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Esophageal Cancer

Archives for August 2012

Judy's Don - recurrence
Hi Everyone Yesterday Don had dialysis and at about 1 a.m this morning, he had a CT scan (it was the first time he had been able to hold down the contrast so they could do it). Today they got the sad news that he does have a recurrence. As he is so weak from the last month, they are unable to do chemo as his body could not…
Cisplatin
I was taken off the cisplatin after 7 months. The doctor said it was because I was getting too sick from the treatment. Scan coming up on the 5th. has anyone ever had meds changed before a scan is done? I don't feel much change to the tumor in the esophagus. Any thoughts? Is this a good or a bad sign? Still doing the 5fu…
Not the results we were hoping for
My 72 year-old mother was diagnosed with esophageal cancer on November 7th, 2011. After undergoing a multitude of tests, we learned she was Stage IV on January 31, 2012. She began chemotherapy in early February. She had 4 cycles(every other week) of Cisplatin, (5FU) and Leucovorin and then had another scan after the fourth…
Esophageal Cancer Stage III, new person looking for other Stage III
Post for Kristin, Hello all, this is a starting post for Kristin, (PA area) her father is in testing, so far the info includes: He is 60-65 and was diagnosed at stage III. (w/ suspicious local lymph nodes but no distant metathesis) and has been told he is a candidate for surgery after chemo/radiation. Kristin is looking to…
Scared and lost!
Hi, I really need everyone’s help. I am so lost and scared for my brother. Things have not progressed in any way or form. The Oncology doctor is now telling us to get hospice involved and that my brother has only 6 months to live. We are devastated and are not willing to give up. No treatment has been attempted due to his…
August 30 Jerry's Update
Well, frell... Got the results of the CT scan. Not good news. The chemo isn't working. The mets to the adrenals, especially the left side, are growing. I have a spot on my lung, and a nodule under the right shoulder blade. These are new. My gum and chest tumor, even after having been blasted by radiation, aren't shrinking.…
Erbitux
I am curious if anyone has had success with Erbitux? I am convinced it is responsible for my successful outcome. Here is a website that provides information on the drug: www.erbituxhcp.com
Martina McBrides, you tube video about cancer survival
Hi, Has anyone seen Martina McBride's video on Youtube, I'm gonna love you thru it. Beautiful and so meaningful for the patients and caregivers. So many of us are lucky to have had our family and friends, my hubby especially, Loved or are loving us thru it now. take care, Donna70
Adhesions from Surgery
Has anyone experienced bowel adhesions after the esophegectomy? I have had one follow up surgery to straighten my gut and clear obstructions. I am now having the same issues (cramps, constipation, uncomfortable) and the doc says this may be an ongoing thing due to the adhesions. Going for another CT scan today to see what…
Hospice
Well we got the news that noone waits for. My husband was sent home on Hospice with less than 6 months. The Dr, stated that now that he has a lesion on the brain that it will be far less than that. The Hospice nurses that come in and check on him gave him 2 weeks. He has not ate anything in 7 weeks, and does not want a…
Have a question for my dad
I posted yesterday on my dads esophagus cancer and got some great advice. However, I have some more questions please. MY dad is going in Friday to have a port put in for his chemo treatments and also suppose to have a feeding tube put in. He was in the hospital all day today for dehydration he has been unable to even have…
My Mom was just diagnosed, what now
My name is Tracey and my 69 yr old mom was just diagnosed last week with EC. My sister and I traveled from Ohio to Illinois to meet with her oncologist yesterday. He said she needed to have a endoscopic ultrasound done and that they could not do it there and gave us the names of a few hospitals that could but also said…
I'm Stage IV now, Any Stage IV Long Term Survivors?
They tell me I am at stage 4 now, since I had a bone met in my skull March 2012. I have the cancer recurring in my remnant esophagus now, and node involvement n my neck. I will be starting chemo aqsap. They say this area was already radiated however during my chemoradiation and surgery in 2010, so it will not be radiated…
my husband
Hi my jim was diagnosis with his esophageal cancer on march 28th of this year. he had a chemo port put in his chest and a feeding tube put in his small intestine on april 27th .his esophagus was shut off by the tumor,it is at the top of his stomach it has grown out and around his main artery,and into 4 lymph nodes. he has…
My Dad was just Diagnosed with EC- Please help!
Hi my dad who is 77 years old had trouble swallowing his food about a month or so ago would have to throw up every time then the liquids would not stay down, Dr thought it was from his pradaxa so sent him home until it got so severe he got another dr who immediately sent him in for an x-ray which did not show anything so…
We need HELP!! I need a NorCal EC Doc pronto!!
