Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for March 2009

Where is Pancreatic Cancer here? Astronomical CA19.9 levels...
My father is a 16-month pancreatic cancer survivor. Originally, when he was diagnosed, he had a very strange CA19.9 level of 180,000U/mL. Luckily, when he started chemo, this number started to go down and he actually reached 10 percent of the original number (1,500) before it turned around. What is strange is that the…
lmliess
Shes probably in recovery and lets all pray that she will come out with positive news and her journey be as gentle as possible....Heres to you hun in hopes for a speedy recovery and a great outcome and to your caregiver (hubby) that God watch over him also and surrounds the both of you with His comforting arms...God Bless…
1 year to the minute
This goes out to all those recently diagnosed stage 4 with mets. It's been 1 year since a doctor told me I had 2 maybe three months to live. I was 34 with an 18 month old son. I went to several surgeons and oncologist who said my cancer was simply too advanced to treat. Most agreed they could medicate me and make me…
Exercise Increases Survival Rates by 55%
I'm not sure how much exercise one can do while weak from chemo, but this article is worth reading! I was a TRUE couch potato for the last 10 years and sure wish I'd kept active! http://coloncancer.about.com/od/stagesandsurvivalrate1/a/Exercise.htm Diane
good day till mental pain hit me
How do you cope with the mental pain that hits so hard all you want to do is take pills to stop it. I am cancer free but have physical pain almost every day. Then the mental pain comes full force. It is so bad sometimes I don't trust myself. The pain started after a bag reversal. I have gotten help and thought I was ok but…
My husband
My husband has been complaining about a metallic taste in his mouth after chemo. Usually Lemon seems to clear it a bit for him, but he said this time the lemon is not even working. Any one have any suggestions? Sandi
anniversary
Today is my anniversary. We've been married 19 years. Raised 4 boys together. Took care of our parents,sadly they've all passed. My husband was my main support all during this whole cancer thing. He didn't bat an eye when I ended up with my ileostomy bag. He's comforted me during my surgeries, all during treatment and…
chemo side effects
Hi everyone, I am new to this side, just looking for info and knowledge from others who have gone through what I am going through. I had my first treatment today. once a wk oxiplatin(sorry spelt wrong) and 5 days of continious F5U. Radiation every day m-f.. I have heard alot about the cold sensitivities, I didn't get that…
Hi New here
Guess I am looking for a chat room. Having a sleepless night and want to talk to others with colorectal cancer. Nights just get longer for me. edited...waited a little and keep refreshing. Guess no one is available to talk. Hub and kids are asleep and I am just feeling down right now :( Will check back tomorrow. Be Blessed
Nervous about scans tomorrow.
Hi everyone, I haven't been on much lately - FOLFORI has me pretty sick. I'm getting my PET and CT scans tomorrow to see if the mets are shrinking. I'm so nervous and nauseous - I can't tell if it's the chemo or the nerves. I'd appreciate any positive vibes you can spare! Stay strong, Elizabeth
Scan # I don't know - Results
Well I got somewhat good news from last weeks CT scan. Nothing has grown so that is good. Something, which we really have no idea what it is, has shrunk. We will stay on the one drug only (Erbitux) which isn't as bad as taking both (Erbitux & CPT11). I also managed to get to skip a treatment today so I will have my next…
I would like to write about my battle with cancer
I am a F.A.P. baby ( 40 now). I want to write my story the good and the bad, and I am ALIVE! Thanks to GOD, LOVING FAMILY, FRIENDS AND ALL THE PRAYERS, no matter how small help. I am new to the group and want to talk to people going through this awful disease. GOD BLESS! Jackie
Elevated enzymes after FIRST chemo round!
I had blood work and my 2nd chemo this past Wednesday. The oncology nurse called an hour ago to say my liver enzymes are elevated after the FIRST chemo and I have to have blood work before my next round. Also, my potassium is low so they called in meds for that. I have my chemo over a 2 hour period and wear home a pump for…
Tommy....
...Thinking of you doing your first chemo today, hope all is well, and let us know how you are.. you're in our prayers, and will look forward to hearing from you :) Hugsss! ~Donna
What kind of chemo after liver resection?
Hi, I wrote a couple weeks ago about my husband. He just finished his folfox treatment in Jan. had a PET/CT where they found a spot on his liver. He has an appt this Thurs. with a surg. onc. I have read many posts from those with liver resection, who took chemo.. or are taking it now.. could you please tell me what kind…
