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A brief update. Today Don looks 98% better than yesterday. The surgeon had the liver doc and kidney doc come to see Don and review reports. They want to find out why those numbers are elevated. Don wi…
We saw the GI doctor today and he shared a study with us that he thinks could be helpful for people with Barrett's and those trying to prevent a recurrence. Also showing merit with colon cancer so if …
Willliam, this one you can probably answer, but I am 4 years out from IL with no problems at all as far as I know. I am 100% back to normal. I easily hike 100 miles on the Appalachian trail with a 30l…
Hopkins has a tradition of patients ringing a bell once their radiation treatment is complete. Today Dave rang the bell. As someone said at the beginning of this journey, the treatment time will go by…
My dad had an esophagectomy in January, had a clean CT scan in late June, and has been blessed with a pretty good recovery. Over the last 2 weeks, he has experienced a lot of saliva that sort of muddl…
I just wanted to tell everyone that August 18 marked 6 years for me. I just celebrated my 38th birthday and am thankful to be alive. There is hope. Thanks be to God!
I did see Jr on Friday and he was sitting in his chair listening to his gospel records. I was surprised to see how much better he looks compared to what he looked like in the hospital. His eyes are mo…
I feel beat a lot of the time, and I sleep a lot. Of course, I >AM< on chemo, which might possibly (ya think???) have something to do with it. Anyway, looking for suggestions to get me some energy. I …
Hello, I wanted to ask for your kind help. My mother is 87 years old and has had esophageal cancer for over a year and a half. She was told that her cancer had spread outside of the esophagus to multi…
Hello everyone - it has been a long time since my last post. My dad is 14 months fighting his battle with EC, he has done well with his chemo overall. He first was on Folfox now on folox. His ec tumor…
hello friends i had another pet scan last week and it showed 75 percent less cancer activity in the main esophageal tumor and no new cancer any where in my body. i do have 3 bone mets and they have go…
Hi, Helping out a Stage 3 patient from Wilkes Barre, if anyone is a patient/survivor at Sloan or Penn, would you mind noting your doctor, or emailing me. I didn't mention Pittsburg, since William and …
Howdy :) My name is Greg, I was recently diagnosed with stage 1B Adenocarcinoma. I'm set up with Dr. Ninh Nguyen at UCI for a laproscopic Ivor-Lewis Esophagectomy. First surgery is 8/27, 2nd (main one…
Howdy :) My name is Greg, I was recently diagnosed with stage 1B Adenocarcinoma. I'm set up with Dr. Ninh Nguyen at UCI for a laproscopic Ivor-Lewis Esophagectomy. First surgery is 8/27, 2nd (main one…
Well, I pretty much have figured out that it's back. I've had a on and off sore throat for months now. And now my tongue is sore. Anyone else have this happen. Onc dr said very unlikely it would be ca…
Judy posted this a little while ago "Finally had enough and demanded he be sent to Univ of Mich. first we were waiting for a bed and now we are waiting for insurance approval. They have a bed we just …
I breezed through my surgery with flying colors, and now reality has sunk in. I'm having problems with digestion, sometimes I am regurgitating my food, my heart rate is well over 100, hot and cold fee…
Hi There, My parents live in NY and I in Chicago. He is being treated at Strong Memorial Hospital (Rochester, NY) and his physicians are Dr. Tijani (spelling?), and Dr. Peters. (FYI- my father is 74 y…
Hi, my dad was dx with esophageal cancer (adenocarcinoma) in may. I am in Australia but can't seem To find this kind of supportive network, so was hoping I could join. Dad is 63 and lost his dad to ec…
I wonder if anybody has experienced this side effect of Xloda ... comes under a general heading of Hand and Foot syndrome, which covers various symptoms like itching, redness, peeling etc. But in my c…
Hi I read you post and like Sherry am concerned. As I mentioned to you before you and Don remind me so much of Vince and I with the motorcycles and the chain of events that have happened. Vince had se…
Hi Sherri and William, Please feel free to remove this post, if it is better handled in email. I'm am working on a list of EC cancer centers (first priority) and list of doctors that can be posted on …
Hello everyone!! What a roller coaster ride the past nine days have been. We went to Sturgis and ended up flying home on Wednesday August 8 through the day and early morning Thursday. Finally got to B…
Just wanted to let you all know that my library has partnered with ECAN (Esophageal Cancer Action Network) to spread the word about heartburn and cancer. I am so proud of this, and hope that this is t…
Dave's doctor discontinued the 5FU yesterday, saying it had been 4 weeks, the affects of it are 99% complete on eradicating the tumor if it indeed has (won't know for sure until PET mid-September)and …
I was curious if it takes longer for food to digest now that I had a total esphogetomy. I'm 12 weeks out from THE surgery. does refashioning the stomach into a gastric tube slow down the digestion pro…
My husband Dan has Stage IV. He is being treated in NY at Memorial Sloan Kettering and has been doing relatively well on the chemo, with a good quality of life. Back in March he needed radiation (IMRT…
Friends, I know we are all here at all different stages of EC. You and us, we're all a statistic of one. Remember that. This is a place of comfort, information, and peace for those experiencing EC. To…
Anyone heard of this? It is derived from Caribbean Blue Scorpion venom. Here is an exert from an email I received from a friend... keep in mind, that this isn't approved by the FDA... that was also in…
