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Pretty good news!
I just got an e-mail from my onc and the scan was clear. That is great news. The only glitch was a CEA rising from 1 to 4 in the 6 months since the last scan. His suggestion is a CEA test in 2 months and then see is there is a change... I will talk to him Tuesday but overall good news. Thanks all Chip
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New to board mom diagnosed 4/19
Hi my mom was diagnosed last Monday and Thursday, we had the 1st appointment with the Oncologist who believes it's between stage 2 and 3,the 1st pet scan is scheduled for Monday and chemoradition will start soon after I know everyone is different but what can I expect in the way of sickness after treatment.Oh my name in…
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Question on minor side effects
I completed chemo and radiation on April 6, 2010. Was on Xeloda and oxaliplatin for 6 weeks. Wondering when ability to tastes gets back to normal? Not a big impact, but as I make my own beer, mead, wines, and ciders, the ability to taste is a big part of the process. Also, anyone experience neck pain following chemo? In…
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Hospice
This is a heart wrenching post for me to write. Over the weekend, my sister had some more excrutiating pain in her back. She went back to the hospital where they had to re-stent her kidneys and liver. New tumors had grown blocking the stents. She was able to receive much needed pain relief from the surgery. However, it was…
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The Reading Room: NY Times-FDA Steps Up Oversight of Infusion Pumps
22 Units of medication....or was that supposed to be 2 units ???? Just when I thought we had enough to worry about, now we have to worry about "key bounce:" Link: FDA Steps Up Oversight of Infusion Pumps Hatshepsut
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96% 5-year survival for Stage IIA
I read that if there is no Allelic loss of chromosome 18p then the survival rate for Stage IIA colon cancer is 96%, as opposed to 54% if there is a loss. Does anyone know how they test for an allelic loss of chromosome 18p? Is it the same as the test for loss of expression, or for the P53 gene? This all gets very confusing…
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Scientist: FDA suppressed imaging safety concerns for colon cancer screening
Dr. Julian Nicholas said at a public hearing that he and other FDA staffers "were pressured to change their scientific opinion," after they opposed the approval of a CT scanner for routine colon cancer screening. Nicholas said that he objected to exposing otherwise healthy patients to the cancer risks of radiation.…
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If you can avoid it, don't use a teaching hospital for colon surgery
as they are said to have a higher death rate, according to article at medicalnewstoday.com entitled:"Teaching Hospital Status Asscociated With Death Rate After Colon Surgery", dated 4/23.........steve
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Sorry its been awhile--chris
Hi my family, I no its been awhile and things have not been too good.. More blood clots, cancer has spread to his liver and mass in the lungs they thought was blood clot residue is cancer.. We are taking this very hard and not doing so good. Chris will have another PET scan on the 29th.. so far he wants to do no treatment.…
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colon cleanse
How does a comercial colon cleanse differ from what we do in preparing for a colonoscopy? I've got pictures of my colon and it looked pretty darn clean a couple months ago, LOL... I am on a very healthy diet (fruits, veggies, yogurt,whole grains & seeds plus a probiotic and vitamins)and have very regular bowel movements…
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Though of the Day
“Do not compare yourself with others, for you are a unique and wonderful creation. Make your own beautiful footprints in the snow.” ~ Barbara Kimball
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Friday Riddle
Remember NO GOOLGING or SEARCHING the Internet allowed and good luck!!!!!!!!!!!!!! RIDDLE: n + n + .... n times = n^2. differentiating both sides with n we get 1 + 1 +.... n times = 2*n or n = 2*n find the flaw?
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Patti Pyles
Patricia Gail Pyles: 1/10/68 - 4/23/10 Much loved Wife, Mother, Sister, and Friend. From Patti's family: Friday, April 23, 2010 11:30 This is the most difficult post to make: Patti lost her battle this morning and has gone to be with her parents and the Lord. Details on services are forthcoming and will be posted as soon…
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This is something that has been bugging me for over a year
This is something that has been bugging me for over a year. Has anyone here had a near death experience?? I don’t want to discuss the subject on the open forum. Don’t know why. Could you contact me via private mail.