Okay... here's the story. My dad has been seeing the 1 of 2 oncologists at Kaiser in NorCal. She thinks she knows everything about what he is going through, and as good as she thinks she is... she IS NOT an EC specialist and she DOES NOT know what she is doing. So far, they have denied my dad an ultrasound for a blood clot…
Update from Judy plus she wants to know if anyone has had a similar experieance
Judy posted this on FB today. "Good news is that cancer was not found in fluid. Don is scheduled to go for dialysis at noon today. They had to stop the ng feeding because Don vomited all night and all this morning. They put him back on suctioning to get the junk out out. The md doctor said they are going to do another xray…
Sleeping and Reflux Issues
Hi all-- I had an esophagectomy two months ago and am still marching up a sometimes slippery learning curve about many issues. I am hoping I can get some advice from those who know best. To keep stomach acids from migrating up to my throat, I have been advised to not eat for three hours prior to sleeping, sleep on a wedge,…
Big Problems
On Sunday I got juicer from a friend. We made about 40 oz. of juice using beets, carrots, spinach, ginger, grapes. Like an idiot, I drank about 32 oz. over about an hours’ time. One hour later, severe cramps started developing. I was soon doubled over with severe pain that, I am not joking, lasted 7-8 hours. I do not take…
Dads surgery in the morning, advice needed on what to say
my dad is having a esophagectomy in less than 8 hours and I am an emotional wreck. I went to see him this afternoon for a few hours and didnt want to leave, all that was going through my mind is what if this is the last time I see him (horrible I know) it has just got all real to me that he may not survive surgery and ive…
What next?? J-Tube came out...
After telling my Dr. specifically that my J-Tube sutures are loose, she just shrugged it off telling me that they are fine. Well today while showering the entire tube fell out!! I called my Dr., and she told me to put it back in myself, but don't wait too long...can you believe this? Well, I tried to no avail, it started…
Feeling better...but gettting worse?
Hi all, So I had CT scan on August 7th and at that point I was not doing well-extremely weak, low blood levels, ect. But since then great things have happened! I was able to eat solid foods again and liquids. In fact I have been indulging in burgers and fries and any other high calorie foods and have finally gained some…
New Here just want to get acquainted.
My name is Len. I have been cancer free for 13 months now after chemo/radiation and surgery for Adenocarcinoma of the Distal Esophagus. I have read some of the posts and can relate to some but not all of what has been posted. I noticed someone about to have the laproscopic surgery, in my case unfortunately, I had the full…
Still in hospital-possible bowel perforation
Ed was going to be discharged today however they came in to tell us that they were concerned about a possible bowel perforation. He has increased air in his stomach compared to yesterday. A swallow test looked okay. Every day this seems to become more unmanageable. Dr. Gibson, the oncologist Dr. Luketich sent over was the…
Update from Judy about Don
For those of you who do not have facebook, Judy posted the following today (this was following an MRI and an ultrasound of the kidneys) "We received a lot of information today - almost too much to process. The surgeon called a family meeting at 2pm today. A family meeting? Hmm. He came in and brought the medicine doctors…
Has Calloloo (LU) Posted
I havent been keeping up with all the new post lately. Has anyone heard from Calloloo aka LU. I've been thinking about her and the fight she is giving this nasty cancer. Thanks, Chrissy
Juicing and Supplements
I have been hearing a lot about juicing and supplements here and elsewhere. Just wondering how much all of this actually helps. I know that it cannot hurt, but I am starting to feel like I am missing out on something because I am not doing the juicing. I still have a bit of trouble swallowing, so probably do not get enough…
Surgery did not happen--undetected liver met
My husband went into surgery on Weds. feeling pretty hopeful. The combination of EUS, PET and CT scans had shown no distant metastisis. Right before the surgery they told us there was someting questionable on the Ct scan they had done the previous night. He went in to surgey and they came out two hours later to tell us it…
Esophageal Cancer Metastasis and Local Recurrence
I have just found this site, and wanted to share my story. Maybe someone has had a similar experience or may have encouraging advice or information. I am a male age 51. In May 2010 I was diagnosed with Esophageal Cancer stage III ademocarcenoma. I had a j-peg feeding tube implanted in my small intestine, and underwent…
Did anyone see this on an old post??? FREDERICK EMIL needs help...
Hi good day! I am Frederick Emil R Tapawan from the Philippines, I am 31 year-old male and was diagnosed with a tonsillar cancer last March 2010. I went through a lot of treaments already. Radiation therapy, chemo, cryosurgery, etc amy, i am happy that your husband evan can eat already. I am so happy to see your posts…

Esophageal Cancer

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