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Colorectal Cancer

Archives for April 2009

colo-anal internal colostomy bag
Hi, Although I've not had the colon surgery myself, this idea always intrigued me- especially since I've already been told if I ever do have a recurrence in the rectum or colon that I would need the surgery. A neighbor's son who had ulcerative colitis needed a colostomy a couple of years ago. My neighbor told me that he…
"maintenance" chemo
Hi folks....who has had ( or is having) "maintenance chemo"? Would you share your experiences? I am stage IV and my onc says I have 'systemic" advanced disease...yikes that sounds nasty, huh? Does this mean we stay on chemo forever????????
How do you manage the side effects associated with Erbitux?
I just had an RFA procedure peformed to treat a 1cm spot on the right lobe of my liver. Consequently, I will be starting on Erbitux and Irinotecan the week after next. Does anyone have any feedback on what I can present to my doctor in our efforts to be proactive in mitigating some of the negative side effects? Any best…
If anyone is interested I put my story" Cancer Changes Everthing"
I wrote about my experience with the big "C". It does not have every detail but it has the biggest part of it. I went through alot more then that, but I didn't put the personal stuff in it. It has not been an easy journey, but I would not give up! I have been fighting all my life and I have learned alot. I appreciate the…
Anyone had adhesions?
I am having severe abdominal pain and I went to the ER. They did a x-ray and found nothing but some gas spots. But the pain is no better. I had someone ask me about adhesions and I have never heard about them. I have had a perm. ileostomy since 2006, so I am confused. I go to a cancer center on the 16th of April, I will…
lung mets...what stage were you
I've seen post from many of you that have lung mets. What stage colon cancer were you, what was your treatment, and how were your mets discovered? I ask because I was stage 3B, had surgery, and 12 rounds of folfox. It has been 6 months (so far so good) just wondered what the chances of this happening to me is. I know we…
Rectal Ulcers Post Colectomy
Hello, It has been a while since I posted, but check the board regularly to keep up with you all. As always I am hoping and wishing for the best for everyone here. I recently had a follow up rectal scope (I had an ileorectal anastamosis done and only have 6 inches of rectum left and no colon), and they found two ulcers.…
Buzzard.....
I'm thinking of you and missing you, please post something that can uplift us, I sooo look forward to your inspiring messages. You are needed here :( Hugsss! ~Donna
Looking for people to talk to who have had a colostomy bag or have gone through treatment and surger
My grandmother was recently diagnosed and is scheduled to start radiation to reduce the size of the tumor next week. After 5 weeks they would like to operate and depending on how the surgery goes, she may need a colostomy bag afterwards. She would like to talk to anyone who has gone through treatment, has had this type of…
How do you all cope when you have your down days?
just wondering how everyone copes? tips, pointers from the old timers (lol, please don't be offended not saying that age wise, saying it as some of you have had cancer longer or are NED and have experience) Just sometimes I get down, think all sorts about the cancer. My husband usually snaps me out if it, but he is going…
Stage IV Seeking Answers....
What do I have to look forward to? Has anyone else had a similar diagnosis?
Constipaption after chemo
I've had 3 chemo treatments and have had 'bathroom problems' for about 4 days after each treatment. I have no problems the rest of the time. I've noticed many of you have had bowel obstructions or serious problems during chemo, some required hospitalization. I want to avoid that. I have a treatment this coming Wednesday…
Hubby had surgery
Hi, Well my husband had his laproscopic liver resection yesterday. All went good, they used a robot and took out the 1 liver met, it was 1 cm. and was colon cancer. The doc said he will have some follow up chemo, which I am glad he will have. He said he used an ultrasound while in there, and there were no other tumors. He…
Lisa42 - Question re Lung Mets
Hey Lisa, I just copied a bit of information from another post you made because I have a question or two and am curious because we seem to be in a similar, although not exactly the same situation. -8/08- PET scan showed recurrence- 1 lesion in liver & numerous in lungs- back on chemo -3/09- CT scan showed liver lesion and…
Slightly scary, but overall a good oncologist visit today
