The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for January 2011

Weather update
G'day all, Well after all of our floods we have just had a week of beautiful sunshine , including Wednesday,Australia day ,our National day. Now we are under the threat of three cyclones. To the uninitiated ,cyclones are the same as hurricanes ,they just spin in the opposite direction. West Australia has had one roaming up…
clean scan...now what?
This post fulfills a promise that was offered by Cynthia, aka LivinginNH. Today I took the ride down to Dana Farber to meet with Dr. David Rosenthal, Medical Director, Zakim Center for Integrative Therapies. Dr. Rosenthal talked about a "three legged stool", that is 3 issues that I need to address in minimizing the…
Mass in colon ? What do I do ?
I have just got out of Hospital and was told that I have a mass in my colon . They told me that they hope to be able to remove it . I just am wondering if there are options out there and what they are . I really dont have a clue about where to look for answers . Can anyone help me with this ?
PET results not good
Well after a year and a half of NED the cancer has spread to my liver, small lessions on both side so no surgery right now. I am going back an Xeloda and Avastin. Onc also metioned another coctail but he is going to wait and consult with the CT radaiologist, my oncologist thinks we may be able to treat with…
Hats for Men
Just a quick question. My brother just started Chemo and I heard that he is losing his hair. ( His ex-wife says he is shedding like the dog ) Is a regular baseball style cap comfortable after the hair loss? I want to try to order some hats for him to wear, but want to know if there are any tips that anyone can share. He…
DID YOU KNOW !!!
Did you ever wonder why there are no dead penguins on the ice in Antarctica? - Where do they go ? Wonder no more ! ! ! It is a known fact that the penguin is a very ritualistic bird which lives an extremely ordered and complex life. The penguin is very committed to its family and will mate for life, as well as maintaining…
Scan today**************Update*******
I have a scan today at 10:40 to see how just the Vectibix is working the past 3 months. Results with the doc at 11:40. I'm praying for good results! *********Update***********4:00 Scan results show stable. Yea! This was a wet read so I don't have the written report yet but doc is upbeat. We will continue with just…
Personality adjustment (joke)
So, on1/6 I went in for my personality adjustment. I had the a-hole removed. Now, I can still be a ****, but that option is up to me.
Wierd thoughts...making an impact on my life....handling the end of my life...(NOT now...!!!!!)
OK, so it's a bit early (or late, depending), so that may be part of this post. It's just rambling...don't waste your time if you have better things to do.... I have, as you have seen my posts, been trying to make sense of all of the losses as of late that have been in my life. NOT my own, thank goodness...I continue to be…
Chicago Already???
Heck, I must be thinking about Chicago pretty hard. I turn on this TV station called news at 9:00, but they were talking about this horrible weather, calling it pretty good with highs in high 20's, lows in low 20's, and I'm think where the heck is this place? They had their web site on there, called WGN9 tv station. Looked…
Anyone with origination in the appendix?
Hi. I'm new to this site and wonder if there is anyone in this group has origination in the appendix. That's what I've been diagnosed with. Signet Ring Cell Adenocarcinoma Stage IV. Anyone? Thanks.
Lori-S is in the hospital
Hi everyone, I just heard from Lori. She is in the hospital with an obstruction and all the treatment that goes along with it. She is having pain, but says they are medicating her regularly. Let's send her prayers, good vibes, positive thoughts, and everything else we can find. I told her to get ready for a rush of…
I'm back!
Just wanted to check in with everyone. I'm back and in a little worse for the wear. That 2 1/2 week hospital stay was a real piece of work, but they took pretty good care of me. Of course, when I got home there was a snow storm and I've been without power for the past 15 hours so I've been staying at my mom's house while…
Hello ladies and gentlemen it's FRIDAY here! anything interesting to do this weekend ?
Just cinema , dinner with our sister in law , an lunch with my mom! what about you?
