Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Esophageal Cancer

Archives for September 2012

Bawa, how is your sister?
Haven't heard from you in a few. Hope your sister is doing okay. Has she made any progress? Is the internal bleeding under control? You both are in my daily prayers. I hope you are keeping strong. ~Jayme
Finished with Chemo and Proton Radiation
55 years Old T3N1 Stage 3. I finished my 5 1/2 weeks of Combined Chemo (Docataxol and Xeloda a pill form of 5FU) and Proton Radiation 2 weeks ago. The week after was hardest with not being able to eat anything solid. I relied on Blue Bell Ice Cream and Glucernas and Boosts. Have been able to start eating some solid food…
Any one have this issue
My husband is currently going through chemo and radiation for stage3n0 EC. He just finished the chemo and has about 2 weeks of radiation left. He has a severe cough that is keeping him awake and makes him gag, compromising his food intake even more. They tested him for whopping cough, gave him a check x Ray (thank God…
Thank You Everybody, finally staged
Larry was staged yesterday at T3N1, grade 3. The Dr said his tumor is quite large about 6cm and through the wall of the esophagus. He said quite advanced. He placed some clips at the top and bottom of area to be radiated. Larry will go next week for pet scan and meet with radiology oncologist. He has settled down somewhat,…
Update on neck nodules we biopsies last week
Well the pet scan came back. There are 5 lymph nodes around the left clavical that are lighting up. The local oncologist is a little surprised that the cancer showed up again so fast since the JUne 6 patholgy on the removed esophgus and lymph nodes indicated that the cancer cells were dead and the HER test was in my favor.…
Stage3, T3N1
Thank you for all of your support!
update on my Dad
I promised myself I would not post here unless I have good news for my dad .... but can't help myself . I am so sad that William is not here anymore ..he was the first one who replied to my plight and wanted to tell him my dad's progress. it so sad he's not here in this site anymore but i hope he can read it. And to Shammi…
Hello JoAnne2012
Hello JoAnne, I would like to welcome you, although I wish you didn't have to be here. I never thought I would be here but here I am because I have a brother who is suffering with this disease. Although my brother, Ray Jr. is stage 4 and in July of this year they only gave him one month to live, I do know there are many…
1st Oncology visit yesterday, difficult times
Larry had his 1st visit yesterday with the Oncologist at Karmanos. For me the appointment was uplifting as the Dr was very informative and hopeful. The best part was that one of his very best friends is Dr Orringer at U of M ,who is world renowned for the treatment of this disease. They will work together hand in hand…
Struggling with options for new fiagnosis
Hello. My mother (age 62) was diagnosed with T3N1 esophageal cancer recently. We were initially told that the tumor is 4cm and contained and that this type of cancer was generally treated with chemo andxradiation followed by surgery. We were very hopeful, until we saw the thoracic surgeon. My mom just had a triple bypass 3…
NPR on Genome Sequencing - Cancer
I heard this the other day on the radio... Cheap Genome Sequencing There are a bunch of links if you type "genome sequencing cancer" into Google. --Jerry
CT SCAN QUESTION
Hi Everyone - I have only posted on here once soon after my dear brother was diagnosed with Stage 3. He is now 1 year post diagnosis. He underwent chemo and radiation in Nov 2011, followed by the Ivor Lewis at the Mayo Clinic in January. In February he began a grueling 12 weeks of more chemo. So much chemo, that he…
Cured!
I had a barrium swallow and xray today, then saw my surgeon. He said I was cured and he released me. I will see my oncologists in Nov. I beleive he is going to do another ct scan in Jan. I wonder if I will be released then or will he do followup's? William went once a year. I would feel better if the onc. kept me coming.…
Update on Jr.
Jr. went to his oncologist today and the oncologist told him, "he is a walking miracle." For them to see Jr walking in the door is in itself a miracle. Jr. has surpassed the time limit that all of his doctors gave. But his blood count is low so he has to go to the hospital this Friday for another blood transfusion. Don't…
Denied for SSDI....
Said I was not disabled even with the EC. Reconsideration filed by attorney. This is just crazy as I have paid into the system for 27 years. DX 4/2012 Chemo-Cisplastin 5FU..25 radiation treatments, and IL at Mayo 7-25. Stage 2-1-0. Margins clean.. Pneumonia and the latest Pleurisy last week. Follow up with Onco. need 4…
Silly question- how long does it take for chemo to shrink tumorrs?
