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Colorectal Cancer

Archives for July 2009

2nd port today, VERY nervous
Very nervous today, I go in for a 2nd port on the left side. The 1st one gave me a nice long blood clot on the right. I changed doctors and hospital, my new doc tells me as long as I'm the blood thinners I'll be ok. I hope he's right, I have my 3rd round of chemo Wednesday. He will reduce my Oxy 13% because I've had a lot…
Gotta Brag
While I know so many are currently struggling finding a good oncology team and second opinions, some of us have already fought that gauntlet and reached nirvana. I'm one of the lucky ones with superb care. While I was as the Liver Symposium in Chicago in May, one of the speakers called my Radiation Oncologist the 'guru'…
Friday Riddle Answer
RIDDLE: How can you arrange four ordinary wineglasses on an ordinary table so that "foot" (center of the bottom of the stem) of each is the same distance from all the others? ANSWER: Place the first three in an equilateral triangle so that the foot of each is the same distance from the others as the height of a wineglass.…
FAPmom & Tiny one
Hi Jackie! I know i'm not checking in as often as i should, but i haven't seen any posts from you. How are you doing? I know they've fixed you up some, and hopefully you're out enjoying your new life! Drop an e- to let us know how you're doing! Tiny, i read one of your posts recently that you're still having trouble. I…
Does anyone know of good cancer treatment centers in China?
Does anyone know of good cancer treatment centers in China? My Dad was diagnosed with rectal cancer in June, had surgery, and just finished first round of chemo in China. I wonder if anyone on this board is aware of any good cancer treatment centers in China (including Hong Kong and Macao). He is Stage IIIC with 4 out of 5…
Dad's Rectal Cancer Treated Overseas
My Dad was diagnosed with rectal cancer on June 12, 2009 overseas. He had a surgery on June 16. The surgeons told us the surgery was successful. The biopsy came out a week later to show that 4 out 5 lymph nodes were positive, the ends of the resection area were negative, and the cancer cells were moderately differentiated.…
Simply Me- How is your husband?
Hi Rose, Although I didn't reply to your post in early May about your husband (I guess I must have missed it), I just read it recently and I'm wondering how your husband is doing. You mentioned that you both decided on going to Memorial Sloan Kettering for a few weeks in June. How did things go and what is the latest on…
Reassurance
A couple of people have posted pleas for reassurance in the last few days. I've been there. I understand. I will be forever grateful to people on this site who answered my questions, calmed my fears about my husband's illness, and welcomed me as a "member of the family" although I'm only the caregiver. For those who need…
Please need some inspiration today
Hello all, I have been looking and looking for stage 4 ned or better and not having much luck. I am stage 4 with big mets to liver and looking for some inspiration today! feeling down and needing support. I find myself always asking for something on this sight instead of contributing. I hope to get to contributing soon!…
Surgery NEVER possible
Hey Everybody, I just returned from M.D.Anderson today after going thru port placement and 2 chemo treatments. I guess the most important issue there was a second opinion. They agreed with Onc here.... My liver and lung mets are not now... nor will they ever be operable. I cannot have a surgery that requires me to be…
Happy 4th all you lovely semi colons !!!
Happy 4th to all of you. Thanks for sharing your struggles and being such a support for others in spite of having your own set of troubles. You have been a great support and comfort to me. I hope you enjoy every bit of this holiday and the time spent with your families. I know I will. Eric (:.)
Interesting New York Times Article about Recovery and Psychology
Here is an interesting article about one person's experience after cancer treatment. NYTimes Although I am only the caregiver, my experience with my husband's illness has been that dealing with post-treatment recovery (even after the wonderful diagnosis of NED) is fraught with emotional traps. Hatshepsut
Thank you for your prayers. My sister in law is now out of pain
A little over a week ago, I shared that my sister-in-law, Linda Penny, had been diagnosed with a glioblastoma, a brain tumor. Your prayers were welcome and the family appreciates your concern. Linda died this morning at her home in Lawrence, Kansas. Despite surgery, the tumor was too involved and it took her quickly. The…
stoma hernia repair
Colostomy was done on June 7, 2008 Take down was done on Feb 2, 2009 CT scan 2 weeks ago showed 2 hernias, one large and one small. I talked to my colorectal surgeon at Mayo last week. She said repairing it is "patient preference"- I am a teacher, on my feet all day and by the end of the day the area aches. So, I am…
July 4
Wishing everybody a Happy 4th of July! Have a safe a wonderful day no matter what it is you do.
done with treatment, yet time to start dealing with it
Hi I was diagonsed stage 3B on May 20, 2008. I have been through 2 surgeries at Mayo in Rochester, MN and 3 hospitalizations for chemo related reactions, 6 months of chemo- had my first CT post-treatment 2 weeks ago, already heading back to Mayo for hernia repair on July 15. I am struggling with chemo related issues;…
How do you tell your family/friends?
