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Lovenox
anyone familiar with this when they were doing chemo? My wife, Lorraine was supposed to have it yesterday, but because her stomach wounds haven't healed enough, they delayed it until she's healed. She was very nervous because she heard the side effects were pretty brutal... nosebleeds, paralysis, etc. Was just wondering if…
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New York Times Article about exercise during treatment
http://well.blogs.nytimes.com/2015/03/25/how-exercise-may-aid-cancer-treatment/?comments&_r=1 I made a comment to the article about the difficulty in doing exercise when you can't walk up a flight of stairs. Somebody replied that essentially whatever exercise you can get to challenge your body aerobically is helpful. So…
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Angelina Jolie has ovaries removed
Angelina Jolie faces the threat of ovarian cancer after dealing with it in her family: http://www.nytimes.com/2015/03/24/opinion/angelina-jolie-pitt-diary-of-a-surgery.html
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Hernia operation
As part of my mastectomy and reconstruction surgery, the plastic surgeon repaired 3 hernias. He used a sheet of mesh (my husband and I joke, he went to Ace Hardware and bought window screen). I thought I was told the mesh dissolves. I had the surgery June 2013. I am having pain across my belly by my lowest rib and across…
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Avastin/Topotecan
hi loves, anyone been on this regiment? I've been very fortunate to have been able to tolerate cisplatin/Gemzar for the past 3 1/2 years for my recurrent OVCA and knew it would become less effective with time. My Onc is changing me to this new regime and I wondering if anyone has had this combo and could tell me how it…
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Please help! Appetite just doesn't want to return!!
Hi Ladies, I completed 3 radiation treatments (targeted) to the brain about 3 weeks ago. Even prior to my seizure and all that mess, I was struggling with my appetite. Now it's really bad. I have had to eliminate dairy as it was causing nausea and vomiting. Spicy foods are out and tomato based foods seem to bother me. I've…
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nutrition
There are so many different schools of thought on good nutrition after cancer treatment I can't decide which way to turn... I am currently doing weight watchers and that is working okay, except when sugar cravings overcome me. I read an article yesterday I should be eating all raw fruits and veggies. I can't believe I…
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Still here... Coming up on 9 years!
Hi loves, I've been AWOL from the board for quite awhile so many of you may not know me. I was diagnosed 3C in 2006 and went through the surgeries and chemo rounds and was in remission for about 2 1/2 years. My disease became recurrent and I've been chemoing ever since. It's strange to say, but living my life around chemo…
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Parp inhibitor
I was in a clinical trial with a parp inhibitor but as soon as olaparib became available i switched to it. So far so good! Anyone else start the new parp inhibitor? I'm BRCA 1 so i'm glad i have the opportunity to take the drug. Kim
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Feeling good
Hi everyone just a quick update, been on Avastin since 1st line chemo finished in sept 2014 , numbers rising very slowly 33, 39 , 42,48, ect I'm now on 80 . My oncologist thinks it is avastin playing with my numbers and has had other patients with the same thing, I'm hoping that's true as results from last 2 ct scans dec…
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Keep your hair during chemo: is it worth it?
Saw this story today in the NY Times describing a method to keep your hair during chemo: http://well.blogs.nytimes.com/2015/03/09/keeping-your-hair-in-chemo/ Frankly, it sounds like a lot of trouble and discomfort, to say nothing of the expense. Not sure I'd be up for it. I've lost my hair twice in the last two…
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NED the Movie
just finished watching this movie..it is on PBS stations....really hits home about all gynecology cancers...focus a lot on ovarian . A groups of Gyn/Onc Drs have a band Called NED to spread awareness about below the belt cancers. I encourage all you to watch with daughters sisters..husbands. One lady said she wished she…
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Still Here After 8 Years w/Stage 4 Ovarian Cancer
It's been a while since I've been on these discussion boards. I have made lifelong friends with many beautiful ladies from this very board. I took a break from the boards when my cancer fight became more intense and I began going to md anderson once a month now. I'm currently on a second clinical trial study for recurrent…
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saw gyne onc yersterday CA upalittle - now at 218 - she's not worried as I feel fine & present with
Hi all as said above we had a good talk about CA # in all this. I found her very logical and she pretty much matched what we've learned about CA# I asked if anyone would ever have a zero reading for this specific Cancer Antigen NO even a perefectly healthy woman will have a reading & she suspected even testing Wayne could…
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Hi teal sisters! Last several months have been rough
I haven't been on much lately but the last several months have been interesting to say the least. From what I read mom with 2 great kids and wolfmeister must be about where I am in my progression with this disease, only we all seem to have slightly different problems. I was doing pretty well till October and my ca125 went…
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BRCA TESTING
My Doctor's office called. I am BRCA negative!!! Yeah! So thankful for my daughter and sister. As well as ny future granddaughters. Carla