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Uterine/Endometrial Cancer

Archives for February 2022

Just Feeling a Bit Emotional Tonight
I want to be positive. I want to help other women. I want to know the good, the bad, the ugly. If you get really ill, I won't leave. I just want to say that I know most of you are the same. I'm not afraid of getting too close to people. If I like you, I like you. Same with love. Because cancer is such a nasty little…
DAK <3 Our Deb 1
Dear Deb 1, I know you're very busy taking care of yourself, and I was afraid that it would be hard for you to find a note from me, and perhaps from all of us. I know others who love you may add a note below. I just want you to know I am so grateful for all the love and encouragement I've gotten from you in this last year.…
Ten Things I Learned...
I published a story today and would love to share it with you. Here's a "friend link." Hope you like it! After you read it in the site, you can "click" the applause button at the bottom of the article up to 50 times, which helps bump me up the food chain as a writer. If you like it, thanks. If not, that's okay too. Love to…
Immunotherapy Fail-dostarlimab
I knew this time would come but I didn’t know how fast. For the past month I’ve had some severe pain in my right hip at the top of the bone. I never thought it was “cancer related”. Last Friday a week ago I sent a note to my team detailing how bad I felt and got an acute care appointment at the cancer center. Even with…
Back home from surgery!
Hi All: Well my surgery went well. Unfortunately they were unable to do it laparoscopically due to how much scar tissue I had so they had to do an incision. It is higher up that my previous ones. They removed scar tissue and also removed a piece of my small bowel which seemed to have been stuck which may have been causing…
Avastin
After surgery, chemo. radiation, keutruda, I am now on avastin. Anyone else on this path?
Dairy of a scared women- endometrium 15.90mm age 34
Hello beauties, I’m 34 years young mommy of 4. Here is a journal of my journey through finding out answers, hopefully this helps someone later down the line with answers or with some sort of comfort in the most frightening moments of your life. I pray that your outcome is wonderful and cancer free. <3!! -ENDOMETRIUM ISSUES…
Im 34!!! Please any advice On thickened endometrium 15.90mm
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
Questions about CA-125 test
I will be starting radiation soon. I was diagnosed with endometrial adenocarcinoma. I asked my doctor yesterday if I had a CA-125 test before or after my hysterectomy. I only asked because I see that test mentioned so frequently in everyone's posts. The doctor told me that test was for ovarian cancer and that I haven't had…
Inappropriate Message on CSN
Someone named Barnies85 has sent me fundraising information. Anyone else get that one?
My hysterectomy
I had my hysterectomy Tuesday morning. They got me in prep by 6:00. I was given Tylenol and tramadol during prep and after they got me groggy they did a nerve block in my back and put in a second IV. I very vaguely remember being put in recovery. Someone told me I got to keep my ovaries and it went great. I was so out of…
Seeing a PA at follow-up instead of ONC?
Hi, Ladies I have a 9mth post-treatment follow-up appointment tmo at ONC’s office. When I called today, I was told I would be seeing the PA. I said, “I won’t be seeing the doctor???” She said, “No. For 3-6-9-….blah…blah….you see the PA. If she thinks there’s some reason for concern, she’ll tell the doctor.” This is new.…
When did radiation start after hysterectomy?
I had a hysterectomy and I am next scheduled for radiation treatments. For those that had radiation only after hysterectomy how long after your hysterectomy did you start your radiation treatment? My radiation treatments will start 11 weeks after my surgery. I am concerned because I read an article that said if radiation…
Keeping our mental game strong during treatment
One challenge I faced during chemo was my head game, so I thought I'd start a thread on this to gather experience and wisdom from all of us who have been through it. Maybe future visitors will benefit. By "head game," I mean the mental "game" that helps us navigate very difficult circumstances. I don't mean toxic…
4 years since Stage 4B diagnosis, 3.5 years NED
Hello, everyone - I don't stop in often anymore but wanted to share good news I received recently. I was diagnosed in January 2018, initially as Stage II, then 3 months later after a scan, Stage IVB with nodules having spread to my lungs via LVSI. Life looked like it would be quite abbreviated. Yet here I am, 59 now, and…
Plateaued CA125
In Oct I was diagnosed with recurrent Uterine Cancer. Numerous tumors in my abdominal cavity. My ca125 was 135 at time of diagnosis. 8 weeks later it was 439 (before treatment). Next draw was 244 (2 days before first treatment). After my first treatment it was 214 and then 222 after 2nd. Had my 3rd cycle last week so don't…

Uterine/Endometrial Cancer

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