught me a lot and was one of the first k-9 handler/trainers. He was old school but knew how to deal with people. It would have taken a lot to bring down Dave-damn cancer!
In the last week or so
Hello everybody… Sorry I haven’t posted in a few but I’ve been back in hotel “Salem Hospital” for a few days then had an appointment with a Neurologist yesterday. The hospital stay was from the 18th and they let me out on the 21st. I went in with the same problem as the last few stays (blockage) but this time it was more…
Confused1 (Colleen Wilkie) passed away
I was about to wish her Happy Birthday and saw dozens of notes from friends and family missing her. She died June 29th, 2010. I loved her profile picture. She was a very lovely person.
Friends, Romans, Colostomates
New to the bag thing, and looking for suggestions: 1. It is a well done colostomy, above the waistline and to the left of my Belly Button 2. It sticks out ~one inch 3. I am comfortable looking at it, emptying the bag, and cleaning the stoma Currently using Hollister two piece with drainable pouch. Questions: 1. How often…
yo buzz
we meet with the surgeon...will know more on friday...have a feeling they are going to choose radiation, over surgery anythoughts by you mean alot tried to pm u no luck i will try again love your input!!!!!
Stage IV Good News
I had an appointment with my oncologist today to get the results of last week's CT scan. While we met with the nurse to go over the health questions, I became teary in anticipation of seeing the doctor. When my oncologist walked in the first thing she said was, "the scan looks good." I asked her about recurrence…
One (of many) items coming from current ASCO GI symposium :if practical,don't delay chemo after surg
For best results,adjuvant chemo should "begin as soon as practical after surgery," within four weeks if possible....."{T}he benefits of chemotheraphy that begins more than three months after surgery are uncertain....." For complete story:www.medpagetoday.com/MeetingCoverage/ASCOGI/24512 Other reports coming from this…
Chemo Starts again
Had a nice visit with my onc, today. Starting on the Xeloda and Avastin on Friday, every 3 week regime again, at least no oxy. My CT Scan came back nothing showing up on liver or lungs!!! We were worried about the lung situation, it's looking good!!! So working on getting rid of any possible cancer cells that may be…
Cancer fighting cookbooks
Hi all, Does anyone have any recommendations for a few good "cancer fighting" cookbooks? We have "The Cancer Fighting Kitchen" cookbook, but it seems to have more soups than real entrees in it. Any suggestions would be appreciated! :-) Cynthia
What is the deal with the Colon Club Message Board
I have tried to register several times and emailed the administrator several times and never get reply emails. They also make it almost impossible to post as a guest. It drives me batty. There isn't much I want to respond to but when I do, I want it to work! UGH. Whatever, I like this place much better though. This is just…
Folfox #4 today
4 down 4 to go. Sub-zero temperatures here in Boston for a few days. Not easy for this type of chemo. You guys up in CANADA BURRRRRRRRR. We do it cause we have to not cause we want to thats for sure. Onc cut the dose on oxy by 20% because of the buning pain in my toes. Side effects seam to be more bearable so far but its…
FOLFOX #7 Delayed
So my WBCs, Plts, and RBC are all down so no #7 for me. I was so sick this weekend, running a low grade fever (got up to 100.4 and 100.5 is when I'm suppose to call in), diarrhea (woo hoo), nausea and fatigue fatigue fatigue. Spent most of yesterday in bed and was told at the clinic today to go back to bed so .... just…
Calenders??
anything going on with the calenders, or is it on hold for now? Petrina
Update on Surgery
Just wanted to update on my status. My surgery on the 6th went very well, it ended up that they had to remove my whole kidney and took part of my large and small intestine. Still having some pain but each day is getting better and better. It ended up that this was an reoccurance of my appendix cancer that seeded just below…
A SPECIAL TOAST FOR WOMEN !!!!
Just to change the subject a bit, I thought i'd share a poem i wrote with you guys especially all you strong women who I've come across in these forums. keep your spirits up!! :) Heres to you all wishing you health, strength, hope and lots of love for 2011. xxxxx A SPECIAL TOAST FOR WOMEN Here's to the women who stand up…
short term memories
while making breakfast i stopped a moment and questioned whats that smell, is someone cooking, only to remember it when the toaster popped up, it was my toast, which i was toasting. thats a new record for me,:>) anyone else have this, penny

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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