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post chemo itching
so today I am about 15 months out of xeloda and oxy...went for a really vigorous walk and suddenly thought...wow! I am not itching!!! for about 12 months after that chemo if I got warm I would have intense itching on arms and trunk....well not even itching as much as burning stinging...yeh it would be itching did anyone…
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initial visit with oncologist
well i am home from vanderbilt after meeting Dr. Emily Chan. she gave me her formula of 4 chemo drugs, one of which is specifically designed for the liver mets. she is going to contact a local group so i can have my treatments done here, also wants me to have a ct scan of liver. Goal is to shrink the 4 tumors to a point…
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“Sundance Magazine Project Closed – So Many Folks to Thank”
Well, went to the post office after treatment today and mailed out the last batch of magazines. The Sundance project is now completed and I’ve got so many people to thank for making this all happen. The project was a big success! 78 copies of the magazine were sent all across the world. We touched down in England, Spain,…
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Stage 4 survivor
I was diagnosed with Stage 4 colon cancer on Sept 29, 2007. I had surgery and chose not to have chemo treatments 6 months later PET scan all clear then in Dec 2008 I had reaccurance in my ovary and had surgery Jan 20, 2009. Since then I am cancer free. I was directed to this site shortly after my initial diaganoses in Oct…
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lmliess and Robinvan
Hadn't seen any posts from either of you lately. Wanted you to know you are both in my thoughts. Hope all is well. Amy
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Remembring
This is a paste from another post. Please let us remember all the survivors and the ones that struggled and lost. It seems like we give tribute to certain members and not others and this is wrong. Please give acknowledement to all members who have lost their life and the ones who are still fighting for a cure. We need not…
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Oh Happy Day
Wow this has been such a big day for me. Had blood work earlier this month and then had a CT scan on October 15. This six month scan is always so scary for me as this will tell if the cancer has come back. Waiting from October 15 until today which is the 27th to go to the oncologist and get the results has set me in panic…
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New Long-Term Survivors Board
At the recent Colon Palooza in Texas it was discussed that having a board for long time survivors and their inherit issues would be nice. I was asked to contact Greta @CSN about it. She agreed and she and her staff have added one under the others list. I'm not active on this site much any more since the chemo options, side…
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Folfiri & Avastin w/ no signs of cancer
I'm newly dx stage4. My team wants to put me on my second round of chemo as I guess the first round,folfox, wasn't successful and recurred in my ovaries. I've had a hysterectomy and now I need to go 12 rounds with folfiri and Avastin with 5fu and Avastin after for maintenance for who knows how long. I don't have any other…
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Lymphocyte's are low
My lymphocytes are low and was wondering if anyone knew anything about this. My doctor said it was chemo induced, but they just don't want to bounce back. They are just hovering at the same level. She said she could order some blood tests for lupus or HIV, but I don't have any of those symptoms. She also said that my…
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Second opinion
I sent my records to my friend who is a nurse in oncology radiology at Duke. The doctor she works with (somewhat famous) agreed to look over my case for no charge. He's been really busy, but finally had a chance to go over it. He decided to present it at their conference meeting next Tuesday. So I'll get the benefit of a…
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Blessings
I have been really blessed. I may have been cursed with colon cancer but I found out that I have been blessed with a great Family, Friends and Neighbors. I have not cooked for such a long time. Everyone is dropping off meals for my family, My mother made a turkey dinner on Monday last week on Wed she made Veg. Soup, On…
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colonoscopy #4 ....
And with each one I hate Gatorade even more! What a night! and, alas...4 MORE polyps... It's really kind of sad that at this point I can go to this place and know the nurses by name, and also run into people I know in the waiting room... This time however, he said he didn't need to see me back for 2 years, which is fine…
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When vital drugs run out, patients pay the price
By JoNel Aleccia Health writer msnbc.com msnbc.com updated 10/27/2010 8:24:19 AM ET http://www.msnbc.msn.com/id/39798646/ns/health-health_care When vital drugs run out, patients pay the price 150 medications in short supply so far this year; deaths, injuries have followed Cancer patient Bob Dierker had just finished eight…
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alcohol, tylenol with liver mets?
