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Thinking of stopping at 3 instead of 4 chemo treatments.
I am on day 7 of my 3rd treatment and my M.S. and M.G. is taking a big hit. Bladder, bowels, M.S. Hug that feels like I am being strangled at my diaphragm. Spasms so strong that I can't tolerate to stand, sit or lay down without extreme pain. And to think I may be in a flare that is permeant really is to much for me to…
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Lorraine
7 weeels of chemo in the books. CA-125 level was originally 8,000, currently at 1,124. Still a high number, but down a lot. Eating well and staying somewhat active. Eleven weeks of chemo to go! Just wanted to give an update. Hope all is well with everyone. Bob
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RA and UPSC
HI ladies it's been a long time since I posted here. My Mom was diagnosed with UPSC three years ago and I'm grateful to say she's been dancing with NED since! She has rheumatoid arthritis and has lots of difficulty with her 6 month exams. They are very painful for her. Her doctor said that insurance companies don't like…
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stage 1a grade 3 endometrial clear cell treatment options
hi all, i'm new here. i was diagnosed with endometrial cancer 2/7/15 and had an "everything out plus nodes" daVinci hysterectomy 3/16. my path report from that was stage 1a grade 3, clear cell. nodes clear and pelvic wash clear, but invasion of the uterine lymph. first pass, my surgeon thought a combo of chemo and brachy…
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what's your diet?
Do you follow any special diets? Any recomandation?
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HPV high risk problems
I was diagnosed with recurring cervical dysplasia & HPV over 5 years ago (in my early 40's). I had 3 cervical conings (where they freeze the surface cells.) After the 4th positive test result, I decided to take different action. I did a lot of on-line research,day and night, which lead me to try a new HPV treatment known…
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Avastin and Naturopathy
Hey ladies...an update. After having a recurrence in my pelvic nodes, I was started on Doxil and had to quit after 3 cycles. I had the worst toxic reaction they had ever seen at Kaiser! Mouth sores all down my esophagus, skin burn that peeled off my body, rash all down my legs, and hand/foot that literally took me to my…
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Do I need a GYN now? Any thoughts...I know there isn't a clear answer but I would like to hear from
Hi Everyone, Even with clear post surgery pathology I know that they might still want to keep a closer check on me for something to show up but not with the same sense of urgency but after a hysterectomy do I still need a GYN? Also pre-surgery at 51 I was right on the edge of menopause...now of course my body has…
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plevic and para-aortic lymph node removal after radiation and chemo
hello. My mom was diagnosed with Stage IV uterine cancer at age 62. she had complete hysterectomy done by general ob/gyn on emergent basis in 2012 with out lymph node disection. she had 7 cycle of chemo in 2013 and did really well. she also had 5 weeks of pelvic radiation in summer 2013. she did good until may 2014. She…
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Serous papillary endometrial adenocarcinoma vs other uterine cancers
Even though I spend a lot of time researching this, I still can't get a good answer as to the differences between the differntent types. Some of you seem to have so much knowledge about this, hoping you good help me figure it out. My Cancer is the Serous Papillary Endometrial adenocarsinoma stage 4. High grade. Very…
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I'm done! Yahooie!
I had my LAST appointment with the gynecologic oncologist this morning. He officially kicked me to the curb. I had my surgery July 1, 2010 and this is close enough to 5 years for me. I hope this is encouraging to those of you who have the "garden variety" (endometroid adenocarcinoma), early stage, low grade cancer that I…
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Low grade temperature that goes up and down for week. No other symptoms.
