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Itchy face
Has anyone out there experienced itching before reaccurance? I have been NED for almost 3 years, had stage 3 colon cancer with 13 positive nodes. Back in 2006 shortly after I finished chemo, I got hives around my belt line. Went to an allergist and he told me that sometimes when a disease tries to return, people will get…
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Two great things happening soon........
I have 2 great things fixing to happen in my life..........#1 Sunday I will become an Ordained Elder of our Church........#2 Tuesday will be my 11th of 12 treatments.......Life is Good.........
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Back to chemo
I took 3 months chemo break to have rectal surgery, after finishing 12 folfox+Avastin. The recent CT scan shows growth of the liver and lung lesions. So I am back to chemo next week. This time it will be Folfiri+Avastin. I have K-Ras mutation, so Erbitux is not for me. They have to cancel my SIRT testing due to the tumor…
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Question for any "Old Timers" out there
I don't mean age wise, I mean people who have been dealing with colon cancer for an extended period of time with at no time being NED. I was dx 5 years ago last week and I've been in treatment ever since with the exception of 2 small breaks (maybe 6-8 weeks off due to not being able to stand it anymore) and have racked up…
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Thank you all and your advice needed
Thanks all... You know how hard it is. I tru;y appreciate your kind words and help getting me back up. Failure was the wrong word choice...more like letting down others... and I know its not true but that is the feeling. I'm better, your words helped A LOT and getting fighting mad again... For those that know the…
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my turn
i guess its my turn now just got a call i go monday to have my port put in [yeehaw] i am so scared but i know i can count on my friends here. i had a bad day yesterday after my onc told me 12 rounds in 6 months but i just have to cowgirl up and do it. hope everyone is having a good day......God bless johnnybegood
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Rectal Cancer Surgery?
I am nearing the end of a 28 session radiation therapy. The next step is surgery. I was told throughout the diagnostic phase that a colostomy would be necessary and likely be permanent. I want to avoid this. I am looking for new surgical techniques to best my chances. Any input is greatly appreciated. I have begun my…
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Face Book
I wonder how many of us are on Face Book, I am, you can find me under Janie Bennett....I have pics there and its appears to be a fun place and much easier to use then myspace...If anyone wants to look me up feel free. Beth aka Janie
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Results not so great
Well I talked to onc at Stanford about my last CT scan (Stage 4 9/06, liver and lung surgery for mets and chemo) I have been clear for the last year. This last one showed a 8mm lesion near the margin of the last lung resection. It is not great news but not terrible either. I just feel disappointed and down. I teach and…
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Rising AST/ALT liver levels
Hi all, Need some feedback here. My husband Jerry 42 now just had a b-day is on folfox and erbitux (trial) for 6 month stage 3b colon. Anyway he's been doing great and just finished treatment 4 of folfox and of 8 of erbitux. Not to bad side effects well he went in on Wednesday and his labs showed that his liver enzymes…
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Test tomorrow
I have to be at the hospital tomorrow at 8 am to start drinking that wonderful tasting barium for my first CT scan after chemo and I can't stop thinking about it. I've stayed pretty busy all day trying to keep my mind off of it. My onc. has taken x-rays of my chest and abdomen and all was clear and my CEA is .7 I'm hoping…
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Elimination Problems Suggestion
I wanted to share something with anyone who is having elimination/bowel problems. It is something that has worked really well for me, I know others who have had colon cancer treatments and ostomy reversed are having trouble like I did for several years, pain, bleeding/ constipation/diarreah, hemmorhoids. A nutritionist…
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insurance denying Erbitux for stage 3
Hi All, Well we thought that **** would start Folfox and Erbitux on Tues. However, our insurance is saying no Erbitux for stage III. So, we have to wait to see if he gets randomized out for the study. That delays chemo for another week. For those of you who had Erbitux for stage III was it a pain with your insurance? If…
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Dad still NED!!!
Hey everyone!!! Well, my dad continues to be NED 2 1/2 years after first being diagnosed with stage IV colon cancer, which spread to his liver. After many, many prayers and prayers of others, my dad was completely healed of the spots on his liver after the doctor said my dad would have 2-3 years. My dad only had surgery…
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New to this
Four and one half years ago my Dr suggested that I have a fecal occult test because I had a family member that had a history of multiple polyps. My test came back postive and I was scheluded for a colonoscopy. When it was completed the result was that I had a large polyp and it was removed and tested. On the tip of the…
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bag back on
Has anyone here made the decision to have an ileostomy or colostomy bag put back on? If you did what lead you to this decision?
