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TOMARROW COULD BE THE DAY!!!!!!
Hi All, Tomarrow is Al's Appt. with Dr. Luketich this hopefully will be the day that we get the date for surgery!!!!! Our appt is at 9:20 am, so that means we may get to see him by noon. I am so excited as most of you know we have been waiting for this day to come for some time now. Al has gained about 7lbs which is a big…
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the meaning of life and remembering all we ever really have is this moment
I think that Joseph Campbell put it best: "Life is without meaning. You bring the meaning to it. The meaning of life is whatever you ascribe it to be. Being alive is the meaning." To All Who Read This: You are love and you are loved. You are heros and you have heros. Today is what it is, a moment in Time where we beautiful…
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A SPECIAL FRIEND ON THIS SITE
I have a special friend on this site, and for her privacy I am not going to mention her name some of us know her and some of us don't, you see she is a young woman and fighting for her life. This wonderful person, has been an inspiration to me when I didn't think I could handle my husband's surgery she was there, she…
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Top 3 hospitals for EC? can someone help?
Hi, On another post Threesenough (welcome to this board, everyone here is helpful and have much experience) wanted to know the top three hospitals in the USA for esophageal cancer, I know many months ago early in my search I saw that Johns Hopkins was #3 but I am not sure of the other 2, thought one was definitely Mayo but…
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Any ideas?
Hello, I'm new to this board. I'm a daughter-in-law of an esophageal cancer victim. He, Willie, is 81, was supposed to have surgery on July 12 to have it removed. They started then found some spots on the abdomin wall and aborted. He is on hospice care. He can't eat and has no desire to. His voice is crackly. His 2 most…
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HUSBAND RUSHED TO ER, I HAD TO PUT MY BIG GIRL PANTIES BACK ON AGAIN
well hello to all my site friends, I had to rush my husband to the hospital this afternoon, we had the grandkids for the day and I left to take them home and got a call about 3:30 and said hurry get them off, i need to go to the emergency room, I have something stuck in my throat and cant even swallow my own spit.Now keep…
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hi i am new my husband has esophageal cancer
hi we need help my husband was diagonised with cancer june 12 tried chemo couldnt take made him to sick just finished radiation a month ago surgery not an option lost 50lbs no energy now having problems digesting food any help would be greatly appreciated
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My Status Update and a Minor Success
Well, I've a really grueling week this past week. It was the completion (almost) of 3 weeks of radiation as I differed 2 days due to being out of town and in another hospital, and the start of the third week of chemo. I continue to get constant 5FU and daily radiation. Surprise surgical consults, and a procedure in Kansas…
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In the Hospital
Hi everyone, I just thought I'd let everyone know that I am in the hospital again at Mercy, in my local town. At this point I don't have any surgical needs so we are staying in town because they did not think I was stable enough to make the trip to Mayo. As for why I'm here....I was throwing up bile all night (Thurs.…
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Countdown to Operation
Just joined about a week ago. This whole EC for me started around April of this year. I've had Radiation and Chemo therapy and well now on to surgery. Okay, so I'm having my surgery on the 10th of october, 2009. I am very nervous, not quite sure what to expect afterwards. I haven't had anything to drink or eat for the last…
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Good News for us too!
Hi all, Charlie had his PET scan on Monday and we just got back from the getting the results. No change in 4 months....when he he had his last PET. So we are still in remission. Thank you God. We got the news 6 months ago Charlie had stage iv EC. We didn't think he would every see another autumn....not that we really have…
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Today is the day
Hi, My parents are in Pittsburgh getting ready to see the Dr. today to see if my dad's liver is now involved or not. Please pray we get some good news for him!! There has been so much good news on this site lately, so I'm really praying my dad will be in that group as well!! I'll update everyone when I can. Just please say…
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how do you get private messages?
