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Ovarian Cancer

Archives for June 2014

mastectomy part 2
Just finished my second surgery on my mastectomy. Had a reduction in size on the left to match the right, some "shaping"done and nipples formed. 4 hours under general anthestia. In a couple of months I get to have the tattooing and then I am finished. No estrogen tissue in this body...
Update on my mom.
I haven’t had time to get on in a while and I thought this would be a good opportunity to post an update. My mother is now in a phase II clinical trial to measure the effects of an experimental immune enhancing drug or placebo vs Doxil. The study is double blind, but given the fact that 4 hours after receiving the…
A good friend
I don't usually post and if I do it's on the colon board, as I lost my husband to this insidious disease, but today I learned that a good friend and colleague lost her battle with OC. She was the most positive, loving and caring person I'd ever met. Not to mention how hard she fought, right up until the end. I will never…
Has anyone heard of this or been treated in this way? HIPEC
New treatment effectively kills Ovarian cancer Doctors are trying a new way to treat Ovarian cancer by using chemotherapy that's been heated up to kill cancer cells. By Denise Dador Thursday, June 19, 2014About 22,000 women are diagnosed with Ovarian cancer each year and more than half die from it. The disease is hard to…
Let's have some fun..
all of us being in a chemo haze one time or another have done or said very embarrissing things ....one of my worst was a a few years ago I wished everyone a Happy Mothers Day....on the prostate cancer site. Can't make this stuff up...walked around with shoes on wrong feet.Wore shirt inside out. Thinking back you just gotta…
So confused ...elevated CA 125
Good morning , this is an update to my previous post. 3 weeks ago a ct scan and ultrasound found a 7cm complex ovarian mass on left ovary, a small comp. mass on the right as well as a enlarged left Fallopian tube with fluid and debris in it, a 5cm fibroid, enlarged uterus the size of 4 month pregnancy and small amount of…
Naturopath Upstate New York (?)
Hi, Can anyone recommend a Naturopath in the Upstate NY area that specifically works with ovarian cancer? (Rochester, Syracuse, Buffalo, etc.) Finding many on the west coast but no luck near home... Thanks!!
Catching Up.
Catching up finally on all your news, Life has been busy, even went on a cruise. Have checked in briefly from time to time But not had the time to comment in rhyme. It's now Winter here so things quitened a lot Just wanted to praise such an impressive lot. When one visits this site feeling distraught You'll always find…
mammogram pain with neuroipathy-- anyone else findf it much worse
I hadn't had a mammo for years & the onc had me have one- I suspect as a baseline a we move into my "watch& wait stage. Inormally have ahigh pain tolereance & do remember them as hurting a little - but never anything that coulsdn't be tolerated for a few seconds. Seriously this one about finished me PAIN at a 11 - almost…
Fatigue
I am currently starting chemo therapy for my first reccurance after 17 months of being in remission. I had my first treatment with carbo/gemzar Tuesday. I know with my initial treatment fatigue was a big issue. I wanted to start this discussion to get input from as many as possible about how they fought fatigue during…
Mom fighting Cancer
Hello everybody, I am new to the forum. Felt very encouraged to ask opinions around after reading very supportive messages and genuine advise. Ok so my mom has been battling her OVCA stage 3-C since Dec 2011(CA125 ~1200) (Type High grade Serous). She has had 4 rounds of chemo. Round 1 she was on Paclitaxel/Carboplatin the…
CA 125 Elevation in the Safe Zone
Good Morning Ladies! It has been awhile since I posted, but I keep up with all of you everyday. You have helped me get through my fight of Ovarian Cancer. I just finished my last chemo last week. I have a question for you. After my surger my CA 125 number was 24. Then after my first round of chemo it was 11 until my last…
New teal sister
Hello all , have been reading this site since being diagnosed on 1st April this year, some of you lovely ladies have made me laugh and cry and given me the strength to fight my diagnosis. After months of doctors visits for integestion tummy pain and bloating eventually a laparoscopy was done and I was diagnosed with stage…