Ny husband really wants to play this low key until we know more - after surgery - I highly doubt that is going to be possible as we have good friends and family that deserve to know what is going on....how should we tell and how should we respond? Any advice or personal stories would be appreciated!
Question about CEA?
This may be a silly question...when I saw my ONC this week he said my CEA level was .8 and preop it was 4.9. He said that was good, but sometimes he talks really fast and moves on to the next subject I loose track of what he said. Is .8 good? I think it is, just wanted some confirmation.
Chemo's got me down today
Hi all, had round two of chemo and was feeling pretty good until the bag came off, I went to shower and felt weak, drained and sooo tired. Had to sit down and regain myself. I am personally having trouble with bowels still. I go from constipated to cramping with loose stools... is this normal for about 46 days out of…
Jackson Memorial Tickets Available Through LOTTERY
I just read an unnerving article on CNN.com about Jackson. Apparently, you can go on-line and register for one of 17,500 tickets available for the Jackson Memorial at the Staples Center next Tuesday. How weird is that? What is this world coming to? 9 days of this stuff and there is still no plans for a burial - it's just…
starting study on the 13 th need help
i have never posted before but i have been reading and you all have been such a big help. i found out march of 07 i had colon cancer stage 4 mets to the liver. colon resection in march of 07 then in july of 07 liver resection. chemo after folfox and avastin 6 months off then cea started to go up so i went back to…
Talked to my doctor
Just realized I never posted the rest of the story. I saw my doctor on Wednesday, and he surprised me with one piece of news. Apparently the ER doc misspoke. When he came in and asked me if I'd ever had a lung nodule, he must have been thinking ahead and wondering about that. Because what the CT scan showed was a possible…
They posted my letter
Just and FYI. The local paper did post my letter about the lack of coverage Farrah got and the over saturation that MJ is getting. And is still getting... I will let you know if I get any feedback on it. -p
Results from very first cat scan...
Well we lucked out - the cancer has not spread. DH will have surgery and possibly 1 round of chemo and hopefully that will take care of it. Why might they do a round of chemo after the surgery? Can anyone give me information on recovery time and what happens after the surgery, and life style changes that may occur. DH…
scan results
I went to the dr. yesterday to get the resuls of my scan.Great news I'm still ned after a year. I just want to thank you all for your support and kindness when i have posted don't do it much but when i have you have been there for me. Thanks again.
3 YEARS ago today, my LAST cancer treatment!!!!!
After my stage III rectal cancer diagnosis in December of 2004, and the chemo, rads, and surgery (times 2) for that, and my stage II breast cancer diagnosis in July of 2005 with the surgery (lumpectomy), chemo, and rads...my LAST rad treatment was July 3, 2006!!!! The only remnant is the Tamoxifen, and my lactose…
New diagnosis, a few questions
Hi everyone, I've been reading here for a few days now and I must say that I am so impressed with everyones attitudes and honest caring for each other. After much research, I knew this was the place to get answers and support for my friend. A little background. On Monday of this week my good friend and neighbor went to the…
bumps on edge of stoma
I will try to explain what it is. around the edge of the inside of the stoma is little round bumps that look like skin is this any thing to be concerned about hope you understand.
Prayers Please!!!
Hi, My family and I ask for prayers at this time, as always. The prayers of caring people is POWERFUL!!!
The ongoing travel update...lol!
I just posted more of my Holland pics... We have visitors...3 cows are now in the back yard...one of our tennant farmers brought them over...WOW! and are they BIG!!! We traveled to Emmen, and walked thru a beautiful green forest. We then sat on the terrace and had ice cream...it was a beautiful day. We eat fish ALOT! Raw…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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