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Colorectal Cancer

Archives for June 2007

Happy Canada Day!
I want to wish all fellow Canadians a Happy Canada Day tomorrow! Where is everyone from? I live in the Nation's Capital where it will be wild with celebration tomorrow! Hope you all have a great day....also to our friends "South of our border"!
Once a semi-colon, always a semi-colon!
I just got back to visiting these pages at CSN and it was great to see names I reconized from posting before. Names like Scouty, Sponge-Bob(yeah I know your're out there giving us Freedom),2behealed,I remember, so Holla! As far as my colon Ca, I am still being checked every 6 months, and I am still in remission. I was…
Clinical Trials
Hi semi-colons, I don't post much but I thought I would post today about recent events in my fight against stage 4 CC (inoperable mets in liver and lungs). Over the past 3 years, I have been on five treatment protocols and according to my latest CT the tumors are still growing. I basically have exhausted all available…
Thanks to all who responded!
Thank you to you all. May those of you still fighting finally hear those wonderful initials, NED, and to those of you who know NED. May s/he hold on to you for a looooong time! Mary
Thank you....little stats
A lot easier that way...thanks for the response.Do you guys know that there are at least 12 people stage IV that have been NED for more than a year and up to 14 years ? This will sheer up a lot of people !!! God bless
The Avastin Saga Continues
Thank you to everyone who gave me information and support regarding Blue Cross' denial of coverage of my husband's Avastin treatments. To update you, we still have no resolution. You may recall that Blue Cross is denying Avastin coverage because my husband did not also have 5FU infusions (he had Camptosar). My husband…
Treatment to stop spread of colon cancer
Hey you awesome Semi-Colons! I am posting a link to an article I just read for those who have had mets to liver and are pursuing chemo. Hopefully this will give you hope. http://www.msnbc.msn.com/id/19046753/ peace, emily
one good thing about colorectal cancer
Well I've found at least one good thing about my cancer. It got me out of jury duty. I'm 49 and had never been called for jury duty. I missed 6 months of work because the treatments made me too sick to work. The week I go back to work I get a summons for jury duty. What are the odds for that one? This week I got the…
want to run away
This AM on my way to work, I had an overwhelming desire to run away and just keep driving (preferably toward some beach). I was driving my adorable miata with the sun shining, cool temps. It was marvelous! Then I realized what I really want is a break from this diagnosis. I am so sick of dealing with it. 4 years now. I…
"Store Wars"
I've posted a great clip for all you cheeto-eating, cancer-fighting, organic semi-colons. It's been around for a while but always worth another look. www.rob-pollock.blogspot.com Rob; in Vancouver.
Welcome my sister...sigh
Well, as another twist of fate, my sister (who lives in Seattle, Washington) called today to say that she has just been diagnosed with the exact same cancer I had....squamous cell carcinoma of the rectum.... We spoke for quite a long time, and she is encouraged by my 'cure' that the fight will be worth it. The medical team…
Stage III & IV Survivor call !!
Hi !!! I'm starting a journal....and I tried to go back to get this info, but is taking me 4 ever !!! Could you reply just telling us how long have you been NED ? ( just the years..) Besides, is always good to re write this info so the newbies know all about us ..... Thanks,thanks, thanks
Good News
Hi everyone, Good news. My recent CT and CT/PET showed no signs of any tumor activity. I have a nodule in my upper left lung that we are watching but it didn't change in size. I get scanned every 2 months. It's been 2.9 years since diagnosis. Stage IV (colon resection, lower left lobe of my lung removed, liver resection,…
CT-Scan Clear
I had my one year CT-Scan last Sunday and the results were out today- I'm still NED in what the onc called completely clear. However my Plateletts and White Blood cells are still in the low range of safe. ONC said he's not surprised a year just isn't enough to recover from all the patient gets put through. I know my fight…
Cheetos
Hi friends, I'm at work and I'm craving Cheetos...you know the puffy kind....Is it Ok when you have colon cancer to eat Cheetos or is it a big no no??? Let me know and if OK I'll run to the store!!! Thanks, Christele Stage IV, 11 mos old baby, 36 yrs old and 3rd chemo next week
Tennislover
Has anyone heard from Tennislover? Her last post indicated that her cancer was back, but I haven't heard any more. Kerry
Help with problems after ileostomy reversal