Keep me in your prayers
I go in to the hospital tommorow (March 10) for my colorectal surgery and colostomy. I am really nervous! I was hoping for a great weekend but I woke up Saturday with a crampy stomach ache and then diarreha (Spelling ?) kicked in all weekend! Now I have to be on the liquid diet so hopefully I got out of the bowel prep that…
numbing agent
I had my ileostomy reversal on Dec 21,07. I still have frequent BM's and then start having slot of soreness. Does anyone know of any creams or sprays that have a numbing effect. I haven't seen any over the counter products. I've heard people mention products with lidocaine.
Treatment #2
I go for #2 tomorrow. I had no side effects with the first one,other than my diet coke tasted awful, and I am praying that I can be that blessed again. I am on Folfox, and will be wearing that wonderful little fanny pack that we all love so well. I am like everyone else, I want to get finished with this and get on with my…
tomorrow is my FIRST chemo and radiation day
I had my port put in on thursday. a little uncomfortable but not bad. tomorrow i start fu5 and oxi... and then come home with my fanny bag till friday. i also have radiation every day too. i am taking a bagel and cream cheese, a fruit and some sour candy balls. i also got the creme for my port. anything else i should…
Why can't they do liver and lung transplants for colon cancer mets to get it out?
I have wondered this forever, and i realize that the answer is probably because if the cancer got to the liver and lungs in the first place, it means it is in the bloodstream/lymph system, but why can't they for instance remove the liver in someone with multiple liver nodules/tumors and replace it with say a section of a…
Almost Finished
Well, my husband is almost finished with his aggressive chemo treatments, 1 left. He will get a month off and then do all the tests and then will go back on maintenance chemo. We have already been told by the oncologist that he will be on chemo for the rest of his life - a small price to pay to be here with his family.…
Off again! Tot ziens!
Well, we have booked another trip to The Netherlands. We leave on the 14th of April, return June 9. My beau is having an 'emergency' heart procedure before we go because he can't stay in normal rhythm...so we shall see... SOOOOO much to do in a bit over a month!!! WHEW! Hugs, Kathi On a sad note, one of my patient…
MY Reality with the number of Treatments
I do not mean to burst anyone's hopes for the number of treatments they are looking at...but, when I had my DX 5 years ago I was set for 6 months of chemo, they surgery in late Sept 04, then 6 months of chemo and that was supposed to be it. 175+ treatments later, I'm still here and ahead of the game (and alive) but I am…
Surgery ?
Any one with rectal cancer how long were you in the hospital and when could you start eating food?
GOT SURGERY DATE
Finally I got the date I go in March 26Th for testing and March 27Th the surgery. But I have a DR appointment on March 19Th and I have to do the clean out thing on the 18Th only can drink liquids till 12:00am and nothing till after the Dr's appointment.One hour drive up there yuk I will be so thirsty.I really do not want…
Abscess Tooth....
...Well, it sure wasn't a mouth sore that I been having, it's an absessed wisdom tooth, I was at the dentist today since the pain was in the jaw, and I still could barely open my mouth, but I have to have it pulled on Monday, and am scared to death! I never had a tooth pulled before, he gave me antibiotics for the…
surgery set
I met with surgeon and onc yesterday and we agreed that surgery ( a second lung resection) was the next move. This was based on met size, location and growth potential. While RFA is a possibility, the surgeon who does both with a radiologist, felt that it is better to go with the resection. I was hoping for VATS (video…
Maglets, where are you??? Yoooo Hoooo!
Just checking... I haven't seen a post of yours for awhile now. Did you go away for awhile, or are you still around home? And how's that snow of yours? Check in when you feel up to it! Hugggggs, Cheryl
Surgery, or not?
I just called my surgeon's office today to find out when I was to go in to the ostomy nurse to talk about the appliances and to get marked and they have no record of my surgery - I am so bummed. He only is at the hospital one day a week and the nurse told me that he already has two very complicated surgeries scheduled for…
11 down....1 more to go
Can't believe its coming up....I just got the needle out for the 11th treatment and no nausea at all but they did do away with the oxil...Didn't get a Neulasta shot either...That'll save me $800 co pay....My feet are pretty numb, hoping that is going to be temporary but if not I'll live with it. The treatment without the…

Colorectal Cancer

Discussion List