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J tube problems!!!!
Hi, Just wondering if anyone has experience with j tubes. I was doing so well and since last week have had a lot of drainage, sometime having to change the pads after 3-6 hrs. The nurse checked it last week during my chemo and it wasn't infected but now over the weekend, it is getting a pink area spreading out from the…
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G Tube
HI everyone, My dad seems to be doing very well. I haven't been over yet since we had a ton of snow. My mom is having a time getting adjusted to the feedings, he needs 3 a day, which is going to be problematic. I can't always get over there after work, but we'll see what we can do. You have to be careful about having the…
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My husband just diagnosed
I am seaching for answers and many are scarey! My husband is a dialysis patient and began having trouble swallowing. The endoscopy found cancer...about 7 cm tumor...seems small. Next test was a CT scan which we were told no spread of cancer...but no one could give us a stage. Later that night the doctors office called…
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Update on Al
Hi everone, Just thought I should keep you posted. Al had his mri and they couldn't find a vein for contrast and wouldn't use his port. He is supposed to have the pet scan on Monday. He is trying to do the exercises the the physical therapist gave him to do, but after he does them he has alot of pain and it's harder for…
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William and Loretta...where are you?
I've been wondering, has anyone heard from them? It is unusual for him to be so quiet for so long. I actually had someone on the ACOR list that I referred to him, because he is going to have surgery with his surgeon. But I don't think he's been around. Now I know he had travel in the future, but I want to be sure…
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hospital update
I am sitting in the hospital waiting room and have some time to kill, so I thought I would give a quick update. The liver problem turns out to be fluid around the liver. They will do a TIPS (sp?) on him this afternoon. Hopefully that will control the bleeding. I talked to the Onc. and while it may not be liver cancer, it…
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Dad's feeding tube and stent removal
Well, things didn't go as planned. The stent is embedded in his stomach and couldn't be removed, nor could the feeding tube be placed. He was admitted to the hospital last night waiting to hear the next step. They aren't sure what the next step will be. They said possibly having to open him up to has access to the stent.…
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Back to the hospital
Where to start, it is all a jumble, forgive me if I bounce around. Paul started the Oxy and xeloda, all went fine, no bothersome side effects. He had a PET done which showed some spots on spine and pelvis, which correlated to some pain he was having. Started some very low dose pain meds and pain went away. He also went for…
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Dad's feeding tube placement
Hi, My dad will be having the "G" feeding tube placed today. They will also be removing the esophagus stent that has fallen into his stomach. Thankfully the weather isn't as bad as predicted so they can head to the hospital. I'm feeling nervous. I'll update when he's done and they are home safe and sound. Thanks for…
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chrisk06
would you please email me at dianad1215@aol.com I would love to talk to you about this social security mess and also about your late husband, I am so sorry that you have lost him, my husband is also stage four with alot of mets, has lot seventy pounds, etc., we are do a pet scan tonight, would love to ask you some…
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Use of Erbitux with chemo/radiation treatment
My dad is finally engaging in his treatment - that is the good news. One thing he has become excited about are the results of clinical trials done at the University of Maryland and the use of Erbitux while undergoing chemo and radiation treatment for Esophageal cancer. http://www.umm.edu/news/releases/erbitux.htm The FDA,…
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Dr. Burzynski
I have just been reading the book "Knockout" by Suzanne Somners. According to what she writes and what I have seen on TV, Dr. Burzynski's clinic is curing cancer without surgery or Chemo. He is replacing missing peptides in the body, which destroys cancer cells at the cellular level without destroying healthy cells. Does…
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"Special dipensation" on disability ssdi benefits already approved
My husband, stage four with lots of mets, was approved back in November 2009, for ssdi but we got several letters stating there is a "six month waiting period"., so his first check does not start until May 2010. I keep reading about this "special dispensation" and have called ssi and they still claim "there are no…
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sesame oil for throat cancer
we've been googling about sesame oil related to cancer - found tons of sites with info about this - if interested, google Rosenfeld and sesame and cancer
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Half way
Well last week I had out-patient surgery to get my feeding tube removed. Finally, after nine weeks after surgery. This week I have my third round of chemo and it will put me half-way through chemo treatments. Feeling pretty good and eating as best I can each day. I lost 38 lbs since surgery on 11-20-09 and have stayed at…
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Clinical Trials
Has anyone taken part in a clinical trial?