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New Scan
Had a good scan (I think). Lymph nodes decreasing And the metastactic bone disease has not changed significantly. The doctor feels the current chemo is working. He took him off one drug because it was causing myelosuppression: delaying his treatments to three weeks or more. We got the report as we were leaving the doctors…
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New Met in his bones
They did another PET scan and the results were "more bad than good", a few of the lymph nodes and cleared but new ones are now lit up and they discovered tumors in his bones. His Dr, who had been very "pro treatment" is definately talking different. He has talked about pallative care, and keeping dad comfortable. Dad has…
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Muscle loss
I am so confused. Hubby is 11 weeks post ivor Lewis suppose to go back to work in 2 weeks. He has lost 50 pounds and a lot of muscle tone. He cannot walk across the room without tearing is Achilles. He is constantly icing something, ankle, shoulder, knee. Doctors only say it will get better with time. I am trying to figure…
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Mother with EC - Newly Diagnosed
I just came across this chatroom and am very grateful that I found this. My mother was recently diagnosed with EC and is in the process of having tests done. They are not sure at this point what stage it is in, they think stage 3 or 4. The tests in the next few weeks will confirm this. I have done so much research on the…
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Any long time survivors of Mets to bones?
Desperate to find survivors of bone mets.
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Clint's plan
We finally have a firm plan of treatment. Clint is feeling well right now and we are walking daily for 2 - 3 miles. In addition, he is using an "inspiration spirometer" to help maximize his lung capacity in preparation for surgery. We have decided (after many doctor visits to Beaumont, Jackson, Munson and Ann Arbor) to…
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bone cancer,advice hope?
Stage 4. Bone cancer in hip ans sm. Spot in spine. Is thete anyone that has lived long time with this. Can chemo and radiation work?
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One kick after another
So today we saw the new Pulmonologist who spent over an hour with us going over Mike's CT scans from Wednesday as well as his results from his spirometry test which shows his lung air level is 41%. It appears Mike has a few factors that are contributing to his breathing issues. On top of having Stage 4 reoccuring EC is he…
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TOLD
Told today that they believe Dad has bone cancer. We went to ortho today for what I thought was tear in ham or quad. Actually dad broke his hip and xray showed lesion and leasipn probably cancer. Stat pet tommorrow and results with oncolgist tommorrow. I guess this answers my question about post op chemo. Chances dont seem…
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MDA and Dr. Hofstetter NEED OPINION PLEASE
Good afternoon! Hope everyone is doing well. My mom just got dx with EC SCC Upper esophagus (20 cm from incisors) and we have an appt. Thursday at MD Anderson with dr Hofstetter. Has someone used him before? I would appreciate any opinions you are able to give me!!! she is probablys tage 2, but dont know for sure. we are…
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Things could be worse I guess
For recurrence originally treated surgically, surgeon does not recommend at my age of 56, additional surgery due to complications, dangerous possibilities and even the D word. So it's back to radiologist to determine if I can have a second rad session. Depends on how much, where and type of previous rad treatment. Chemo…
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Update on Larry
Almost 3 months post surgery, more problems. The guy can't get a break. Yes he is cooperating a little more. Yes he is feeling crappier everyday. He was sent for a chest xray today and cried. His voice and swallowing issues are lasting for longer and longer periods of time. INR for blood thinner is finally stable. So now…
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Restrictive Pulmonary Disease
First of all thank you to everyone who has follwed my stories about my husband Mike and his fight with re-occuring Stage 4 esophageal cancer. I can not thank you all enough for the support and prayers which has helped me in more ways than I will ever find the words for but thank you!! Today was suppose to be our 2nd round…
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Question about Lymphnodes
Dad only had 12 lymphnodes removed during surgery, all came back clean. Then I've been reading where some have had up to 20 removed and 1 was positive. I guess I'm second questioning if anyone had had chemo after surgery with no postive nodes detected. I'm thinking if more were removed maybe 1 would have been positive. All…
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Gatoraid's Final Update
Hello everyone, it's been a while since I posted though I have been in and out reading. It's been quite a journey since 8-17-2010 when my brother Jim aka Gatoraid, was diagnosed. We thought he might be one of the lucky ones that would beat this monster, but sadly, he did not. He passed away June 7th @ 10 pm, just 8 days…
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ER visit again
So Larry told me late last night that he has been having blood in urine and clots. When I asked him when it started, he said yesterday morning! He showed me (sorry graphic), it was pure red with many clots. Called the .dr and he sent us right to ER. Urine showed no infection, INR for coumadin was way too high again. Blood…
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HER2 & Hercepton for Stage 3
I wondered if anyone has received treatment (not in a clinical trial) with Hercepton at stage 3 N 1(locally advanced). We are waiting (impatiently) for the test results and if my husband is HER 2 U of M would offer a chance to be be in a clinical trial. However, if her turns out to be HER-2 positive we would want him to…
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Regimen
So it's been 6 months since my husband's diagnosis and he is getting ready to go back for another scan. Time with the doctor always seems somewhat limited so I want to get as much information as I can. It seems as though we come away from appointments never fully understanding just accepting the PLAN. This is his second…
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What a crumy roller coaster that I'm waiting in line to ride.
