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Uterine/Endometrial Cancer

Archives for December 2016

Carcinose péritonéale
Hello I am looking to talk with women who have endometrial cancer that is spread to the peritoneum. (abdomen) I have peritoneal carcinosis, with nodules on the intestines and on the diaphragm. I hope the chemo will help me.
Lou Ann m please
Can you give me your name for a discussion in primate on Facebook? Messenger or mail? Thanck you
Grateful for good news
I saw my gyn onc yesterday and got the results of my post-chemo scan. There is no sign of cancer, and the few lymph nodes they were watching either shrank to normal or remained stable. She actually used the phrase "complete remission." This is a better result than I ever dared to hope for. I see my medical onc on Tuesday…
Question....
I am over six years out of all treatment. With Taxol/Carbo I lost all my hair. Grew back to a respectable length in six months. Flash forward five years, Im losing all my hair again. Anyone ever hear of this? What do I do? Dr.s can't find a thing wrong with me...no "pattern baldness" on either side of my families. Thanks,…
Hives - from Taxol??
Eight days after my first infusion of carboplatin and taxol I have developed hives on my thighs ankles and now my arms. It itches a little and last night and this morning I took a Benadryl. I figured that since they dose you with Benadryl before they give the "high test" it would be OK. Now I see from the Taxol disclosure…
Sad news
This tuesday my mum passed away after fighting for 3 years with cancer. Unfortunately she suffered a lot in the last few months. She was an amazing women, mother, wife and grandmother. She spent so much time praying to God that eventhough she suffered from cancer but please do not let any more people suffer! I hope she is…
Thankful to find you!
I have searched off and on for over 3 years for a group of women like myself who are experiencing serous carcinoma . every board i saw was from 2011, 2013 that I gave up until yesterday when a dear friend suggested i try again,and here you all are! I was diagnosed in May, 2013 and have been under some treatment ever since-…
I do have some "temporary" good news from my oncologist visit on 12/27
Hi Ladies: I wanted to update you ladies on my oncologist visit on Tuesday. My CA level went down to 63 down from 134 in Sept. I was "shocked" the level came down so much. I was on Tamoxifen for 8 days so I am wondering if it has something to do with my level. I had to discontinue this drug because it caused burning in my…
Thankfully Still NED
I went in this afternoon for my quarterly checkup and thankfully, all is still clear. These quarterly exams are sure nerve wracking but necessary. I asked about another scan since it's been a year since my last chemo but my PA said unless there's some kind of symptom, they just don't do them routinely anymore. So....as…
Cancer really sucks.
I really hate this disease. Dec 11, a good friend at work was in the hospital, some posted that she had Pneumonia. Dec 13, I see her at work again and I recognized the hair cut. When we talked she explained that it was not pneumonia but stage 4 Lung Cancer. She had already started treatment and had her first chemo, she…
lesions
Has anyone had a breakout of lesions as a recurrence? My mom has some lesions on her ankle,arms and back and it's making me afraid. I'm going to call her doctor to make sure it has nothing to do with her UPSC.
Not opérable
I thank you for all your support. Here I find a lot of answers to my questions. Is there any women with uterine cancer who have not had surgery, who have not had a hysterectomy? What is your treatment ? Ans résults?
Adénocarcinome endometriale stage4
Hello everyone I am really allergic to taxol then I will give taxotere. Does anyone know the taxotere? For my history with cancer I have an endometrial adenocarcinoma. I have Stage 4 because the cancer is spread to my abdomen and diaphragme. The surgery is not possible in totaly and i am very afraid. Scuse for my english i…
Playing the waiting game
Labs, Doctor's appointmen, and Keytruda infusion yesterday. Mostly everything went well. My oncologist went over the CT scan in detail showing me the pictures. Not much different from what my GP had to say last week, Only the tumor in my neck is growing. He says that happens with immunotherapy, where most will stop growing…
Hormone therapy update
Merry Christmas! Happy Holidays!
To All of my wonderful partners on this board...... MERRY CHRISTMAS! I hope we all find 2017 will bring us much happiness, joy and a sense of peace. Thanks to everyone for the support, love, guidance, friendship and understanding that only we can provide to each other. I'm grateful for each of you. Love and Hugs, Cindi
