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Here is hoping 2016 is better
To all the "below the belt" warriors, Looking back over 2015, and keeping in mind the previous years, I think of the friends we have lost. It is with hope I look forward to 2016 with wishes that advances in treatment, or dare I say, a cure, is found and we don't lose anymore beautiful, intelligent, compassionate women.…
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Going to try and glue myself back together
My port site (port is gone) is still an open sore. They told me to come back in 10 days if it wasn't healed but that 10 days is tomorrow and I don't think they'll be there on New Year's day soooooo, I bought some steri-strips and I'm going to try and stick myself back together tonight. It will be four weeks on Tuesday…
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Good news?
I had my second chemo yesterday, everything went great (same as the first time). I'm hoping to get ahead of the pain I had last time by starting Advil last night and continuing agressively today, hoping to ward off the worst. My chemo nurse said to take Norco the second day, however, I'm hoping I dodn't need it. I was…
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Good news
Over the weekend I got to thinking about some of our older posters we have not heard from in years. Christmas does this to me! So I reached out to a former poster to see how she is. She left our group due to personal problems and time comfraims. She has MMMT I think or maybe UPSC, but, it was grade 3. She is alive and…
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Change in treatment plan carcinosarcoma MMMT
Interesting development here. While external radiation to follow chemo had been discussed since my staging (3c2) after surgery, my doctors are now re-evaluating that. This morning I talked with the radiation oncologist I had consulted with back in October. Right now, he says that the most recent studies and research do not…
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Is anyone using immunotherapy or anything other than chemo?
Hello, just trying to find out if anyone is using any other drug than Chemo? There are some trials out there for immunotherapies. Does anyone have any information on what they offer at sloans in NYC? Anyone have a good doctor they see there? I am asking for my SIL who has uterine/endometrial cancer. Not sure of the details…
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Merry Christmas
Just wanted to wish everyone out there a very Merry and blessed Christmas. Hugs and prayers for all, Lou Ann
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Port out and done with chemo
I went in this morning for a 20 minute appointment and it took two hours. I told my gyno/oncologist I was stopping chemo. He said he didn't blame me; I was having a lot more bad side effects than most. He had recommended the chemo to kill off any microscopic cancer cells and with three chemos, it was a good chance that had…
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Possible skin/infection or ?
Sorry ladies, I'll try to be as polite with this subject as possible, but I seem to hve developed a patch of red skin that burns to the touch or when wet. It now has become raised, probably swollen (I don't know cause I can't see down there). I also noticed tonight it seems to have spread to the other side. There is no…
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Tough weekend and then a small glimmer of hope at the end of a long tunnel
Ended up in the ER Saturday after having a night of sharp pain in my upper left chest. Started out like heartburn so I wasn't to concerned.But it kept getting worse with pain spreading from the front to my back into my shoulder and neck. That scaredme enough to decide to get it checked out. Why do these things always…
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Ladies in Florida
I was thinking that there are several of us who live in Florida. Perhaps we can arrange a getogether in the new year. I feel so close to the people on our board and I thought we all might enjoy meeting in person. I live halfway between Tampa and Orlando. Let me know what you think! Sandy
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The waiting game
Hello Everyone:) This is the first time I post on ANY discussion board. I am 41 years old, have 2 young girls (5 and 8). I'd like to share my concerns in hopes that someoneout there can tell me what to expect. In 1999 I was diagnosed with a pituitary tumor and began meds for prolactinoma, where my gland produces too much…
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It wasn't fair and I'm sorry
It wasn't fair and I'm sorry. You guys are the best and going through the same hell I am and I shouldn't have put my mental problems on you. I have looked into some of the new trauma treatments that Chris (Editgirl) suggested to me and they look promising. I even found someone in the Green Bay area that offers it. I am…
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Thinking about quitting chemo
After three chemo treatments, I'm thinking about quitting and taking my chances the surgery got the cancer. I'm Stage II UPSC and I know it's an aggressive cancer but I had two CT scans after surgery and they couldn't find any tumors. My doctor told me I had a 50/50 chance after surgery that he had gotten it. With chemo…
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Abnormal Pap smear on my 2nd post chemo check up
It's been a year since my chemo and radiation treatments ended in or about Feburary or March. I had a good first post treatment check up and Pap smear but last month for my second checkup and pap smear, I just got a letter saying to call his office because the Pap smear was abnormal and further action is required. I'm very…
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Research news
(Reuters) - Drug developer Advaxis Inc said on Wednesday the U.S. Food and Drug Administration had lifted a clinical hold on three of its experimental cancer therapies, sending the company's shares up as much as 38 percent. The U.S. health regulator had in October put on hold mid-stage trials of the company's lead therapy,…
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Chemo hell!