ct/pet Today indicated one small recurrence at anastamosis, a hot spot in the lower spine and also in right hip. Doctors do not believe it to be cancer related but are consulting bone specialist. We caught it early enough to classify as stage 1...with a stretch to stage 2 but no distant events and no lymp node involvement.…
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Facebook
How and where is the Facebook site? How to I get on there? I know this has been asked alot...sorry!
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Life 10 months down the lane
hi guys, i was a regular here about a year back.....my dad passed away on august 5th 2012 ....i still see him when i close my eyes.....n when i am drunk.......a lot has happened since my dad has passed away ...my son was born in novemeber .....so all i can say is life goes on ....n as i was a son i lost my dad ....but than…
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Question
How much weight do you have to lose before you are in the danger zone? Larry continues to lose weight. He refuses to make an appointment and he eats very little due to his throat issues. When he does eat he usually eats too much because he is so hungry. Always dealing with either dumping from overeating, or he is in…
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Anyone have a Stent
My husband is 6 weeks Ivor Lewis post op. EC sucks, I really have no other words for it. Anyway, we have had several dilations that only last a few days. Now the Doctors want to put a stent in. I would appreciate any information pro or con. Hubby is stage 1, other than 50 pound weight loss, and the host of normal post op…
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False Positive PET scan
I have posted about my husband who was diagnosed with Stage 4 EC that tested positive for HER2 (the most aggressive breast cancer gene)back in April 2012, went through chemo and radiation from the end of April to June then had surgery in August to completely remove his esophagus and pull his stomach up to make the new…
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Continued Weight Loss after surgery
I joined CSN today on behalf of my husband who was diagnosed with esophageal cancer (Stage IIb) in January, 2012. He underwent chemotherapy and radiation followed by surgery on June 4, 2012. We celebrated on his one year anniversary this week! He has recovered remarkably well and is eating most foods (limits sugar), but he…
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pet scan report 6/3/13
OK here goes I had my pet scan on Monday 6-3-13 and when I seen my results I went off the wall and stared to call all my doctors about it ask what does this all mean. So when I seen my Rad doc not because of the pet scan and results it was a follow up that was made a long time ago. Any how she reassured that the doc that…
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planned CSN outage
SN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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Vocal Chord Paralysis
Larry really has done pretty well this week as far as moving forward with strength and endurance. His mood is beginning to change for the better...a wee bit. He went for another dilation on Monday and the surgeon tried but there was no resistance and no strictures. He still loses his voice and ability to swallow even his…
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Salvestrol
I just cannot not let the people here know about the success story so far on salvestol ....I have been following the post on Salvestrol in cancercompass.com for a longtime (bought a bottle last year but didnt give it to my dad untill 4 days ago, luckly hasnt expired yet lol), and I wanted prove that is really helps in EC…
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Please Help!!!
Hi everyone, it's been awhile since I've been on here. My father who was diagnosed with T3N1M0 last November underwent an Ivor-Lewis mid-March. The surgery went great and he recovered fantastically. He was almost able to eat steak after a month. Well, post-surgery, his oncologist recommended that he continue chemo even…