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Anal Cancer

Archives for March 2018

constipation after polyp removal
(As stated I'm having quite a lot of constiation after the removal of a polyp on the anal/rectal verge 4 weeks ago. I'm eating really well - fruit / veg etc. but don't seem to be getting moving at all. I always feel like I need to go or ( pardon me) there's more to do. Anyone got any other suggestions? Is this normal after…
Mom is in excruciating pain
My mother was hospitalized and diagnosed with perianal cancer a couple of weeks ago. She has had it for years and we didn't know. She has been in excruciating pain for about seven months. She has received emergency Medicaid and has applied for disability. She had an appointment with an oncologist last week who prescibed an…
treatment ended
Treatment ended 5 weeks ago. I've been laying low and resting alot and taking care of my bum. Treatment left me so exhausted but I feel better (slowly by surely) every week. I poop about 3-4 times a day or more almost every other day and they are small bowel movements. However, in the last few days I've been having larger…
APR Surgery - ever done to correct bowel incontinence after Chemo-Rad?
It is my understanding from everything my doctors and people here are saying that chemoradiation is the first-line treatment for anal cancer. And should that fail to get all of the cancer, then APR (abdominal-perineal resection) with lifetime colostomy is performed to get the rest. But what if the chemoradiation is…
How to Handle This
Advice, please, on how to handle getting through the radiation treatments. I am in week three of daily radiation, however, I am not handling the radiation appointments well. I feel like I am going to the gallows every day while everyone at the treatment center is all, How are you? Did you have a good weekend? Are you doing…
NCCN Guidelines--2018 updates
There have been some updates to the NCCN Guidelines for anal cancer. 2018 Chemo infusions are now 4 DAYS Instead of 5 days (first and last week) Mitromycin and capecetabine(Xeloda) is also a choice (although this is not new) Fewer scans for surveillance NCCN Guidelines are free, but you have to register...nccn.org
I'm still here, with issues
Hi everyone. At the end of April it will be one year since I finished treatment. I've healed well from the burns, but I'm still dealing with extreme fatigue. If I don't get a nap in the afternoons, I'm completely useless by dinner time. I'm still dealing with diarrhea most every day. Yesterday I had what I consider a…
Radical APR surgery Abdominalperineal Resection
I keep reading the many blogs and topics and I continually see reference to surgeries performed but I am specifically wanting to hear from people that have undergone the radical APR surgery. When I was first diagnosed in Aug. 2017 with this SCC Anal cancer the doctor that had performed the colonoscopy said "There's only…
Fecal incontinence
I just wanted to share with everyone out there suffering from fecal incontinence a few things... First and foremost ... if your doctor has not provided you with prescriptions for Lomotil and Immodium and Flexaril ... keep them in mind and have them on hand for when you need them. I had to ask my doctor for them when the…
Why can't doctors stage my cancer?
Most people on this forum, when describing their diagnosis, also are able to include stage. I was not given this information. I asked my biopsy surgeon repeatedly. And even though he had the MRI report (which I now have too), he kept saying not possible to stage it. I don’t understand this. Maybe the Chemo Oncologist and…
Starting Treatment Soon
Hi everyone. I just joined. I am a 63-year-old female and was recently diagnosed with Squamous Cell Cancer of Anal Margin/Canal. Same cancer that my mother had. I am awaiting my appointments with my 2 oncologists who will be treating me (Chemo Onc & Radiation Onc). I have been reading up on the Chemo-Radiation treatment…
Biopsy Pain
Hey guys, So i had my Biopsy Tuesday and the pain is nt bad until I have a bowel movement; Then it REALLY hurts. How long before this goes away? Thanks Joe
Biopsy Results Update
Hey guys, 12 weeks out from my treatment and had my Biopsy Tuesday. The waiting was excutiating and mentally I was a wreck. Now I am in tears of joy because the biopsy results came back as just scar tissue. Not sure how many they took but they all came back as scar tissue. Thank you all for helping me get through this…
Waiting
So I had my biopsy today. There is still some hard tissue mass under the scar tissue. Won't know what it is until biopsy results. Has anyone else experienced this?
DREs
I am newly diagnosed. My initial DRE and anoscopy was performed in the ER and was excruciating. I have a pretty high tolerance to pain so excruciating is accurate. My biopsies were done under general anesthesia. The tumor is 5.5cm. I had my radiology consult and simulation yesterday along with another DRE. Has anyone…
Straight to surgery?
I was just diagnosed with stage IIIB. I’ve been reading about the initial treatment consisting of chemoradiation using 5FU and Mitomycin (Nigro Protocol) and the side effects. Of course, if the treatments don’t get it all surgery is usually the next option. Has anyone else had thoughts of going straight to the surgical…
Freaking out
So I met with my doctor for a DRE 3 month out. He still felt some residual stuff present same as in the two month exam. He had me meet with the surgical oncologist so she could do a biopsy scheduled for next Tuesday. She said it could be scar tissie but she has seen cases where there was suspicious areas that came back…
Scar tissue?
So I am three months out from my radiation treatment. After the first digit test he felt a little residual abnormality same area but much decreased in height. Second digit test it went down even more but not where he wanted it to be yet. Today I had the three month test and it is not bigger but not smaller. He did not seem…
Treatment ended - Now what?
I am curious about people's stories regarding follow-up news after treatment ended. Wondering about timelines, what type of testing was done, and information about results. I feel like I'm floating in limbo a bit. Any stories would be appreciated!

Anal Cancer

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