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Worst Cereals
I just read this article and wanted to share it. WORST ICONIC CEREAL Kellogg’s Raisin Bran (1 cup) 190 calories 1.5 g fat (0 g saturated) 7 g fiber 19 g sugars It'll be hard to find a more sugar-loaded cereal than Raisin Bran. It’s sweeter than even Lucky Charms, Reese’s Puffs, or Cocoa Krispies. Some of that sugar can be…
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Hi its me Michelle
I just want to say that you are all in my thoughts daily,and wishing good health. It was ayear on friday the 16 that angel died and yesterday was the day he was buried my mother in law stayed with me all week she leaves today i will miss her. we made alot of trips to the cemetary so she could be close to her son and i was…
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Apt. with the Oncologist
Met with the oncologist yesterday and well, I guess no news is really good news. Cancer is stable and still shrinking. All of George's blood counts, tests, liver test/counts, and the like all come back good, well very good. He has maintained weight and and his breathing is good, no problems with the lung mets. Is the…
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Waited... for nothing
Well, after my onc told me he was taking me off of irronotecan and avastin he set me up to go to UCSF as he felt there they might have something to help me. I am stage 4 colon cancer, with mets to the lungs. The spots have not done much in the 2 years since dx. They shrink a bit and come back, but just don't go away! I saw…
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Possible Blockage?
My mom is 1 week post op as of yesterday (tumor removed from rectum and temp ileo to let it heal) and was doing great until this morning. She got up, had a bowl of cereal and some OJ, then went back to bed for a bit. Got up again around 8:30 and got sick. She noticed she also wasnt getting much out of her ileo so she…
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Just found out
Hello Wish myself and everyone else did not have to be on this site. Just found out Monday, Feb 19 I have rectal cancer. Don't know what stage yet, will find out Monday after ultrasound. Tumor is about 8cm so it's pretty large. Good news I guess is catscan and xray showed all organs to be ok, blood work great. 1 lymph node…
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Were 14 treatments of 5-FU and leucovorin enough?
I was supposed to receive a total of 24 treatments of 5-FU and leucovorin, which were to be given in four cycles. In each cycle I would be given these chemo drugs once a week for six weeks and then have two weeks off. After 14 treatments my oncologist stopped my treatments because of a perforated colon. Were 14 treatments…
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Tuesday is my day
I get my pet scan at 8 am and see the surgen at 11:20 am and talk about surgery ASAP I hope found out I am stage 4 in this stuff so the sooner it comes out the sooner I will buy a new bathing suit...,
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Colonoscopy with no sedation..I did it!!
I had my 6 month colonoscopy today. The prep was horrid this time. Stayed in my stomach for hours…all 64 oz. and I ended up having to take Zofran to keep from upchucking. Finally went to bed and that is when it all started moving…ALL night long! Here is the good part. I had been thinking of asking for no sedation because…
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burning veins
Just had my first oxaliplatin chemo yesterday and my veins on each arm felt like they were burning. Any one else have this happen to them? I start Xeloda tonight. I had colorectal cancer resection 2 years ago with chemo but only could get through 4 treatments out of 12. Then Jan this year had lung surgery to take out a…
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Cancer Centers of America
Hi, Does anyone have any experience with the Cancer Centers of America? My husband has Stage 4 colon cancer and after meeting with an onc yesterday, we are exploring going to the Cancer Centers of America. Is anyone being treated by them or knows of anyone that is, and if so, what is your opinion of their care? An…
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Have any of you heard about this little girl
I just read about this little girl who is 11 and fighting stage IV colon cancer.The story was on the Facebook site of C3: Colon Cancer Alliance. Here is her story: 11-year old with cancer temporarily locating to Houston for medical care Charity ride planned for Carey CLEVELAND COUNTY, NC (WBTV) - 11-year old Carey Heavner…
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New weapons coming. This battle WILL be won someday
Article on new technology in the works. http://www.technewsworld.com/story/Nanobots-Flip-Off-Cancer-Switch-in-Cells-69597.html?wlc=1271949837 It is proven to work but now the testing will drag it out for years. Someone has to lobby the government to QUIT trying to "protect" us from technology. There are numerous methods of…
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Sirspheres, y-90, theraspheres...
My mom is getting this done as I type this. I'm just wondering what to expect after the therapy by way of nausea? Anyone had this recently that can give me some tips? Much appreciated.
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Follow-up CT
Had my post-chemo CT scan this morning. Hope everthing comes back clear. Would hate to have to do this all over again. I was NED before treatment, but guess you never know for certain. The beast lurks even though it's not around! -DJ
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UPDATE****We Need Prayers
I'm writing this from my iPhone on the way back from Syracuse, NY. My husband was scheduled for his third chemo treatment. It didn't happen. Instead his doctor told him that ge has from maybe 4 weeks to 6 months to live. She said that his bilirubin us 12, his CEA is over 20,000. I'm in a car with no tissue, so trying hard…