Are any of you or have you in the past followed this chemo path? Day 3, 4 and 5 are hell - dry heaves, pain, dizziness, fatigue, dehydration, white-coated tongue? I can no longer take oxycotin since I'm having night terrors and bad constipation. The night terrors were so bad I stayed awake throughout Sunday into Monday for…
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Anybody heard of this?
http://www.lifeextension.com/protocols/cancer/uterine-cancer/page-07 I don't think I've ever had a CTC blood test. My cancer hasn't metastized, as far as they know, but it looks like a positive update. Love, Eldri
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Metastasis into lung area
I have a friend that also has uterine carcinoma we both live in the same town and it was just by chance my husband mentioned to her husband (they belong to the same club) what I had found out about my cancer and what treatment I was going to have to go through. So I called her and we talked about the two different drug…
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"The Death of Cancer" by Vincent DeVita
Good day ladies. I came across this book review today and thought you all might be as interested as I was. I have read Siddhartha Mukherjee's "The Emperor of All Maladies" and might have to go and get this book. In any event it reinforced the fact, for me, to be your own advocate. I hope you enjoy this as well. The New…
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Pain?
Does anyone take anything else besides motrin for muscle/bone pain? I don't want to necessarily get started on stronger pain pills that cause other problems, but nothing I'm doing is helping and it's increasing. I walked on the treadmill this morning, took a hot shower, sat with a heating pad, massaged my legs, NOTHING! My…
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MRI with contrast
Hola, I was wondering if anyone is familiar with the side effects of contrast in the body. I am trying to avoid to have mamograms, bcause of the radiation, but now my doctor ordered an MRI with contrast. Any advice?
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Chemo #6 Done and Done!
Had the 6th and final round today. Yay! I have to say that I was almost as anxious about this round as the first. I was hoping I had kept my numbers up so there wouldn't be a delay, and I knew that many women don't make it through frontline without a delay. And I was anxious about having a reaction to the Taxol/Carbo as I…
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Just had biopsy yesterday - long family history...
Last year I had multiple CT scans for some upper abdominal pain/overactive gallbladder - all showed a Ovarian cyst measuring 1.9cm Transvaginal and Abdominal Ultrasound in Feb 2015 showed the following: Uterus measures 9.4 cm x 6 cm x 7.2 cm. Neutral position. Endometrial stripe is a little thickened at 1.6 cm. Probable…
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PET and CT Scans have been ordered
So, I went for my weekly blood test today. All is well. Counts are down as expected but I'm one of the lucky ones where I build back up nicely before the next chemo. I was told they have ordered my follow up scans. I'm not sure when it will be scheduled yet but most likely in the next week or so. I am now experiencing that…
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Receiving chemo now,
I'm in the infusion room at my hospital receiving my first chemo and I am having no problems, nothing, zilch. And I am so stress free that I'm eating a ham & cheese sandwich! I received a perk bag with a hand made blanket, and lots more in the bottom of the bag, so it really made my "opening debut more pleasant. And BEST…
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Endometrial metastic to both lungs
I have just been diagnosed with endometrial metastic to both lungs. It is inoperable and I have just started chemo treatments. I was never given a chest xray since my first cancer in 2012. Can anyone explain this to me? I was the one who asked for a chest xray even though I had no symptoms. The xray showed spots so CT scan…
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Change in diagnosis and question
Had surgery 3 weeks ago. I learned from my pathology report that instead of UPSC, my cancer is carcinosarcoma. Report says: "CARCINOSARCOMA (5.5 cm) consisting of serous carcinoma and a spindle cell mesenchymal component in a polypoid mass." From what I've learned online this is definitely not a better diagnosis than UPSC.…
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Half way done with chemo!!
I was just thinking tonight - I'm halfway done with chemo!!! Whoopie!! No Neulasta shot either so hopefully this will be a better week-after-chemo than last time. Love, Eldri
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Chemo day #27
I believe this was #27. I am starting to loose count. My lab and Dr's appointments were later than usually and they just put in a new computer system that went online yesterday, SO we got home after dark . Good news was that my platelets were high enough to go ahead with chemo today, Hemoglobin was up from 8.4 to 9.3.…