I was going to ask my doctor but then remembered i have this resource at my disposal so here is my query. Is it safe to drink alcohol or take products containing aceteminophen with liver lesions? as a former R.N. i knew that both are metabolized in the liver and were containdicated in liver dx, has anyone asked their doc…
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scared
hey guys just to let you know i cant stop thinking of Eric's passing.I know what i'm thinking is bad but i cant stop.I look at my husband Jorge with his his stage4 to the liver that's Eric had and year ago now i'm looking at Jorge thinking about him passing away.i'm sooo scare
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JohnSFO update
I know we haven't been active here in a long time, but for the sake of those of you who remember us, I thought I'd give an update. Things change quickly and John's cancer (just over 3 years now and over 1 year with sacral mets) has continued to spread aggressively and appears to now be blocking one of the ureters causing…
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Lit a candle for Eric
If you are interested there is a lovely place on gratefulness.org where you can light a candle for someone. I started a group called "Eric" . If you would like you can go to that group and light a candle. I find gratefulness.org to be a peaceful site to visit. Here's the link:…
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Dear Lord, Heck, maybe Hell
Dear Lord, You know me, I haven't been a faithful servant, heck, well, I've never been to prison, so I figure that counts for something. I've never totally denounced you, only half way cursed you now and then again. But, heck, I'm only human. I'm just praying for a lot of souls lately, to deny that mine is included in…
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Note from Eric's Sister
Find myself coming here for comfort....something Eric always gave me. Sitting here trying to summarize what my brother has meant to me for a funeral service when i keep wanting to walk in his room and kiss him on the head like i have done from months. My head and my heart cannot make sense of this process. So, for those of…
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I kind of got lost there for a moment or two
Strangest thing, I went outside yesterday, and my gardening Angel had a flower in her hand, and the flower was pointed up, and so fine looking. It looked freshly plucked. The only problem with the picture was that very same flower for the past couple of days had been wilted, and definitely facing way down to the ground. I…
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Cal / Mag infusion prior to Chemo Attn Craig
Hi everyone! I told Craig that I would report on Jacks side effects (or lack of) after receiving the Cal/Mag infusion before his chemo. The first night he did have sensitivity with his first bite of food. He did feel a shock when he picked up a bag of ice the next day(it's amazing how fast we forget...ha) He was able to…
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Scan was clean
Hello all. 4.5 years ago I was dx Stage 4. Just had a third lung surgery in August and as usual was worried about this 3 month scan. All was clear and CEA under 1. YEA!!!I know there is so much pain here but moments of celebration are need ed as well. KEEP FIGHTING ALL! Chip
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folfox side effects
Hi Friends! So, I started folfox 7 weeks ago. I didn't have too severe of side effects but 13 days later I had an emergency gallbladder surgery. So that put treatments off for another 4 weeks. Last week I had my 2nd folfox treatment and I was very tired, felt sick, had some reaction to drinking cold water (forgot to watch…
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Breath of fresh air in Guatemala
So far, all I can say about my treatment is this is the way it should be. Complete harmony. I showed up for my appointment on time. They escorted me directly to treatment room. A Dr was in the room with me at all times. The nurses were quick and knowledgable and relayed everything they gathered directly to the Dr. I had…
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Flu shot ?
What do you all think about flu shots? Should Jim have one? Should I get one to help protect him? We never have gotten them. Thanks
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Natalie - Braelee2 how are you doing?
Hi Natalie, I know you were having a tough time with the FOLFOX. How are you doing now? I hope better! Do you have any more information on the suspicous mass? I'm wishing you the very best.
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Jorge
well guys Jorge has got his chemo off on sunday .today he said he feels awesome now we just need to wait for the day we need to go for the ct scan.oh what a waiting game it has become.
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hello, my name is amber and i have colon cancer
i should say with mets to liver since that's what is consuming my thoughts these days, i am going to vanderbilt thusday to meet my oncologist, never thought i would be saying those words, not me. i have written my story on the about me tab if you want to read it, i don't feel like typing it again and since i have cancer i…
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Heading to Texas
I will be in Phoenix, San Antonio, and Corpus Christi over the next couple weeks. I will be visiting family, can't wait to get going!