Last chemo - not done yet - some good news though
I had what's supposed to be my last chemo treatment on Thursday. (I still feel like putting "last" in quotation marks because I can't believe it really will be the last.) It went well and I got to ring the bell. The nurses at my infusion center kind of made a fuss over me and gave me a teddy bear as a gift. The less good…
Re: Meeting with Oncologist on Tuesday, December 27th
Hi Ladies: I wanted to update all of you ladies on the Tamoxifen. I stopped taking Tamoxifen on Sunday, December 11th as I was on this medicine for 8 days. It caused BURNING pain in my eyes and pains in my head so I stopped taking it. I immediately called my oncologist on Monday morning, December 12th and mentioned this to…
Back Pain
Merry Christmas! For the past 3 weeks I have been suffering with back/hip pain to the point that I am having trouble walking. I finished with my radiation in October. Before this happened I did have some degree of arthritis and osteopenia deterioration in my back, but never suffered this type of pain. It seems to be a…
Just blowin' smoke?
I think I hinted (or maybe more than hinted) at my lack of trust in the medical community, with a long history of reasons. Question: Are my docs just blowing smoke? I had my first appointment yesterday with the onc. The way everything went and the things that were said, you'd think I was just having some gastro issues and…
Daylady headed to Germany
Hi Ladies! I apologize for not checking in more often, but I wanted to at least check in and update you as I don't think I have seen this approach on the Board before. After my CT Scan in Aug. it was discovered I had a small spot on my liver. My oncologist wanted to start Topotecan but after two cycles it was clear it was…
Allergie reaction
Who has an allergic reaction to taxol? My first chemo with taxol I made uneasiness and fall of tension
Genetic Testing - Repeated???
Has anyone had genetic testing repeated? I had BRCA1 & 2 testing done when I was diagnosed with Breast Cancer in June 2015. They also did an expanded panel for gene mutations that they really don't know much about yet. All of this came back clear. When I was diagnosed with UPSC in Sept 2014 I also had a test performed for…
Radiation doctor really cares.
Here is my update. Ever since I ended treatments I have been having off and on thoughts about my cancer comming back. Some days I would feel calm and at peace other days I would worry at times. I would think about changing doctors because none of my doctors would suggest a cat scan. I never changed and kepped praying to…
Update from Lou Ann
December 3rd was my 8th infusion of Keytruda. That is still going well with almost no side effects. I still have some side effects left over from the chemo,. My Neuropathy is still there and bothers me a lot at night. My oncologist said that he does not believe that it will get better because of all the Taxol that I have…
Second Opinions Are Critical - Even on a Pathology Report
A week ago today, I met with my oncologist to review the path report from my November 28 radical hysterectomy. At that time I was told I had mixed Grade 3 undifferentiated and neuroendocrine cancers. I posted about the neuroendocrine part the same day but, like me, virtually no one had heard about it as it only occurs in…
Todays another day
In march I was diagnosed with uterine cancer. Grade 1 stage 1a. Had a di-vinci total hysto with no followup care require other than to see my normal gyno every 6 months for first year. My first 6 month check appeared to have been well and good (no pap smear or anything, she just took a look inside to make sure I was healed…
Update on sonohistogram....Learned nothing! Arggggggggg
Just got off the phone with my ob and I am no closer to an answer than I was a week ago. Turns out that not only did the sonohistgram not work, but taking the fluid for biopsy revealed nothing....just fibrous tissue. So, I still have to go back for a full endometrial biopsy. I am disappointed that I didn't get an answer…
caught a cold
Hi, Its been a while since i have nneded to post for me. Ive been getting on with my life. Slowly but surely finding recovery. I even had forgotten that my pot needed flused every so often. Thanks to you guys i remembered to do it last week. Things werent perfect but i felt i was having a lot of good days. I caught a cold…
Christmas and Cancer
Ladies, I know many of you use integrative medicine in your treatment protocol. I thought this would be interesting to everyone if you are not aware of it. As most of us know, three wise men from the east travelled to visit the baby Jesus and presented three gifts to honor his birth. The gifts were gold, frankincense and…

Uterine/Endometrial Cancer

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