It started last week. The temp was 100.1 then after 1 Tylenol and a cool wash cloth on my head, it went down to 98.7. I had a runny nose that day but no aches and pains anywhere. I called the doctor. I talked with the nurse. She said she would call the doctor and give him the message and he or she will call me back. A 1/2…
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I got my diagnosis on April 15 and I need your help
Hi everyone! On April 15 I was diagnosed with Endometrial adenocarcinoma after D&C. Reading this forum is giving me hope. I want to thank you for sharing and helping and to wish you success in this fight. My few questions are: 1. Do I need another referral from my Gynecologist if I decide to go to another Oncologist? She…
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The quest for the cures
Has anyone seen this series? I watched it recently and found it very informative about cancer. I think it's a must for anyone fighting with this illness. It makes you think immune system and diet play a much bigger role than conventional medicine in eliminating cancer. Just wondering if you watched it, what your thoughts…
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diagnosed at 25
Not sure where to start. I guess in the beginning..I found out on april 8th 2015 that I have uterine cancer. Im only 25 and still trying to process everything. The doctors are not sure what grade it is due to the fact that my labs came back at both grade 1 and grade 3. It has been ruff seeing as to how I have never had…
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Waiting over hysterectomy done pathology back...A OK
Hi, Finally had the hysterectomy that I had been waiting for and I am thrilled that it is over. I am happy to say that they didn't find anything...so I am clear. It throws me off that I had a pap test that showed adenocarcinoma cells that lead to the surgery...that has shown nothing. It leaves me wondering what does that…
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UPSC...medical neglect
My sister had a hysterectomy and was diagnosed with stage IV B endometrial/UPSC cancer in the spring of 2011. For treatment purposes they used the same protocol as for ovarian cancer. The doctors involved were not very responsive (she's in Naples, FL, not some third world country) and she lacked confidence in them so she…
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HIP PAIN AND POSITIVE SCAN
I have had hip/groin pain for a month. It was so painful with sudden onset of pain that I could hardly stand the pain for the first two weeks, even with staying off it as much as possible, using crutches and taking Vicodin. Today I had an MRI and before I even got home they had called to tel me that they found something on…
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Latest lab results not what I hoped for
in the last three months my CA-125 went from 607 to 1526. It is quite a jump. But it still is not as high as it was before I had the radiation. It was 1586. My doctors always tell me the marker is just a number. It only becomes a concern if there are symptoms or changes in the CAT scan. I know that doubling is a concern,…
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And so the journey continues; got my scan results
Hi ladies! Well, the news isn't great - I continue to progress now through my Avastin treatments. Two tumors have doubled in size, the one by my heart grew and the other two are stable. The good news is no new mets were seen and no direct organ involvement. My doctors are having me meet this Tuesday with a principal…
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Re: Good news on cat scan for UPSC - NED - 4 years out from original diagnosis!
Hi Everyone: I just wanted to post my really Good news from my latest cat scan from yesterday as it shows I have No evidence of disease for UPSC for which I am extremely happy and very grateful so now I am 4 years out from my original diagnosis from February of 2011. I had Stage 1 of UPSC. So now, I only have one more year…
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roll call for those who are 5 years cancer free!
I know every one slowly goes away from this sight after they have gone through hell during doc visits chemo etc, I have been reminded that I am also one of these , I am here to encourage all, I had stage 4 grade 3 endometrial cancer, was told by first doctor I would not live 6 months with out operation and with operation I…
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March 29th 60 Minutes broadcast
I did not watch this episode of 60 minutes, but learned about it from a coworker. She told me that Duke University has been doing research on the use of the polio virus to treat a terribly aggressive form of brain cancer. By injecting polio into the tumor, an immune system response is sparked that has led to the tumor…
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NED THE MOVIE
I am finally get to see NED the movie. It is 3:00 am and PBS has got it on in Dallas, Texas.
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My Dad is Upsetting Me!
So, since the last time I posted in here, things have been a little bit crazy for me emotionally. I'm up and down, moving from being scared and forgetting that I have been diagnosed with cancer. The wellwishes have stopped, and I've fallen out of most everyone's thoughts. Now Im just stuck here with this... situation. I…
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Alternative treatments
has anyone tried any alternative treatments that they found helpful? Keen to hear your experiences.
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Anti cancer diet
hi all, i have been trying to research anti cancer diet. Came across a number of sites suggesting dairy is not good for cancer. most doctors recommend extra dairy during cancer treatment to ensure patients get enough calcium in the diet. no doubt most people on this site would have researched into an anti cancer diet.…
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Post complete hysterectomy endometrial cancer in my omentum
I would like to hear from others who have had this kind of cancer. After my hysterectomy my cat scan showed I was cancer free. Four months later I began having abdominal pains. Stage 1V endometrial cancer. I have completed my 6 infusion treatments and am now on Tamoxifen. I would like to hear from any patients with similar…
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Cancer: The emperor of all maladies
Did anyone else here in the U.S. see the three part PBS show "Cancer: The Emperor of All Maladies"? It was unbelieveable. How chemo, radiation, immunotherapy, and clinical trials run have come to be?? Fascinating. Like life, not everyone they highlight lives, but it did give hope. Back before radiation could start I was…
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HellieC thinking of you
Wondering how your results from you latest CAT scan or PET scan showed from your cyber Knife? I hope the tumor shrunk and you are still pain free. Have not heard from you for quite some time. I hope everything is okay. in peace and caring.