As I mentioned a few days ago I had a positive biopsy on clavical nodes. . I had a pet scan today and back to oncology Wednesday. An uneducated peek at the image on the computer might have shown additional hot spots in the abdomin. At this point I anticipate that Chemo only will be offered. So I was curious if there was a…
Small Update JS50
Thanks, Thanks and Thanks! Lots of great people here!! Thanks to all!! Update: Today 9-25-12 EUS completed by Dr Dan Chiaccia Community north Indy. He mentioned stage 3 or T3 but did not have a N# or a M#. He did say it did not look like it had spread to any of the lymph nodes from his view on ultra sound. He did say the…
Greeeaaat News! Renewed Hope for Stage IV
After my skull met this spring and the tumor recurring in my remnant esoph and in lymph nodes in my neck Fox Chase has given me the impression that they feel nothing more can be done for me. They said "The Cat's Out of the Bag" and let's just see how you do on the chemo. So I have been feeling that my luck had run out and…
Back home after surgery on jtube
I'm being fed via the jtube continuously. My doctor has told me that I can also eat whatever I want, just go slow and not to over do it. However, nothing tastes like it did prior to surgery. Not to mention that I have no appetite at all. Has anyone else experienced either of these problems? If so, how long does this last?…
It might be back
I had a PET scan last week and my appointment with Onc Dr isn't til Friday. It was driving me crazy so today I went to his office and asked for the report. They didn't really want to give it to me but did. I read and everything seems ok except the SUV increased from 5.6 to 9.1. Now I have no idea what this means but it…
SS disability, Medicare and cancer treatment payments
Our financial advisor had suggested to apply for social security disability thinking that I would be legible for Medicare eliminating my medical insurance premium. Has anyone else done this? Does Medicare cover all the treatments and hospital stay costs? It sounds like some cancer drugs might not be covered. So far our…
Update from Jim and Linda from Idaho
Hello to all! It has been a long time since I have visited the CSN ec site. I am sad to hear that there have been problems, this site was a lifesaver for me when Jim was diagnosed. The Marshall's gave me the courage to seek a cancer hospital and get a less invasive surgery for Jim. I hope that there will be a change of…
Helena50 - We are moving you to the top so you don't get lost at the end of a string of posts
Helena50 Welcome to our little EC family. I am moving your post to the top under a new topic so it will not be missed at the end of a string of posts. You posted on Sun, 09/23/2012 - 5:35pm Need Answers My husband had stage one cancer three years ago. He had surgery to remove the esophogus and had his stomach streched to…
1 year anniversary
Hi everyone: I may be bragging or maybe I'm just incredulous and relieved, but today marks 1 year since my surgery, and I can hardly believe it! I won’t have my 1 year scan and follow-up with the surgeon for another couple of weeks, but from what he said at my 6 month appointment and how I feel now, I’m doing well, Thank…
Thanks for the welcome
Yes, Dad was diagnosed with stage 3, and just recently offered hospice. I believe hospice has been suggested, as he just can't get well enough for much of anything. He has been battling so many, many things. I listed many of them in my initial post. When he fell, he seemed to lose all ability to walk; so he has been…
Our story
Larry is my husband of 6 years, we have been together for 13. We share 6 grown children and 14 grandchildren, ranging from 22 mos to 14 yrs old. We refer them as "our little people". They are our life. Ever since I have known Larry he has complained of heartburn. I have suggested to him repeatedly to have this checked out.…
New to the group - Dad diagnosed with EC
Reading through the discussions, made me realize I might need "help" in the ensuing months. My beloved father, a retired Naval Captain, age 85, suddenly fell in June. The following week, EC was diagnosed, and since then, it has been a nightmare, pure and simple. My dad has had a very healthy life, cheated death during the…
Another newbie
Wow, I have been reading and am amazed at all of the stories of courage. My husband Larry was just recently diagnosed and life seems to be in a tailspin. We don't know what stage yet and quite frankly, I am quite terrified.
Some good news
For those who have recently lost loved ones, or gotten some not such good news, my thoughts are with you. EC is such a tricky cancer, and so many times it out smarts our best efforts. But for now, we (Dave and I) have beaten back the ole SOB... :) Dave's PET scan came back and his medical oncologist said this is one of the…
ES TECK FULL BODY ANALYSIS
Hi Just wanted to know is anyone has heard about the ES TECK full body analysis which calculates the strength of the good cells and it checks overall body function, if yes please let me knw. rgds

Esophageal Cancer

Discussion List