Chemo questions
I have some questions regarding chemo such as what some of the side effects are and what to expect. I just found out that I will be receiving chemo and radiation treatments for 6 months. I was told that I would most likely lose my hair. I go Monday to get a port put in and I am curious about that as well such as if it is…
Irinotecan & Erbitux
We found out today my husband's CEA had gone from 31 late Oct to 200 and he will start Irinotecan and Erbitux next week. He did 13 treatments of folfox w/avastin last Jan-Sept. and responded well to it. I've read all the side effects of these new meds but I really wanted to know from the people who have been there, done…
2nd Treatment Question
My Mom has her 2nd Treatment on the 1st of Feb. Her 1st Treatment went very well and hopefuly this will continue along the way. She had her appt. today to check her counts which where good, but she did loose a few pounds so the Drs will keep an eye on that. My question . . . at the next Treatment and going forward she will…
haven't posted in awhile
Thought I would post something about my husband Keith's condition. Last time I posted we were just starting out on this-what seems to be the longest trail of our life. He has been a trooper through everything. Within weeks he had a port, imaging, aspiration biopsies, an ileostomy and a ton of tests. We have covered the…
Stereotactic Radiation update-good news
Hello all Yesterday was my last day of 1 to 1.5 hrs of being sucked down under plastic on a mold on a table while a machine out of some Marvel comic strip beams multiple times at me for what sometimes seems like an eternity. No, this was no walk in the park; however, it is having good results. The doc says I am having an…
Any hot cliinical trials you are aware of?
I am likely heading to a clinical trial soon - rising cea, enlarging neck nodes, scans pending. have already been through: FOLFOX/avastin - stopped the oxi due to neuropathy Folfiri/avastin - stopped aVstin due to bowel perforation now on FOLFIRI/erbitux with good initial results (CEA 12 down to 5) but now climbing despite…
Prayers and positive thoughts - UPDATE
Hello - I have not posted much lately but I do read daily. I get my scan results today so I am just dropping in to ask for an extra prayer/postive thoughts my way. I had my scan last Friday and I am meeting with my Oncologist this afternoon. I am a little worried because my CEA went from 3.1 to 6.1 from November with my…
PET scan results today
I will be getting my PET scan results this afternoon...i am really not too axious about the results but would like the time tomday to go by quickly so I can find out what the scan shows...if anything. I will keep you posted on my report. Thanks to all who have prayed form me and I will continue to pray for each of you.…
broke my heart, met face to face with a real long term survivor
I went to my cancer general cancer support group yesterday. only about 12 turned up. one other guy who happended to have colorectal sat next to me. small world. we sit in a circle and share for about 2 hours, weekly. but I can go only once a fortnight as it clashes with chemo day. this is not related to the bowel cancer…
Clinical trial success stories needed!
I am creating this page for my husband, Tony. In March of 2010 he was diagnosed with stage IV cancer of the small intestine during a hernia operation (which turned out to be cancer causing the hernia). We chose Vanderbilt as our hospital. At that point, the CT/PET showed tumors on the small intestine, colon, liver,…
brenda passed away
Brenda passed away about 1:00 am this morning. I was with her when she died. She seemed and peace and it was not a difficult death. My heart is breaking. Have lost my very closet friend and has left my 15 year old neice without a mother and an alchoholic father. We just got home froam the hospital at 4:00 am. My neice…
Two lovely ladies
I can't express what I am feeling. My mother died this morning 2 days after her 90th birthday. She has been in a nursing home since last April battling uterine cancer. She's had many bouts with colon cancer and had an ileostomy many, many years ago. She was a petite, beautiful woman and I will miss her dearly. I am…
Treatment plan - need your wisdom
Hi everyone, We have been waiting for Dr. Lenz and our Hawaii onc to talk. We sent the PET and CAT disks to USC and their radiologists read them. Dr. L advice is for **** to go back on Folfori + Avastin. He said that there was no growth in the lungs until **** went off this. Also, we saw shrinkage in the node (but it did…
Petscan or CT scan
Ok so here's my question. As you all know I just finished up my 12th round of chemo and I also had colon and liver surgeries in the last 10 months. My CEA number was 26 at it's highest point and was 2.0 at my last chemo. I am due to have a CT scan on Feb 1st and a colonoscopy on Feb 26th. My Onc says he like to start with…
My story
Unlike @$$holes, everyone has one, but I was thinking that maybe it was for me to share mine: First, despite the hat, I am not a cowboy. No, I am just some guy who sells wine and can read a spreadsheet. I am 6'4" tall, and usually weigh in near 250lbs, so with the boots and the hat you could say I stand out in a crowd :)…
Viagra and the single man......and yes its cancer related cause it makes ya forget it for a minute..
Yep back in tha day when I was a young lad and single I had 2 girls that would visit me occasionally whenever I felt as though I needed companionship and it was a mutual agreement so no harm no foul, until one weekend feeling good and frisky I decided to call both of them over for an all weekend hulabaloo....I went to tha…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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