Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine Cancer

Archives for September 2018

Symptoms
To start off, I have seen a doctor. I just don't feel his diagnosis is correct. I am 29 and started seeing brown bleeding between periods. It only lasts a day or two, but I have pelvic pain on days other than when I see the blood. One month the bleeding and pain were so bad I called My OBGYN to be seen ASAP. He felt around…
Immunotherapy Side Effects
I don't know how many of us are on immunotherapy now that Lou Ann is gone, so I thought I'd post an update on my side effects in case anyone finds it useful. Reactions to immunotherapy are unpredictable; the FDA just approved it for us last year, so there's not much to compare it with whereas the [regrettable] effects of…
MRI Results
I got my MRI results this week and am pleased to report that I'm no longer Stage IV uterine, or apparently any stage uterine at all. The retroperitoneal lymph node mets were killed off by the CyberKnife treatments I had in January and nothing new has come up, so I'm guardedly optimistic on that count. In other news, the…
Update on my Mom
Hi guys, I haven't been very active on this board because I've been busy with resuming life and work after my mom's cancer journey. My mom just got her latest CT scan results and blood test back last week, and she is doing well. Her CA-125 is only 11, lower than 3 months ago when it was 17. Her scans came out clean. Her…
Just diagnosed.
I just received word that I have Grade 1 endometrioid carcinoma. My head is spinning. I’m terrified.
Someone knows how we feel
Just watched A Million Little Things. Two of the characters have breast cancer - one is a male. Both are having to deal with the uncertainity cancer brings into our lives. Those 3 month checks... I am facing one on Tuesday and while I am doing water aerobics the thought flies through my mind - why am I working so hard to…
hello
Waiting on biopsy results
I am a 37 year old. I went to my gynecologist a couple of months ago bc I was experiencing random heavy bleeding and basically a continuous cycle. I’ve always had irregular periods, but the bleeding got so heavy that it prompted a visit to the doctor. I immediately had an ultrasound, which showed an endometrium thickness…
My Girls!
Just got off the long bus ride from Houston to San Antonio, but I can't climb in bed without visiting my sisters here to tell them a little bedtime story of a girl who was diagnosed with Stage IVB, Grade 2 Endometrioid Endometrial Adenocarcinoma in the Spring of last year. She had a robotic hysterectomy with which she was…
New Publication: NCCN Guidelines for Patients – Uterine Cancer
If you would like to read or download the new NCCN Guidelines for Uterine Cancer Patients publication that was just posted on 9/11/2018, see the following link: https://www.nccn.org/patients/guidelines/uterine/index.html You can also sign up for a free account with NCCN to download a copy of the complete NCCN Clinical…
back/leg pain/numbness after hysterectomy
Hi everyone, I am a new member, and have been diagnosed with Stage 1a, Grade 3 Uterine Cancer. I am almost 6 weeks post-op from complete hysterectomy. They took everything including lymph nodes and omentum. everything was clear except fot the tumor in uterus. It hadnt penetrated the uterine wall or muscle yet. I will be…
Bell ringing
I never thought about it this way https://www.medscape.com/viewarticle/902132?nlid=125123_3902&src=wnl_newsexcl_180919_MSCPEDIT&uac=297357CV&impID=1743376&faf=1
Hysterectomy vs Progesterone Therapy
Hi Ladies, I met with a gyn onc today to discuss a game plan. He mentioned that I really don’t have any of the check boxes that is common in patients with endometrial cancer, so he is surprised that my biopsy (which was conducted on a “rule anything out” basis as opposed to “suspected problem” basis due to anemia) reported…
Internal Radiation
My mom will have her 4th and last carbo/taxol administered tomorrow. 3 weeks from then the doctor wants to start internal radiation. He mentioned 6 weeks of internal radiation. Is that normal? Looked like a lot of sessions. Any guidance is appreciated.
5 weeks post hysterectomy and urining blood after bath
I had my hysterectomy 5 weeks ago . Finally stopped bleeding vaginally a couple days ago. I traveled from AZ to PA to finish my recovery while staying with my sister . At my sister's house, I decided to take my first bath post surgery. I normally use very gentle non paraben and fragence free soap but did not bring it. I…
I’m here and back on my feet!
Hello everyone! Sorry it took me long to check in. Thank you all for your concern. The surgery did take a lot out of me this time but I am back in my feet and back to work. I had the ileostomy reversal on June 15th and ended up 4 days in the hospital which was a little longer than I wanted. I returned to work July 9th. I…
Diagnosed with stage IVB Endometrial cancer
I'm 42 years old. I'm overweight but otherwise have been in good health till now About maybe 10 weeks ago I noted my belly was getting more solid, but I am overweight and was purposly losing weight. Then I had a super heavy period for 2 weeks that left me weak for a few days but I assumed it was blood loss and took iron…
MMMT complications (met @ bone)
Hello everyone. I'm keeping this short for now because I'm currently emotionally overwhelmed by my mother's diagnosis. But hello -- I am a new member of this board. My mother was recently diagnosed with stage 3c MMMT, grade 3. Had total hysterectomy and we were told that it had spread to 3-4 lymph nodes (all affected parts…
Newly Diagnosed, so many questions...
Hi all, I recently had a hysteroscope and biopsy, 6 months later than originally scheduled. i am 45, have very regular cycles but heavy bleeding. My gynecologist thought a fibroid could be the culprit, but found nothing. She was very surprised that my biopsy results came back showing complex atypical hyperplasia, FIGO…
Anyone prescribed progesterone after hysterectomy to reduce risk of reoccurance ?
Had Hysterectomy in August. post op appointment I learned I was stage 1B. Doc gave me the opinion of brachy. I was not comfortable with that and doc recommended progesterone for 6 months. Has anyone been prescribed progesterone after hysterectomy?
Ozone Therapy for preventing cancer recurrance
Hello. I wanted to see if anyone has had success with preventing cancer recurrance or treating cancer using ozone therapy, and if so, which type (hyperbaric vs IV). My mother is in remission from an aggressive uterine cancer (MMMT) and we wanted to look into this as an option but because it's not a proven treatment we are…

Uterine Cancer

Discussion List