Hi I got an email saying I had a private message but don't know how to get it? Does it mean just a new posting on a post that I wrote? my brain is not working on all cylinders lately!! thanks in advance! Donna70
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HELP PLEASE
Well, we were doing fine, but we are having a little set back, when Jeff eats certain things it tears up his stomach, he starting throwing up only brown looking foam stuff, and makes his stomach totally hurt, and then immediately heads to the bathroom to sit on the toliet, and this wipes him out. I am totally worried. Is…
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Quick update
Hi All, I just wanted to give everyone an update. We are doing very well Al has gained a little over 2 pounds in a week and is getting stronger by the day!! We go back to the surgeon on Oct.1st Al does not need another PET scan since he had one just a few weeks ago and as you know everything is shrinking. The Dr.s have…
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Headed back to MD Anderson this weekend
Next week Layne will undergo all his tests for restaging. We will see alllllll our doctors. We are excited and terrified all at the same time. Our doctors believe that Layne will do well, but you never know with EC. We believe the Lord is doing some big things. Please keep us in prayer. We are so busy getting ready I am…
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My boyfreind just had his feeding tube removed, heres the problem, he has very little to no saliva a
Are there any suggestions as what I can do to help him eat. He is picky about what he eats. Hes been eating bananas, jello, pudding and milkshakes mostly. He says he cant eat meat because there is no saliva to dissolve it so he cant swallow the meat. Even if I blend it in a blender. What foods do you suggest. Please help,…
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Not having such a good time!!!! any suggestions?
Hi, Well Mike did good except for the separated rib which is no ball in the park. This is my status report: Had diarrhea and had to have IV infusion on Wed. All tissue in my mouth is ulcerated including lips which you can actually see, can hardly eat but trying. Diarrhea stopped Thursday, came back Thursday night, woke up…
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Back from Mayo
I had appointments at Mayo today, and all went well. I get to start my chemo again in two weeks after I have healed a bit more from surgery. Also, the colon blockage was NOT caused by a tumor. The blockage was caused by the cancer cells floating around, they were basically trying to attack the colon and made it stop…
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Week 2 Status - Most Accidents happen Where?
All I've concluded 2 weeks of radiation and 1 week of chemo. Only suffering from some fatigue and neuropathy from the oxaliplatin from last Friday. I get my next round of that stuff next Friday. Now for my accident: Possible separated rib. How it happened: shifting position in my office chair to answer the phone! I think…
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how to support parents from a distance?
Hi all. I feel I am getting to know you all through this website. God Bless you all for helping & supporting each other and for those fighting this cancer--know that you are in our prayers. My dad is a "young" active, (otherwise) healthy 70 year old. The doctors were surprised at his general health. He is at Duke in his…
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UPDATE ON LINDA
Surgery was 3 1/2 weeks ago Linda is CANCER FREE!!!!!!!!!!! Doctor told me it was the man upstaires I clutched his hands and told him THESE are why linda is still with me today Was crying when I told him that It seems I cry a lot these days When I was in that ****-Hole in the Nam many years ago could not let myself cry I…
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GOD ANSWERED PRAYERS FOR KITTEN AND HER FAMILY AND FOR ALL OF US
I just want to say this "KITTEN WELCOME HOME" we are so glad you fought the fight once again, you are truly an amazing woman, you have had so much happen in your adult life and you are only 24. You have truly wore out your DANCING SHOES, and ready for a new pair of MOE"S BIG GIRL PANTIES, so please help yourself these are…
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Meeting The Nicest People in the Hospital
All About 9 am this morning, I thought about calling Lori's and my friend Cathy P. just to chat and give her a status. Cathy and her husband stored one of Lori's cars from March to July. I had not seen them since I was an in patient in Kansas City 6-10 July as they took care of my dogs during that time. Lori was back in…
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Update!!!!!
I'm Home!!!! :0) Cathy
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thanks for all your help
Although we are not esopageal we hoped some one in this room would be of assistance ...guess we were mistaken
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Esophagus removal
I have been diagnosed with High Grade Dysphasia of the esophagus & Barrett’s. I have had 2 Halo ablation treatments. Last week Dr. Ertan, Houston Med Center, did biopsies. He called and wants me to see a surgeon before I see him again. Has anyone had this surgery, i.e. removal of part of the esophagus and the reattach the…
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Eileen
Eileen, It was so awesome meeting you!!! What a coincidence that we were on the same floor for a couple days and didn't even know it. I am so glad your brother is receiving better treatment here at Mayo...I know I wouldn't be anywhere else. I am also going to e-mail you in a minute, but wanted to post here as well how nice…
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Options for Post Op Chemo
Hi to all brave ec survivors! All of your stories are overwhelming. My 60 yr old husband, Ben, was diagnosed with esophageal adenocarcinoma at the junction T3 N1 in April. He had 5 1/2 weeks, 5 days of radiation and 4 one day Chemo of cisplatin & irinotecan that he finished in June. It was successful and he rested up for…
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back from chemo
Hi, Came home this morning, very tired and wiped out, hope I get my mojo back after I sleep a night at home. Did not have too bad a time except for food getting stuck where my tumor is and it finally resolved and some bad nausea but compared to my heroine, Kitten, I had a walk in the park. Trying to get my hopes back up,…