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Pet Scan Results
HEllo all First I want to thank everyone for their prayers, because they worked. My scan came back good, there was some activity where I had my surgery but nothing cancerous thank God. Blood work is good, CEA went up from 1.2 to 1.7, so no worries there. ONC wants to do 8 cycles of Xeloda, which is 2 more then I thought. I…
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Bladder Issues
I haven't seen a post about this. I had my last resection December 12. It was done laprascopically and they removed the portion of my colon where my lesion was and a small part of my rectum. I noticed the first week I was home from the hospital that my lower abdomen would ache sometimes when I had to urinate. (Sorry to get…
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well port is in
ports in, a little sore but not to bad, now i have the fun of wating till the 9th to start chemo, this should give my nerves a mini vacation, thank you again to all of you for the great support you guys really helped!!! also i was wondering if anyone has used vitamins on chemo i have heard both pros and cons about this and…
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Tasting it...
Ewww, I don't remember it being this bad last time, the night sweats, I can even smell a difference to the sweat smell, it smells mediciney....is this normal??? but I feel like I can taste the chemo and meds that were put in me today, it's a nasty taste in my mouth which leads me to want to be sick...man, Friday just can't…
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Only 3 days home from Vandy then admitted to local hospital
Frank had his lung resection (wedge) sugery done on 2/10 and we came home on the 15th. He was doing good on the 16th and 17th. Home health came and was pleased with his progress. Then on the 18th his pain got worst and medication was not working so called Dr at Vanderbilt and they said see a doctor asap or go to er. Took…
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2nd Treatment done....
...And they gave me Emend this time.. with 3 Dexamethasone, and 2 Zofran, so far so good, it's the next night (tomorrow) that I hope is better.. they also sent me home with an Emend for Tomorrow morning, and a prescription for the Dex, and also some Lorazapem (Ativan)..I feel myself getting really tired now though. My…
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DoRookie
I know today is the day you get the results back from the Dr on your PET Scan.....My prayers are still with you and I prayed again just now that you will be ok. I'm not rushing you to post in here, I just want you to know that we all are thinking of you right now and good news or bad, we will all deal with it and know that…
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ANNOUNCING COLON PALOOZA 7
Colon Palooza 7 will be in Key West, Florida October 21st-25th. We have gotten a block of rooms at the Casa Marina Resort with some great rates! If you click on the link below you can check out the hotel and if you click on guest rooms each of the different kinds of rooms. The rates are guaranteed if you want to come early…
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Another question for all the "Experienced" people
I'm on my 3rd chemo treatment with Oxaliplatin the first one was alright, the second one was a breeze, this third one I have that tingling/numbness/pain in my hands so bad it hurts to type. I was given a "list" of side effects before chemo started and I read that these are possibilities, it doesn't mean you will get them.…
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number seven today, bring it on
Seventh treatment of Folfox starts in a few hours, lets get it over with and move toward eight,nine, NED? I am ready today, I'd rather be on a cruise but chemo is part of this journey, Time to press through to the end. I have the cold sensitivity and hand and foot soreness, and occasional mouth sores. I am a survivor.…
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Sancuso patch for nausea
Has anyone tried the Sancuso patch for nausea that is apparently very new? My husband David was given this today by his chemo infusion nurse as a trial. David was diagnosed in April 2008 stage 3C and underwent resection and then six months of chemo which he completed in October. In late December, scans found a spot in his…
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Anyone been treated at MD Anderson in Texs?
Hello - I am meeting with a Dr for my liver resection and colorectal surgery tomorrow in Houston. Has anyone been treated here or know anyone? If so what as there experience? Thanks.
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Decreased 5FU
Mom began her 4th 5FU treatment today. They decreased the dosage because she is having so much trouble with her hands. She is experiencing pain- she has RA too- so maybe the chemo is flaring it up? Or is it neuropathy pains? I guess they know when it is appropriate to decrese the chemo- it is a little scary to think about…
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He got his fifth treatment today
Hubby had been on hold pattern due to low WBC. Today it was up, so he got his 5FU treatment with Oxal. So he's on the pump till Thursday then he'll get a shot of Neulastin on Friday. And I think he'll be getting the Neulastin after each treatment from now on, so no more delays. And dr. said that he should see if Ritalin…