Need advice Ovary Removal
I need some advice. According to the cancer.org site women who have a "harmful" gene mutation in the brca 1 or 2 should consider removing the ovaries. My sister, who just died from OC at age 46 had a mutation that was Favor Polymorphiism in braca 1. I took the test and have the same mutation. However, according to my…
NO BRAIN METS!!
I am so thankful and relieved. Thanks for all your support!! Carla
Alexandra
Good luck on your ct scan tomorrow
Happy Father's Day!
Missing my dad today. He died 2009. He was a quiet, supportive, caring father.
Finished out my mastectomy
Today I had a surgery to finish out my mastectomy. Evened out right and left and did the origami fold to creat the nipples. Next on the horizon, tattooing. All is well.
Guidance to upload a pic - where do I start?
can siomeone point me to where I go to upload a snap of me. Tks Susan P
Please Help I am So Scared!!
Hello to All! I Am new to this forum and searching frantically for answers or help. I am 32 (33 next month), I have had a long history since the age of 17 with severe endometriosis and pelvic adhesive disease as well as autoimmune thyroid disease. I'll try to keep this as condensed as possible . In April I ended up in the…
Carla, how is it going today!
I'm thinking of you and hoping you feel calmer and less panicked. Susan
Platinum Resistant Women, Anyone on Doxil and a parp inhibitor?
My CA-125 started rising as soon as chemo ended with a good CA and cat scan. My CA has since gone up several times and the doctor wants to put me on a clinical trial of veliparib and Doxil. I would like to know which drugs the women who were declared platinum resistant wound up taking and how are you doing? Do you take…
Follow up to beginning tx for 1st recurrence
I met with an oncologist at the University of Chicago yesterday and another gyn -oncologist at Northwestern in Chicago. They both agree that standard chemo with a platium drug and another one such as gemzar, doxil or taxol would be appropriate. They also felt since I responded with initial treatment and I'm BRCA 1 that I…
Doctor just called. Today's scan reports are BAD! I am beyond TERRIFIED!!
My dr. just called. I had a node come up in my neck, so he also ordered scans of it today. There is node activity in my neck. Also, they found a suspcious spot in the pons of my lower brain. He is scheduling an MRI for asap. He said if it has metasized there that he will do radiation. Also, I now have two spots in my…
Medicare ?
Hi ladies, In August I will be eligible for medicare since I will have been on disability for 2 years. (I will turn 52 in August). Anyway, I have been working with an insurance agent to find my supplement and drug coverage. He said that most of the time medicare will not pay for clinical trials. That option is probably in…
Anybody have Cyber Knife? Or know anybody who has?
Hi ladies, I habe a consult on June 18th to find out about cyber knife. I was wondering of anybody has had it done or know of anybody who has for ovarian cancer? I only found a few articles about it and ovarian cancer. It sounda definitely worth a shot especially for women with in operable tumors. Thanks Joyce Aka: Too…
dentist
Has anybody gone to the dentist while on chemo. If so what was the procedure. I really need to go.
iDO inhibitor
Io was asked at las visit if I'd liketo take part in a clinical trial - I was excited hoping it was PARP after googling Parp - I think I have an idea ofhow it works. can't seem to find a simple explanation for IDO - the company is Incyte Tks Susan P from Alberta Canada &TX& WY
Insomnia Thoughts
I had chemo today. It was much more eventful than usual, and we were there hours longer than we expected. Had to get lots more steroids than usual, so I expect I will be awake until....Monday morning when I get to work!! Haha!!! So, while I'm not sleeping, I am reflecting on some emotions I've experienced lately. First, an…
Anybody on a Clinical Trial using MEK162 Drug?
Hi Ladies, The second opinion doctor I went to suggested two options for me. 1 is surgery but she that said she may be asking for trouble because due to the small size, position and the unkown of other possible site. I didn't really like that answer. The other options was a clinical trial for the Drug MEK162. IS anybody…

Ovarian Cancer

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