Well, today's visit was a very interesting one indeed. First I met with an "oncologist intern" and I was super impressed with him... more so because I have found some oncologist interns really should not be doing their practicum with patients until they've taken a "Patient 101" course. They have the knowledge and are very…
9 down 3 to go. and where is everybody?
I guess the title says it all. I am so much more tired this time around tho. I talked to the onc Tuesday and told her (substituting for mine who is on vacation somewhere warm i assume) about the pain I have had in my legs and the headaches. We assume they are from the steroid, but got a prescription for vicodin this time -…
good news
Well, the oncologist that I consulted with at UCSD concurred with my regular oncologist that he would also do a PET scan to determine if the lung nodules that are remaining in my lungs are metabolically active or not, before deciding on the "what next". I was amazed at how fast things went- the order for the PET was just…
Hans update....
Thank you, thank you, all for your warm thoughts and prayers! And thank you, Lisa, for the thread! Hans is taking a nap right now, so I have a few minutes. He is definately mentally damaged. His words. He has to look at the callendar to figure out what day it is. Small things mainly, mostly short term memory stuff. But, he…
BETINA61
Betina - Tried to drop you a note with Katie's and my phone number and our home e-mail address, but got a "betina61 does not accept private messages" prompt. Drop us a note on the CSN e-mail network and we will exchange numbers/home e-mail addresses. Cheers! - SB
Some good news for a change
Hi all, Bill just got a call from the onc.... The biopsey of the tailbone area came back clean! They are sending him for another CT scan and blood work. The last CT showed 2 tumors on the liver, as well as the ellivated CEA. The CEA has been a good marker for Bill. Now I have a question for those who have had tumors there.…
Advise on ERBITUX CHIMOTHERAPY !!!!
mY DEAR HUSBAND HAD HIS CANCER CAME BACK ON 2/20/09.COLON CANCER.OUR ONCOLOGIST IS SUGGESTING ERBITUX TREATMENT FOR A LITTLE TIME. HAS ANYONW USED THIS TREATMENT AND WHAT ARE THE SIDE EFFECTS ON THIS CHIMO....DO YOU LOOSE YOUR HAIR,DO YOU FEEL SICK? PLEASE IF ANYONE OUT THERE CAN HELP US....AS WE ARE SCHEDULE TO RECVD…
Has Anyone Heard From..............
VINNY3
Surgery update
Stage 4 here dx 9/06. Liver surgery, 2 lung surgeries, Folfox, I am now suffering emmmm... "recovering" at home from the second lung surgery. Over all things went OK. Surgery Monday and a tough first day... a horrible experience Tuesday with a couple collapsed lungs and real struggles. I actually had the Code "You are…
Juicing revisited....
Hi everyone! I was just wondering, for those of you that juice, what recipes do you use? I've done so much reading on anti-cancer foods and I'm just confused as to what would be the best veggie/fruit combo for me. I try to juice at least 4 times per week and I find that I'm putting everything in but the kitchen sink. My…
How did you do it?
Hello all, I'm visiting from the Stomach cancer board. My husband was dx with stomach cancer in Jan. The tumor was unresectable so the plan was for him to undergo 3 rounds of chemo in an effort to shrink the tumor then remove it. Well, he finished his chemo (I must say he tolerated it well) and had his CT. The chemo had…
FRIDAY RIDDLE
RIDDLE: I can sizzle like bacon, I am made with an egg, I have plenty of backbone, but lack a good leg, I peel layers like onions, but still remain whole, I can be long, like a flagpole, yet fit in a hole, What am I?
ColonPalooza Conspiracy :)
Hahaha... I knew that would get your attention ... but seriously, I think there's a CP conspiracy happening here. I know Scouty and others have started some topics regarding this year's ColonPalooza get together down in Key West and I can't find any of the topics now!! I have checked through the first four pages and the…
Possible obstruction- CT Friday
Well- Mom's resection was just before last Thanksgiving. She has been having trouble since her last (5th) treatment. Her potassium today was 4.1 so only got iv hydration today. So that is one thing that seems to be getting under control. The oncologist was concerned about her symptoms saying they are very unusual. He…
chemo and sun
I love beeing outside this time of year going to Oceancity in May DR said only 10 minutes in sun at a time because of chemo how bad are the side affecxts anyone know if its not life threating I can deal with it but you know drs
finding an oncologist
My sister has stage IV colon cancer and is looking for a new oncologist. Her current one is not very supportive or hopeful. She really needs someone who can back her up, give her hope as well as one who is empathic. Her current doctor is at UCDavis and she is near to UCSanFranciso.I guess I am wondering, despite statistics…

Colorectal Cancer

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