I debated about posting this but I figured ya'll have been there and would understand. So here goes. I had my ileostomy reversed on April 16th and am doing well overall but I have 2 problems. I have an anal fissure that just doesn't want to heal. I have some supositories from my dr that help but every time I think it's…
clear colonoscopy
Hi all just wanted to chime in on the "prep" conversation from couple days ago and say I just had colonoscopy (ALL CLEAR!!YEAH). I was just like others and not able to tolerate the phospha soda prep, never tried Go-Lytely. The last 2 times I have also prepped with the Miralax and have had excellent results w/0 the nasty…
Can finally relax....
Hi all, Just updating you all that the biopsy on my suspicious mole came back negative. Just a regular ugly back mole. I had myself completely freaked out and convinced I would have skin cancer. I guess I am a little paranoid about everything now. Done with chemo for a little over a week. Numbness and tingling gone. Still…
Up for a party????
Well gang, it seems as though there are a lot of newbies on this site. Or maybe just a case of people feeling more comfortable to post a message. That's a great sign. That is what this board is for. Support, friendships and a united front. With that stated, I'd like to remind you all of a little "soiree" we like to call…
anyone taken xeloda on coumadin?
Just got home from er with my husband. He has a small blood clot in leg , has to do injections for 5 days and then coumadin. Just to recap, stage IV w/liver mets and on xeloda oral , avastin, and oxal. I'm reading about xeloda and mixing it with the coumadin and it's pretty scary. Anyone had this problem. We are calling…
Got Ct results, not so good
Well, my husband and I went today for his Ct results.... yeah 2 3 to 4 cm nodule on right lung and 1 on the left lung, and a shadowy spot on the colon gee anything else. Need I say we are not doing to good. Has to schedule at PET scan. Doc said that this stuff usually goes to the liver then the lungs so he said not to…
Hate to throw it away
Hello all, In the few years on this group I've never seen a post like this so I hope I'm not violating any rules. Guess I'll find out. I've changed to a different barrier, and find that I've got 24 boxes of Hollister #8746 skin barriers that I'll probably never use. As you know, these things are not cheap and I know that…
disability, didn't qualify
Hi Everyone, I finally went to the social security office to find out that I don't qualify for disability because I didn't work full time for 10 years before cancer. I chose to stay home with my children. I also don't qualify for SSI(low income) because I sold my house to survive and have too much money in the bank. The…
Yet another scan
just wanted to pass on I have to go in for another ct/pet scan. my last one in May was clear for the most part. now i am having trouble walking due to severe pain in my back. they want to start out by ruleing out cancer. trying not to freak out yet again. man this roller coaster just doesn't get easier to ride does it.…
Can we give blood?
Hi Everyone, Before my diagnosis I gave blood at least twice a year. I am O positive that everyone can use so I feel obligated not to mention growing up, my Mom had all 6 of us kids donating blood as soon as The Red Cross would take it. For some reason I am thinking I can no longer give it since I have had cancer. I will…
Pain after 8 years
Hello everyone, I had my rectum and anus removed along with other things due to a rectal tumor back in 2000.The pain was intense enough back then and gradually improved over a couple months.But it never stopped hurting,it's the same now as it was 2 months after surgery and radiation.I've gone everywhere and done everything…
My dad doesn't seem to be tolerating Chemo very well...
My dad doesn't seem to be tolerating Chemo very well, how can I help him? My dad is on Irinotecan & Erbitux, he has only had 2 treatments so far and I can tell a big difference in him already. He is already depressed, he has mouth sores which hurt so bad that he won't eat alot, he has the acne rash all over…
only one more chemo left!
After getting all excited last week, and then getting shot down by low white cells, today I finally had #11 FOLFOX! In two weeks, Lord willing, I will have my last one. Today and the last time three weeks ago, I had an entirely new problem. I got home around 2 pm with my little pump, and I felt awful. Backache, joint…
Update
Hi all, Haven't posted for awhile but I too read the posts nearly everyday and keep you in my prayers. Brief history, DX 7/06, Colon stage 3c. Did chemo 9/6 to 3/7...seems CEA is a good indicator for me. Started at 4.8 before and after surgery...then down to 1.7 with chemo...number stayed that way for last 2 months on…

Colorectal Cancer

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